Misunderstood. Isolation. Unpredictable. Imprisonment. Exhaustion. Debilitating.
This is how my life felt from 2000-2006. I was sick. I was in pain. I wanted answers but no one had them.
My name is Laura, and this is my story. From High School and into College I had been misdiagnosed . In 2006, while doing blood work for mono they found some levels to be very off. I still remember the doctor telling me to go home and pray that it was MS and not lupus. I was shocked that he would say something like and instill that fear in me. Once asked if I had any history of lupus in our family…it all started to make sense. Yes. We have a history of lupus throughout my father’s side of the family. Finally some answers that I wanted. After all the tests came back positive, they confirmed I had active Systemic Lupus Erythematosus.
After trying many medications of Methotrexate, Imuran, Plaquenil, Benlysta, steroids, multiple pain meds, and every holistic method, vegan, vegetarian, paleo method you can try…I am still trying to understand the mysteries of lupus. We are still working to find a combination of the drugs that will hopefully slow down the disease and manage the chronic daily pain. Currently I go every 4 weeks to get an infusion which I get through a power port placed in my chest and I do chemo weekly. It is time consuming and very humbling, but I am still alive and I still have a chance to show my family and friends that I won't give up this fight.
Now at the age of 33 I am finally speaking out about this horrible disease. It's taken me 10 years but I am finally to a stage where I want to share my story in hopes that others can relate and see that they are not alone. You can have a family, you can have a career, and you can have a life which is pleasing to the Lord. It may not be anything like you once planned but it is still beautiful.
I am committed to raising more awareness of lupus in hopes that there will one day be a cure. This is why I signed up for the Walk To End Lupus Now and started a team: By His Stripes. One day there will be a cure, until then we will do everything we can to Help Solve the Cruel Mystery.
We can solve this cruel mystery…we just have to stick together and work hard. Share your story…share my story…raise awareness, raise funds, and beat this disease!
Visit Laura's blog here to read Laura's Letter to Lupus