2020 Lupus Advocacy Day - February 20th
Registration is Closed
Thank you to our generous Sponsor
7 Steps to a Successful Lobby Visit
- Identify yourself and the group you represent: Let your legislator know that you live in her/his district and identify if you represent an organization or group “Hello Sen./Rep. ___________; my name is ____________. I am here representing the Georgia Chapter of the Lupus Foundation for Lupus Advocacy Day. I/We am/are here because…”
- Be prepared to control the meeting: Remember that you have limited time with your legislator, so don’t let them get you off track. Be polite but firm.
- State your position clearly: Inform your legislator of your position and use supporting information, like fact sheets and personal stories. You are the expert because Lupus impacts you and your family.
- Ask specific questions: It’s not enough for your legislator to say that she/he supports the issue. Ask questions such as, “What is your position on the issue?” “How will vote on a bill?” “Will they sponsor/co-sponsor?” Take good notes!
- Provide information: Leave information with your legislator about the issues you discussed. Remember, if you don’t know the answer to a question, let your legislator know you will find out and follow up with them. Ask him/her how they want you to follow up (phone, meeting, email, text…) and then follow up with them once you have the information.
- Follow up with the legislator: Always send a follow up letter or email to your legislator that restates your position and thanks the legislator for her/his time. Continue to think of ways to build a relationship with that legislator.
- Debrief: Have a formal debrief with Advocacy team that lobbied to decide on next steps. Also, check-in to evaluate how the visit went.
2020 Lupus Advocacy Day - Talking Points (download as a pdf file)
Surprise Medical Billing - Balanced Billing Act Support SB 293
As a medical consumer, I would like to know ahead of time if I am being treated by a healthcare provider who is not covered in network by my health insurance plan before I receive treatment.
As a medical consumer, I would like my healthcare provider and insurance company to work out the cost if I am treated by a healthcare provider who is not covered in network by my health insurance plan.
As a medical consumer, I would like my healthcare providers to disclose cost estimates prior to an examination.
Full Medicaid Expansion
We need full Medicaid expansion because it would provide health insurance to thousands of Georgians living with a debilitating chronic illnesses.
Full Medicaid expansion would insure half a million of uninsured or under insured Georgians who use emergency rooms and urgent care systems to treat chronic illnesses. Hospitals care for these patients and transfer that cost on consumers.
Full Medicaid expansion would insure the 60% of lupus patients who have completely lost income because they are unable to work and have not been approved for disability.
Pharmacy Benefit Managers Role Drugs – Support a more comprehensive SB 313.
Pharmacy Benefit Managers (PBMs) negotiate costs, discounts and rebates with pharmaceutical companies in exchange for preferred placement of drugs on the insurer’s drug list or formulary.
We want know how much money is divided between the pharmacy, the PBM, insurance company, and pharmaceutical company every time we fill a prescription.
We want lower drug costs. We want to know if the a corporation is receiving a discount or rebate that is intended for the patient.
We want the option to use local pharmacies over mail order without penalty. We want the price we pay at a local pharmacy to equal the cost for mail order prescription drugs.
We want more transparency when filling prescriptions for specialty tier drugs. We want to know why a drug is designated specialty. We want to know why patients are forced to obtain specialty tier drugs from a mail order pharmacist.
Reach.org is seeking stories from patients who need access to specialty drugs or are forced to use a mail-order pharmacy. Email [email protected] if you have a story related to your ability to access specialty tier drugs.
LUPUS ADVOCACY DAY AT THE GEORGIA STATE CAPITOL
18 Capitol Square SW, Atlanta, Georgia 30334
Thursday, February 20, 2020
1. We will start on the 5th floor of the Coverdell Legislative Office Building (CLOB) Room 514, across from the capitol.
2. If you arrive after 11:00 a.m., we will be in the Capitol Building. You can pick up your registration materials at Room 216.
