How Donations Are Used
The Lupus Foundation of America is the foremost nonprofit voluntary health organization dedicated to lupus. LFA programs serve to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and expand research efforts to develop new treatments for lupus and, ultimately, find a cure for the disease.
The LFA delivers its programs and services through the National Office in Washington, DC and a nationwide network of chapters and community-based support groups throughout the United States. Below is a brief description of our programs.
RESEARCH
Greatly expand the medical research effort to bring lupus under control and find a cure.
- Implement national strategies to promote increased government funding of lupus research by the National Institutes of Health and other federal agencies.
- Support LFA's National Research Program, Bringing Down the Barriers.
- Encourage private efforts by pharmaceutical and biotech companies to develop safer and more effective therapies for lupus.
INFORMATION AND EDUCATION
Translate research findings into medically sound information for health professionals, lupus patients, and the public.
- Educate physicians about the diagnosis and treatment of lupus.
- Develop and disseminate education materials to all individuals affected by lupus.
- Design and deliver innovative national awareness campaigns to educate the public about lupus.
- Collaborate with national partners and government agencies to educate individuals at highest risk for developing lupus.
ADVOCACY
Advocate for constructive public policies that help support people with lupus and their families.
- Broaden and strengthen the outreach of LFA's grassroots advocacy network to secure urgently needed increases in funding for research and education programs.
- Educate policymakers about the critical needs of people with lupus and their families.
- Collaborate with state and federal policymakers to establish and expand programs for people with lupus.
CHAPTER SUPPORT
Build the capacity of LFA chapters to serve all people with lupus.
- Develop model programs, educational materials, and other tools for chapter volunteers and members.
- Provide training on board development, governance, financial and program management.
- Facilitate collaborative efforts between LFA chapters and other community service, medical, and advocacy organizations.
- Continue to build the capacity of existing LFA chapters and develop and implement a long-term plan to establish new chapters to ensure that LFA programs are available to all who need them.
Expenditures for the Lupus Foundation of America, Inc. and its chapters for the Fiscal Year Ending September 30, 2009.
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Read our 2008 Annual Report online.
Link to IRS Form 990 on Guidestar (PDF)
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