The story of Heidi Givler who won this once-in-a-lifetime experience through a silent auction at the 2016 National Gala in New York City.
This event provides an amazing opportunity for lupus activists to join together and urge Congress to put lupus at the front of the national health care agenda.
When you’re living with lupus you are often your biggest advocate. One advocate shares her experiences from previous National Policy Summits.
The Sharing the Journey series is by you and for you. In your own words, we highlight the perspectives and personal experiences of people who struggle with lupus each day.
When you have lupus, it’s all too easy to worry about not being a good parent. Fatigue, pain, brain fog, flares, hospitalizations, medication side effects—living with lupus doesn’t leave much energy for anything else.
People living with lupus and leaders from FDA, NIH, and industry headline list of panelists participating in June National Policy Summit.
You don’t want to miss out on the chance to make your voice heard as we put advocacy in action on Capitol Hill.
I don’t look sick from the outside and since many people know little or nothing about it, they don’t understand the seriousness. That’s one of the challenges with lupus.