3. All adults must show a photo ID upon entering the Coverdale Legislative Building and Capitol; Wear comfortable shoes.
***Mitchell Street is closed to through traffic***
***Handicap access on MLK Blvd***
*Due to the climate of Legislative meetings and Capitol events, there may be some minor adjustments changes in our agenda during our event.
Thursday, February 20, 2020, 8:30 a.m. – 2 p.m.
CLOB Room 514 – Check-in and pick up materials
Schedule of Events
8:30 – 9:30 a.m. CLOB Room 514
Chapter Welcome and Lupus Presentation
10:00 a.m. - North Rotunda Stairs
10:30 a.m. - 12:00 p.m.
4th Floor Gallery
Lupus Resolutions in the House and Senate
After Resolutions are Read
3rd Floor House and Senate Ropes
Lupus Activists Meet Their Representatives
Page Desks - Chapter volunteers, lupus activists and families will call on state legislators, including calling legislators from the house and senate floor.
12:00 p.m. - South Rotunda Steps (outside Room 216)
12:30 - 1:00 p.m. - Room 216
1:00 - 2:00 p.m. - Room 216
From the South:
Take I-75/85 North to Exit 245 (Capitol Avenue).
At the bottom of the exit ramp, continue straight through the stop sign.
At the first traffic light, turn left onto Hank Aaron Drive.
The Capitol will be approximately one mile down on the left. CLOB is on the right.
From the North:
Take I-75/85 South to Exit 248A(Martin Luther King, Jr. Drive).
Bear right onto Martin Luther King, Jr. Drive.
The Capitol will be on the left. CLOB is on the right.
From the East:
Take I-20 West to Exit 58A (Capitol Avenue).
Turn right on Capitol Avenue.
The Capitol will be approximately one mile down on the left. CLOBis on the right.
From the West:
Take I-20 East to Exit 56B (Windsor St. /Spring St. /Stadium).
At the third light, turn left onto Central Avenue.
Go to Mitchell Street and turn right.
The Capitol will be two blocks down on the left. CLOB is on the right.
Located on Fraser Street, 2 blocks from the Capitol
Located on the corner of Butler Street and Decatur Street
Steve Polk Plaza
Located on Martin Luther King Jr. Dr. beside Underground Atlanta
Spaces for visitors with disabilities are located on Mitchell Street. Vehicles may stop briefly at the loading zone to drop off passengers.
Visitors in wheelchairs may enter the Capitol from the loading zone off of Mitchell Street and from Martin Luther King, Jr. Drive via ramps which provide access to the first (ground) floor.
The elevators are located on the east and west sides of the Capitol.
Wheelchair accessible restrooms are located on the first, third and fourth floors of the Capitol building. Facilities for ladies are located on the first floor, inside the Capitol Avenue entrance and on the third floor in room 342. Men's' facilities can be found on the first floor and on the fourth floor adjacent to the House Gallery.
Accessible water fountains can be found near the first floor restrooms on the east side of the Capitol and inside the Martin Luther King, Jr. Drive entrance.
Both a TDD and a Volume Control Telephone are located on the first floor of the Capitol
in the restroom area.
Wheelchair spaces are provided in the Senate and House galleries and most legislative committee meeting rooms are accessible.
The paths leading to points of interest on the Capitol grounds are paved.
In compliance with security regulations, all visitors must enter the Capitol through a metal detector; the X-ray machine must examine hand-carried items. No weapons, including pocketknives, are allowed in the Capitol. These items should be left in a vehicle because security is not able to hold these items. In addition, off-duty law enforcement officers will not be allowed to carry their weapons while they are inside the Capitol.
MARTA is an option for transportation to the Capitol. MARTA stops located nearest the Capitol are the Georgia State Station (directly across from the Capitol in the Sloppy Floyd/Twin Towers complex) or the Five Points station (two blocks west of the Capitol at Underground Atlanta.)
Chapter office until Wednesday evening - 770-333-5930
Teri Emond’s cell - 404-542-9483
Chris Reed's cell – 678-634-2866
NOTE: Cells are limited in the Capitol.