Archived Teleconference Recordings
View/Register for the 2015 Ask The Experts Teleconference Series.
Coping with Lupus (9/29/15)
When you are first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.
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Lupus and Female Issues: From Puberty to Menopause (8/15/15)
Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.
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Lupus and the Skin (7/14/15)
Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.
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Lupus and Hair Loss (6/24/15)
A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.
Living Well with Lupus (5/13/15)
Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.
Lupus and the Eyes (4/8/15)
Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.
Disability and Returning to the Workplace (3/31/15)
Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.
Physical and emotional stresses are among the suspected triggers for a lupus flare. People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.
This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.
Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Lupus and Depression (8/7/14)
Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.
Lupus and the Skin (7/9/14)
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center
Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.
Pediatric Lupus (6/4/14)
Speaker: Dr. Reema Syed
SSM Cardinal Glennon Children's Medical Center
Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.
Vivir con Lupus (5/8/14)
Speaker: Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.
Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar. Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.
Living with Lupus: An Insider's Perspective (5/1/14)
Presented by: Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus
Lupus and Men (4/12/14)
Presented by: Joseph Shanahan, M.D., Shanahan Rheumatology & Immunotherapy
Clinical Trial Education (3/22/14)
Presented by: Karen Obmaces, President of Accurate Clinical Research & Linda Willies, Clinical Trial Participant for more than 7 years
Lupus & Intimacy (2/26/14)
Presented by: Lisa Covington, MSW, LCSW-C
Living with Lupus (5/11/13)
Presented by: Stacy D. Kennedy, MD/MBA
Lupus and Cognitive Dysfunction (4/18/13)
Presented by: Michael Parsons, PhD
Managing the Doctor/Patient Relationship (3/14/13)
Presented by: Melissa Hughes, MD
Lupus and Employment (2/23/13)
Presented by: Rachel D. Ziolkowski, Esq.
Coping and Living with Fatigue (11/1/12)
Presented by: Afton Hassett, PsyD
Lupus and the Heart (10/9/12)
Presented by: Joan von Feldt, MD
Living Well With Lupus (10/6/12)
Presented by: Sara Gorman
Lupus Treatments (9/20/12)
Presented by: Murray Urowitz, MD, FACP, FRCPC
Parents Caring for Children with Lupus (9/11/12)
Presented by: Emily von Scheven, MD
Social Security and Disability with Lupus (7/12/12)
Presented by: Sheri Abrams, Attorney at Law
Coping and Living with Skin Lupus (6/7/12)
Presented by: Victoria Werth, MD
Living with Lupus (5/15/12)
Presented by: Donald Thomas, MD, FACP, FACR, CCD
Vivir Con Lupus (5/5/12)
Presented by: Marcos E. Maldonado, MD
Nutrition, Diet & Exercise Educational Webinar (2/16/12)
Presented by: Dr. Joe Raphael
Advances in Lupus Research: Spotlight on Treatment (10/26/11)
Lupus and the Brain (11/13/10)
Presented by: Robin L. Brey, MD
Living with Lupus (10/13/10)
Presented by: Philip Cohen, MD
Vivir Con Lupus (10/12/10)
Presented by: Marcos E. Maldonado, MD
Lupus and the Skin (6/12/10)
Presented by: Lynn McKinley-Grant, MD
Disability Issues and Lupus (4/22/10)
Presented by: Winnie P. Pannell, PC
Kidney Involvement in Lupus (3/11/10)
Presented by: Keisha L. Gibson, MD, MPH
The Lupus Foundation of America, Philadelphia Tri-State Chapter is proud to be a source of information on lupus. Our comments are based on professional advice, published experience and expert opinion, but do not represent individual therapeutic recommendation or prescription. For specific information or advice, please consult your physician. If you need help finding a physician, we maintain a list of physicians who treat individuals with lupus.