ABOUT THE LFA ALASKA CHAPTER

MISSION

The Lupus Foundation of America (LFA) Alaska Chapter is the state's only nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services, and hope to all people affected by lupus.

WHO WE ARE

The LFA Alaska Chapter is a non-profit 501C(3) non-profit organization run entirely by volunteers throughout the state. The Alaska Chapter's volunteer Board of Directors provide governance, strategic advice and development assistance.

ZERO IN 50 CAMPAIGN

It has been over 50 years since the FDA approved a new drug for the treatment of lupus! Fifty years is a long time to wait for anything, let alone new more effective treatments for this life-diminishing and life-threatening disease that affects 1.5 million Americans. For more information about the Zero in 50 Campaign launched by the LFAand to learn what you can do to help, please visit www.lupus.org/50years.

 

 

LFA's AD COUNCIL CAMPAIGN

The LFA, in conjunction with the Ad Council and the US. Department of Health and Human Services Office on Women's Health launched a new lupus ad campaign on April 7th, 2009. The campaign focuses on reaching young women - those most at risk for lupus. For more information about the campaign "Could I Have Lupus", please visit http://www.lupus.org/AdCouncil.

 

FROM THE CHAPTER BOARD MEMBER 

Welcome to our website: A letter from the Board Chair 

We are glad to have you checking out our website. Our Executive Director, Anna Tillman, likes to remind us that "We are not alone". Lupus is a complex, mystifying, and frustrating disease. If you or someone you know has lupus, we are here to inform and support you.

We are an all-volunteer organization that provides a local source of lupus educational materials (most are designed by the Lupus Foundation of America's national office). This material is distributed to phyicians, lupus patients, friends and family members of those affected by lupus, and to anyone wanting more information on this disease. Although we cannot make a referral to a specific physician, we do have a current ist of Alaskan phsyicians who treat six or more lupus patients.

Our contact information is listed below (telephone numbers, including an 800 number available within the state of Alaska, and our email address). We are available to people state-wide who have questions or concerns about living with lupus, supporting friends or family members dealing with the disease, and those who want to know more about lupus.

In Anchorage, we provide a Lupus Support Group which meets 9 or 10 times a year at our local office located at 4240 Old Seward Highway (Suite 11) on the third Saturday of the month from 1:00 - 3:00 pm.

We would love to have you as an active, involved member of the LFA Alaska Chapter as well as have your participation in fundraising events so that we can be in touch with more people who have been affected by lupus in our far-reaching state.

Sign up as a member, call for information, or make a donation to the cause. With more than 3,000 lupus patients in Alaska alone, you can see that we have a daunting task facing us to prove to everyone living with lupus that "they are not alone".

Judy Powell, Board Chair

 

CONTACT US

Mailing Address:   PO Box 240628, Anchorage, AK  99524-0628
Phone Numbers:   907-338-6332 or 800-307-5878 (toll free within Alaska only)

Fax Number:           907-345-0695

Email Address: LFA_Alaska@hotmail.com

Or, if you want to provide us with a little more detail about yourselves, please fill out our online contact us form.

Location: Our office is located at 4240 Old Seward Highway in the City Center Mall (located at the corner of Tudor Road and Old Seward Highway). Because our office is staffed entirely by volunteers, our office hours at this time are by appointment only. Please give us a call to set up an appointment!

BOARD OF DIRECTORS

• Executive Director -- Anna Tillman (Anchorage)
• Chair of the Board -- Judy Powell(Anchorage)
• PpPast-Chair -- Debora Griffeth
• Vice-Chair -- Shelley Ciarella (Anchorage)
• Secretary -- Danielle Simmons (Anchorage)
• Treasurer -- Billie DeVore (Anchorage)

Board Members

• Joyce Schuerger (Anchorage)
• Roger Hyde (Anchorage)
• Christine Hess (Juneau)

Retiring Board Members - thank you for your caring, support, and time!!

• Al Schuerger (Anchorage)
• Linda Hall (Fairbanks)

  

Some of the 2009 Board members attended the Anchorage Association of Volunteer Coordinators Golden Hearts Award dinner in May, 2009. From left to right, Board members and spouses are Al Schuerger (past Board Member), Joyce Schuerger (Board Member) , Danielle Simmons (Board Secretary), Debora Griffeth (Board Member and Chair of the Walk for Lupus Now), Anna Tillman (Executive Director), Judy Powell (Board Chair), and Jim Powell (LFA Alaska Chapter volunteer extraordinaire).        

                

Anna Tillman, Debora Griffeth, and Judy Powell (from left to right) accepted an award for Community Outreach at the LFA Annual Meeting in Chicago, 2007. The Alaska Chapter was honored for its outstanding efforts to provide lupus information to people throughout the state. Thanks to a $2000 travel grant from the national office, three executive officers of our chapter were able to attend the Annual Meeting.

 

 

 

 

Debora Griffeth (Board Chair) and Danielle Simmons (Board Secretary) accepting the 2008 Golden Hearts Award from the Anchorage Associaton of Volunteer Administrators. The awards are sponsored by BP and are given out yearly to outstanding volunteers and volunteer organizations. The LFA Alaska Chapter received the Outstanding Volunteer Program Award for our efforts to support people affected by lupus throughout the state. Our motto is "You Are Not Alone".