Why I Walk: Ester Charlestin

Now, in this moment of my life, I take careful steps to make everything mean something to me.   When I was I was diagnosed with Systematic Erythematosus Lupus (SEL) on January 1, 2014, my way of living was threatened.   Arthritis, fibromyalgia, vitamin D deficiency, anemia, muscle spasms, fatigue, and spontaneous blood clots accompanied the Lupus, and for all these health problems, I was put on a heavy series of medications.  I know you may be thinking, what does this have to do with me?  The answer is that it has everything to do with you!  Although I have suffered much, I hold on by finding inspiration in everyday moments and every small thing in life.   I would like you to find inspiration in me.   Whether it is the wind blowing or the sun shining, I urge you to breathe life into that moment.I felt a gained new life when I read “I Know Why the Caged Bird Sings” by Maya Angelou.  The caged bird’s wings had been clipped and his feet had been tied but through it all he still sings of freedom.  When I first got sick, I lost my ability to walk, my ability to hold my pee, and the ability to take care of myself.  It was as though I was stuck in a body with no control over what happens next.   So when Maya Angelou says of the caged bird, “his wings clipped and feet tied but he still sings of freedom”, I completely understand.   The caged bird had not yet seen when he would be free, but he held on to that hope.  And, I hold on to the hope that I will be able to inspire, to create change, to help others not to feel alone, to build character where I could have been defeated, to protect  future generations, to protect families, to protect friends and to protect anyone or everyone that has a breath of life. Please understand that Lupus has no owner.  The number one cause of Lupus is unknown.  As I fight, I ask you help me to fight this battle so that we can unravel the cruel mysteries of lupus.

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