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We're committed to partnering with lupus warriors, their friends and loved ones, and the medical community to fulfill our vision of a life free of lupus.
Night of Beauty brings together the lupus community for a night of inspiration, education, and empowerment. RSVP to save your spot at this event on January 30th – space is limited. Find more details here: LupusNightofBeauty.com/LA
We hope you will join us at The Lupus Project 2020! The goal of The Lupus Project is to bring together individuals living with lupus and their families to a convenient, fun, informative, and social affair where the major Lupus organizations of California and several health conscious businesses come together for one day to share about their resources.
The 2020 National Lupus Advocacy Summit will be held from March 15-17 at The Mayflower Hotel in Washington, DC. Join hundreds of lupus advocates from across the country and urge your members of Congress to support funding for lupus research and policies to improve the lives of everyone living with this disease.
We were 25 strong from California last year and we will have more this year - be one of them!
Quarterly Update
The end of 2019 saw a remarkable series of developments with huge implications in the fight to end lupus! We have seen two potential treatments report positive results following successful Phase 3 trials, each with plans to move forward with regulatory review. Having two potential new treatments for lupus within reach is a historic position for the lupus community. For full details, read the LFA blog post: https://www.lupus.org/news/2019-unprecedented-year-in-lupus-drug-development
We also saw a new record level of lupus funding approved by the federal government, including nearly $19 million for lupus-specific programs (an increase of $4 million) and $41.7 billion for the National Institutes of Health, the largest funding source for lupus research. The spending packages include all of the funding that we advocated for on Capitol Hill this year!
Locally, our three-person team is poised to greatly expand our services to lupus warriors and their loved ones. In 2020, we are looking forward to the following:
- 3 Walks: Adding a San Diego Walk to End Lupus Now in addition to our Orange County and Los Angeles Walks.
- 4 Support Groups: We will be adding four new support groups throughout the Region, including two in Los Angeles and one each in Orange County and San Diego.
- 6 LFA Events: We look forward to hosting many more educational events throughout the year, including four in the Los Angeles area and one each in Orange County and San Diego.
Lastly, we hope you join us in turning Capitol Hill purple at the 2020 National Lupus Advocacy Summit, March 15-17, and help generate support among members of Congress for critical lupus research and education programs. Register today!
As always, I welcome your calls and look forward to meeting you in person. You can reach me at 310.560.4587 or via email at [email protected].
Warmly,
Matthew Scelza
P.S. Like us on Facebook: www.facebook.com/lupusorgsocal and follow us on Instagram: @lupusorgsocal
Make Your Mark is the community fundraising program of the Lupus Foundation of America. Each year, hundreds of Make Your Mark members organize unique events and athletic feats that raise money to fight lupus. Use your passion to raise funds for lupus through a local event, special occasion, athletic competition or whatever you have in mind. A birthday party. A bake sale. A 5K. A half marathon, marathon or triathlon race for lupus. There's no limit to how you can raise money to fight lupus.
Start a Fundraiser for LFA!