Support & Services
CLICK HERE for Lupus Support Groups
Monthly Meeting Dates & Times!
To download past issues of LFA-Heartland's
"Behind the Mask" Newsletter, CLICK HERE!
2010 LUPUS TELECONFERENCES
CLICK HERE to Register Online!
Or, call 1-800-9LUPUS6 (1-800-958-7876) to Register by Phone!
Pain Management
Saturday, September 11, 2010
Noon - 1:00pm, CT
Denise Hooks-Anderson, M.D.
Vivir Con Lupus
Tuesday, October 12
6 - 7pm, CT
Leyka Barbosa, M.D.
Living with Lupus
Wednesday, October 13th, 2010
6 - 7pm, CT
Philip L. Cohen, M.D.
Rheumatology Section Chief, Temple University School of Medicine
Lupus & the Brain
Saturday, November 13th,
10am-11am, CT
Robin L. Brey, M.D., F.A.A.N.
Professor and Chair of the Department of Neurology
Edna Smith Dielmann Distinguished University Chair
Associate Dean for Research
University of Texas Health Science Center at San Antonio
MONTHLY WEBCHATS - Participate in the Topic of the Month
June 2010
Special Considerations for Men with Lupus -- Dr. Robert Lahita
July 2010
The Mysterious Aspects of Skin Lupus -- Dr. Victoria Werth
August 2010
Eyes & Dental Issues with Lupus
September 2010
Back to School with Lupus
October 2010
Disability: Working Your Way Through the System -- Sheri Abrams, JD (Disability Attorney)
November 2010
Dealing with Stress: Balancing Family, Friends, Activities and Lupus -- Cindy Coney
December 2010
Gastrointestinal Issues with Lupus
FIND A DOCTOR
For a listing of physicians serving the Missouri, eastern Kansas and southern Illinois area, please call the office toll-free at 1-800-9LUPUS6, or in St. Louis, 314-644-2222.
It should be noted that in addition to the physician's list, there are other physicians in the area who may be well-qualified to treat lupus. It is suggested that you inquire with the physician regarding his/her schedule of fees; some DO NOT accept patients on Medicaid or Medicare. Due to the overwhelming need for physicians, first time appointments may take several weeks to schedule.
TRANSPORTATION INFORMATION
Need a ride? These transportation resources are available throughout Missouri:
EDUCATIONAL MATERIALS
The LFA has educational materials available for patients, their family members, care givers, and health professionals. We believe with the proper education and awareness our patients can live a more positive and productive life. Please call the office at 1-800-9LUPUS6, in St. Louis, 314-644-2222 or email info@LFAheartland.org and we can provide these materials for you.
Local E-newsletter
MEDICAL INFORMATION
For insurance needs, medications and the availability of free medications for certain lupus patients, we recommend contacting the following organizations:
Abbott Patient Resources
Access 2 Wellness
AstraZeneca Prescription Assistance Program
Eli Lilly & Company Patient Assistance Program
Free Medication Foundation
GlaxoSmithKline Patient Assistance Program
Merck & Company
Partnership for Prescription Assistance
Pfizer Pharmaceuticals
Together Rx Access, LLC
Community Health-in-Partnership Services (CHIPS) is a not-for-profit organization that provides healthcare and social services for the uninsured and underserved. At CHIPS, clients are defined not by their illness, but by their ability to attain wellness.
Lupus Foundation of America's Center for Clinical Trials Education
The LFA's CCTE is the resource for people with lupus and their families who are considering participation in a clinical trial.
OTHER PATIENT RESOURCES
Catholic Charities Archdiocese of St. Louis
Families USA
Laclede Gas Heating Assistance
Land of Lincoln Legal Assistance Foundation
Legal Services of Eastern Missouri
Patient Advocate Foundation
United Way
GOVERNMENT WEBSITES
Center for Disease Control and Prevention
Centers for Medicare and Medicaid Services
Department of Justice ADA Home Page
Food and Drug Administration
National Institutes of Health
Social Security Disability Links:
Social Security Online - Disability Programs
http://www.ssa.gov/disability/
Social Security Online - Electronic Disability Guide
http://www.ssa.gov/disability/electronic_disability.htm
Social Security Online - Benefits Eligibility Screening Tool
http://connections.govbenefits.gov/ssa_en.portal
Social Security Online - Local Office Locator
https://s044a90.ssa.gov/apps6z/FOLO/fo001.jsp
Social Security Disability Attorneys:
Margaret Fenlon, Attorney-at-Law
Clayton, MO (314) 445-7651
Christopher G. Galli, Attorney-at-Law
St. Louis, MO (314) 898-6939
Burnett & Driskill Disability Attorneys
Liberty, MO (816) 781-4836
Medicare Insurance Resource
Please call the office at 1-800-9LUPUS6, in St. Louis, 314-644-2222 or email info@lfaheartland.org and we can provide an insurance resource for you.
NATIONAL FOUNDATIONS
National Arthritis Foundation
National Kidney Foundation
National Osteoporosis Foundation
The Lupus Foundation of America