2023 National Lupus Advocacy Summit
For the first time since 2019, lupus advocates will come together in Washington, DC for the nation's largest lupus advocacy event! From April 23–25, Summit attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of their fellow lupus advocates, and turn Capitol Hill purple by advocating for their members of Congress to join our fight against this terrible disease.
Each year, the National Lupus Advocacy Summit brings together the entire lupus community in pursuit of our shared goal: a world without lupus. At the 2023 Summit, you'll help us build on our past successes and push for more.
Hear firsthand from the brightest minds researching and treating this disease and receive training on how to advocate for yourself and others with lupus throughout the entire year.
There's no other event in the world that brings together as many people affected by lupus as the Summit. Be surrounded by those who understand your challenges and can help you manage them.
Meet with your members of Congress to tell your lupus story and urge them to join our fight against this terrible disease by supporting policies to improve the lives of all people affected by lupus.
The National Lupus Advocacy Summit is the keystone of our comprehensive advocacy program that has generated more than $684 million in federal funding for lupus research in the last five years alone.
We can't turn Capitol Hill purple without you! Don't miss out on this opportunity to raise your voice in support of the 1.5 million Americans living with lupus.Register Now
Sunday, April 23
Welcome to Washington! Get checked in, grab your materials for the rest of the Summit and say hello to Lupus Foundation of America staff and your fellow advocates at the JW Marriott, Washington DC. Rest up before the Summit begins bright and early the next morning!
Monday, April 24
Get ready to learn! We'll get started early Monday morning at the JW Marriott with sessions detailing the latest breakthroughs in lupus research and drug development and what they will mean for you. After lunch, you'll hear about the legislative landscape and the priority policies we will be taking to Capitol Hill on Tuesday. Lupus Foundation of America staff will fully prepare you with everything you'll need for successful meetings with your members of Congress – from navigating congressional office buildings to telling your story in the most impactful way.
Tuesday, April 25
It all builds to this! Put on your purple and head to Capitol Hill, where we will have arranged meetings for you with your members of Congress. You'll meet with the offices of your U.S. Representative and both of your U.S. Senators to tell them how lupus has changed your life and what they can do to join our fight against this devastating disease. After your meetings, join us back at the JW Marriott to debrief your day with Lupus Foundation of America staff and your fellow advocates.
Your Summit registration fee of $50 provides you with an all-access pass to the 2023 National Lupus Advocacy Summit. We collect this fee to reserve your spot at the event and slightly offset the costs associated with planning and executing an event of this size. The registration fee is waived for advocates 18 or under.
Included in your registration fee is:
- Exclusive access to our discounted room rate at the JW Marriott, Washington, DC;
- One-of-a-kind Lupus Foundation of America backpack;
- Breakfast, lunch, and snacks throughout the day on Monday, April 23;
- Breakfast on Tuesday, April 24 and refreshments after your meetings on Capitol Hill;
- Discounted transportation to and from Capitol Hill for your congressional meetings;
- Scheduled meetings with your members of Congress and access to a mobile app to help you navigate Capitol Hill, keep notes on your meetings, engage your members of Congress on social media, and more.
After you register for the Summit, you'll receive much more information to help you prepare for your trip to Washington. The week before the Summit, we will host a webinar to review everything you need to know and answer any final questions you may have. If you have any questions in the meantime, please contact us.
The 2023 Summit will be hosted at the JW Marriott in Washington, DC. All Summit events will be held in the hotel, with the exception of the congressional meetings on April 25. After registering for the Summit, you'll receive access to reserve a room at our discounted room block in the JW Marriott. The room rate is $339/night.
The Foundation will again provide scholarships for advocates to attend the Summit. Scholarships are extremely limited, and as much as we wish we could, we are not able to provide scholarships for everyone who applies. Click here to learn more and apply for a scholarship – the deadline to apply is February 8.
The Foundation will use the address you provide when registering to schedule meetings for you with your three members of Congress. Please do not attempt to schedule your own meetings. Click here to find out who represents you in Congress, and please let us know if you have any issues or questions related to your meetings.
If you are living with lupus and planning to attend the Summit, check out our guide to traveling with the disease and this helpful packing list as you prepare for your trip to Washington. If you have specific nutritional needs or require ADA hotel accommodations, please contact Travis Smith after you have registered for the Summit.
For advocates unable to travel to Washington, DC this April, we will once again provide for advocates to participate virtually by streaming Summit sessions, connecting with their fellow advocates, and urging their members of Congress to support policies to improve the lives of people with lupus. Register now for virtual access to the Summit!Register Now
We understand that traveling to Washington can be costly. It's important to us that we provide advocates every opportunity to be a part of this powerful event, and that's why we developed this fundraising guide to help you offset the cost of attending the Summit. The guide will help you budget for your trip, leverage the power of crowdsourcing, and much more.Download the Guide
For questions about the 2023 National Lupus Advocacy Summit, please contact Travis Smith, Sr. Director of Government Relations, at SmithT@lupus.org.