North Carolina Chapter

Programs & Events

The LFA conducts educational, fund-raising and advocacy activities in communities throughout the nation.

12th Annual NC Lupus Summit



Saturday, October 20, 2012
9:00am - 2:45pm

Marriott Crabtree Valley
4500 Marriott Drive
Raleigh, NC 27612-3365

REGISTRATION NOW CLOSED

Click here to see a recap of this year's event

Patients, caregivers, and the medical community are invited to join us for a day devoted to those living with lupus.  The largest educational conference on lupus in the state of North Carolina, this event, provides a variety of discussion led by physicians and other experts dedicated to unlocking the treasure of a healthier you.

Traditionally held in Charlotte, the summit will now be held on a rotation schedule between Charlotte and Raleigh to allow more North Carolina residents the ability to attend.  So this year's event will take place in the Raleigh area for the first time in the history of the event.

KEYNOTE SPEAKERS

OPENING KEYNOTE: SANDRA DUBOSE-GIBSON
                                     FORMER MRS. BLACK NORTH CAROLINA                       
After losing her father to lupus only a few years prior, at the age of 25, Sandra was faced with the incurable autoimmune disease, Alopecia Universalis, which resulted in the complete loss of all of the hair on her body. She was forced into a compelling journey of self discovery and self acceptance and has emerged a living example that true beauty comes from within. After overcoming Alopecia’s devastating blow to her self esteem, Sandra transformed pain into passion and openly shares her experience of going bald and the lessons she has learned about overcoming life’s challenges and the importance of having authentic self esteem from the inside- out.  In 2011, she went on to become the first bald beauty queen for NC as Mrs. Black North Carolina. She is the founder and President for the Alopecia Community of the Triangle and Dubose Entertainment. Sandra is also the author of My Crown and Glory, It's NOT About the Hair. Read more.


LUNCH KEYNOTE: SANDRA C. RAYMOND
                                PRESIDENT & CEO, LUPUS FOUNDATION OF AMERICA
Since joining the LFA in 2002, Ms. Raymond has worked with the national Board of Directors and staff, and the LFA’s network of nearly 300 chapters, affiliates, and support groups, to provide strong national leadership to bring increased attention and resources to programs of research, public information and awareness, patient and professional education, and support services for people with lupus and their families.Under her leadership, the LFA's highly professional staff has launched Lupus Now®; established the Center for Clinical Trials Education; greatly expanded its internet presence and website; and created award-winning national public awareness campaigns and professional education programs that have helped to raise the national consciousness about lupus.She has received numerous awards, including the National Women’s Health Advocacy Award presented to her by the Society for the Advancement of Women’s Health Research, the Exceptional Achievement in Women’s Health Advocacy Award given to her by the National Association of Women’s Health Professionals; and received the Outstanding Leadership Award from the National Osteoporosis Foundation. Read more


SESSION WORKSHOP TOPICS  
MORNING SESSIONS
  • Session 1A: Lupus 101: The Key to Understanding Lupus
    This session is designed for both those newly diagnosed  and anyone needing a refresher in the basics on lupus. Learn more about current, medically accurate information on lupus, its symptoms, treatments and coping techniques.
    PRESENTER:  Stacy Kennedy, MD, MBA
                      Rowan Diagnostic Clinic

  • Session 1B: Lupus & the Lungs: Mapping the Pulmonary System
    CANCELLED - Regretfully, our confirmed speaker is now unable to attend, and a suitable replacement is not available.  We apologize for any inconvenience, and hope to offer this topic at another point in the future.  Anyone who had registered for this session will be contacted regarding alternate workshop preference.
  • Session 1C: Women & Lupus: Minding the Helm
    Women living with lupus face a variety of challenges from physical, to reproductive to intimacy. Learn about these concerns specifically related to women with lupus.
    PRESENTER: Megan E.B. Clowse, MD, MPH
                     Duke Lupus Clinic 

  • Session 1D: : Men & Lupus: Being the Captain of the Ship
    A lot of misinformation exists about lupus—including the incorrect belief that lupus only occurs in women.  While there are many similarities on how the disease affects men and women, there are some key differences on lupus affects men.  In this session learn about the unique effects of lupus on males living with the disease. (Session will be audio recorded for later availability.)
    PRESENTER:     Joseph Shanahan, MD
                     Shanahan Rheumatology & Immunotherapy     

AFTERNOON SESSIONS

  • Session 2A: Beautiful You: Revealing Your Hidden Gems
    Lupus and treatment methods can take a toll on the mind, body, and spirit. Listen to a panel of individuals that have turned the effects of lupus into positive attributes and have lifted their self-esteem in the process.  
    FACILITATOR: Sandra Dubose-Gibson
    PANEL OF LUPUS THRIVERS: Karen Patch, Tameka Mitchell, Tabbatha Wiggins, and Eric Knight

  • Session 2B: Navigating the Waters: Pediatric Lupus Resources 
    Young people, especial individuals living with lupus, are faced with many pressures: parents' expectations, school, peer pressure, and the desire to just be normal. Learn about resources available to assist you with getting the help needed to make the journey for you and your family a little easier. (Session will be video recorded for later viewing.)
    PRESENTER: Sheila Rittgers, MSW,LCSW
                    Social Worker, Duke University Medical Center, Pediatric Rheumatology                 

  • Session 2C: X Marks the Spot: Managing Lupus Pain
    More than 90% of people with lupus will experience joint and or muscle pain related to their lupus. This educational workshop will address management of severe and chronic pain associated with lupus including medications, therapies and coping strategies to help manage pain.
    PRESENTER: Mary Anne Dooley, MD, MPH
                    Associate Professor - Thurston Arthritis Research Ctr, UNC at Chapel Hill

  • Session 2D: My Loved One Has Lupus: All Hands on Deck
    Family life inevitably changes when a family member has been diagnosed with lupus. Discuss how to cope with the challenges of providing physical and emotional support to a loved one who is living with lupus. (Session will be audio recorded for later availability.)
    PRESENTER: Debra Eng, MSW, LCSW, LCAS       

EVENT SCHEDULE

9:00am - 9:45am       Check-in and Exhibit Browsing
9:30am - 9:45am       Morning Yoga
10:00am - 11:00am   Opening Session: Keynote Address
11:15am - 12:15pm   Session 1 Workshops
12:30pm - 1:30pm     Lunch: Keynote Address and Awards
1:45pm - 2:45pm       Session 2 Workshops

 

OVERNIGHT ACCOMMODATIONS

Marriott Crabtree Valley
4500 Marriott Drive
Raleigh, NC 27612-3365

  • Special Room Rate Deadline has passed
  • Limited rooms still available at regular room rate
  • To Book Hotel Reservations: Call (919) 781-7000;  Reserve online here.

The 2012 Annual NC Lupus Summit is proudly supported by:

GOLD SPONSOR

SILVER SPONSOR

BRONZE SPONSOR

CORPORATE SUPPORTER
Biofreeze
Green With Envy

 The Lupus Foundation of America, Piedmont Chapter is proud to be a source of information about lupus.  Our comments are based on professional advice, published experience and expert opinion, but do not represent individual therapeutic recommendation or prescription.  For specific information and advice, please consult your physician.

For more information or questions regarding information on the Annual NC Lupus Summit and other Piedmont Chapter programs, fill out the online contact us form, email us at info@lupuslinks.org, or call our office at 704-716-5640 or toll-free at 877-849-8271.