About Our Programs and Services
No one should have to face the suffering, frustration, and uncertainty of lupus alone. The Lupus Foundation of America, Heartland Chapter understands the emotional turmoil, economic hardships and physical pain caused by lupus.
- We are here to listen, to provide answers, and to give caring support.
- We collaborate with lupus medical experts to produce information and programs to help people with lupus and their doctors better manage the disease.
- We provide answers to questions about lupus, tools and resources, and guide individuals and families through the complexities of living with lupus toward a better quality of life.
What is Lupus? Online Video
Our online video features Dr. Katherine Temprano, Associate Professor of Internal Medicine & Rheumatology Fellowship Program Director at Saint Louis University who provides a comprehensive overview of lupus, including how lupus is diagnosed, treated and managed.
This video is designed for newly diagnosed lupus patients, those who suspect they may have lupus, or anyone who needs a refresher on the basics of the disease.
We offer a variety of educational program and workshops for the general public and people living with lupus, including family members, caregivers and friends. LEARN MORE about our upcoming Lupus Educational Programs.
Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.
Information & Referral
We collaborate with lupus medical experts to produce accurate information, literature, resources and referrals to help people with lupus better understand and manage their disease. If you would like to receive more information about lupus, a listing of physicians who treat lupus, or our New Patient Information Packet, please contact us at 314-644-2222 or 800-958-7876 or firstname.lastname@example.org .
LupusConnect™ is an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of the disease. It’s an easy-to-use, online platform that encourages its community members to ask questions, reply to posts and read about others' experiences in a safe and comforting community. There is no charge to join LupusConnect, and once you sign-up to be a member, you will experience a positive and welcoming environment with 24/7 access to the community.
We offer a free monthly support group for individuals living with lupus and their loved ones. This group encourages and accepts people as they are and provide a comfortable learning environment to help attendees develop the best coping strategies to reduce stress that often accompanies living with lupus.
Our Summer Jam Youth Retreat is the only LFA camp in the country for youth and teens with lupus. This weekend camp is held at YMCA Trout Lodge and is for girls 12-19 years of age with lupus. Activities include counseling sessions conducted by a licensed professional counselor, low-impact exercises to help strengthen bodies and improve wellness, and information on how to live well with the disease. Campers also enjoy traditional camp activities.
Legislation & Advocacy
The Lupus Foundation of America and its network of lupus activists across the country have worked diligently to stimulate millions of dollars in federal and state funds for lupus research and education programs. We must continue to make our voices heard and educate our elected officials about the impact of lupus on individuals and their families. The Foundation is committed to working with the United States Congress, federal government agencies and state legislatures and agencies to improve the lives of people affected by lupus. Together, our work can elevate lupus on the nation’s health care agenda.
Visit the Legislative Action Center to email your members of Congress about legislation and policy important to people with lupus and their families.
The Lupus Foundation of America Center for Clinical Trials Education (LFA-CCTE) is the resource for people with lupus and their families who want to learn about clinical trials. The Center includes information that people with lupus need to know when considering whether to participate in a clinical trial.
Visit the LFA-CCTE website to learn more
The Health Insurance Marketplace offers coverage to many Americans who currently do not have health insurance and provides protections for people who have chronic conditions such as lupus. The Health Insurance Marketplace provides a virtual exchange for insurance comparison.
If you are a caregiver for someone with lupus, you are not alone. This toolkit is designed to provide you with guidance, support, and advice, whether you have been a caregiver for just a few days, or for several years.