New study results show that a short questionnaire designed for adolescents to assess the impact of lupus on quality of life makes it easier for them to report their mental, physical, and social well-being.
News & Stories
Making gains against lupus kidney disease
The results of this study indicate that current use of steroids (20 mg/day or more) is perhaps the most significant risk factor for heart disease in individuals with lupus.
It’s no secret that infections pose a greater risk for people living with lupus. In fact, infections are the second most common major cause of illness and death for people with the disease. It is important to make your health a priority, and take steps to protect yourself.
Metabolic syndrome is marked by increased risk of cardiovascular diseases, so its incidence among people with lupus can indicate risk of cardiovascular disease in lupus patients.
Dr. Murray Urowitz discusses current and potential new therapies for managing lupus.
People with lupus are at increased risk of cardiovascular disease, especially when taking steroids. The use of anti-malarial drugs, such as hydroxychloroquine, significantly reduces this risk.
The researchers hoped to learn about the long-term outcomes of bone mass density (BMD) in children newly diagnosed with lupus.
The researchers hoped to learn about the prevalence of low bone mineral density (BMD), as well as to identify risk factors for its development, in a large cohort of newly diagnosed children and adolescents with lupus.
The researchers hoped to learn about the effects of lupus and/or its treatments on multiple indicators or growth and development in children.
Don’t make your lupus worse by ignoring your doctor’s instructions—take your medications as prescribed. And if there is some reason you aren’t taking them, talk to your doctor or pharmacist. Help them to help you!
The researchers hoped to learn whether treatment with belimumab could reduce the use of steroids in people with active lupus.
The researchers hoped to learn whether there are any tests that could predict low blood sugar in women with lupus taking hydroxychloroquine.
Dr. Emily Von Scheven, Director of Pediatric Rheumatology at the University of California San Francisco Medical Center, discusses the issues surrounding bone health in children with lupus and other health issues associated with treatment of lupus.
Hydroxychloroquine belongs to the family of medicines called “antimalarials” (AMs), which are also classified as disease-modifying anti-rheumatic drugs, or DMARDs. These drugs were initially used to prevent and to treat malaria but are no longer used for those purposes.
The researchers hoped to identify specific characteristics of lupus patients who develop CHD that differ from those who do not.
Steroids are frequently used to treat lupus because they are highly effective and work quickly. However, steroids have many serious side effects. How much of a risk this may pose for children with lupus or younger adults with lupus has not been well-studied.
An overview on how clinical trials work, why it is beneficial to participate, and the latest trials focused on treatments for lupus.
This teleconference will address how to work with your employer to prioritize your health issues and determine the types of accommodations you may need.
The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process.
Learn how to manage those different medications and communicate with your pharmacist.
One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!
Learn strategies to cope with lupus, connect with others living with lupus, and attend our walk kick off. (seperate registration required)
Please join us Orlando for your Walk to End Lupus Now Kick-Off Party! Come get to know us and connect with others who have been impacted by lupus.
Join us at Marlins Park as we walk to end lupus now at Florida's largest lupus walk!
Join us for our 2017 Palm Beach Walk to End Lupus Now at the Palm Beach Zoo!
Join us in Orlando to raise money for lupus research, increase awareness of lupus, and rally public support
Join us in Jacksonville to raise money for lupus research, increase awareness of lupus, and rally public support for the estimated 1.5 million Americans who suffer from its brutal impact.
We invite you to join us at Anthony's Coal Fired Pizza in Coral Gables for our Pizza with a Purpose Fundraiser! Bring along your friends and family to celebrate the upcoming Walk to End Lupus Now in Miami- Florida's largest lupus walk!
La Fundacion Americana de Lupus, Capitulo de Florida les invita a participar en la caminata mas grande de lupus de la Florida para recaudar fondos y levantar el conocimiento sobre lupus.
We invite you to join us at Chipotle for a night out for lupus! Bring along your friends and family to celebrate the upcoming Walk to End Lupus Now in Miami – Florida’s largest lupus walk!
This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.
Please join us for our Living Well with Lupus Seminar in Orlando.
Thank you Palm Beach for coming out to Walk to End Lupus Now. You have until July 5 to turn in your donations and help us reach our goal.
Thank you Orlando for coming out to Walk to End Lupus Now. You have until June 21 to turn in your donations and help us reach our goal.
Thank you Jacksonville for coming out to Walk to End Lupus Now. You have until April 13 to turn in your donations and help us reach our goal.
Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.
Thank you for Melbourne for coming out to Walk to End Lupus Now. You have until December 14 to turn in your donations and help us reach our goal.
Thank you for Miami for coming out to Walk to End Lupus Now. You have until November 30 to turn in your donations and help us reach our goal.
Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.
We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
NEW in 2015! The Walk to End Lupus Now is coming to Northern Florida in Jacksonville. Join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
What you need to know to help with issues surrounding disability.
Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus. The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to solving the cruel mystery of lupus. This year's event will highlight aiming high to live a meaningful life.
The Lupus Foundation of America, Wisconsin Chapter will host a Lupus Medical Symposium on Saturday, May 2, 2015 at Froedtert Hospital, Dean Roe Auditorium from 1:00 PM to 3:00 PM. We welcome Andreea Antonescu-Turcu, MD who will present "Sleep Disorders and Lupus". We also welcome Mary Cronin, MD who will present a general explanation "What is Lupus?". We encourage newly diagnosed patients and their supporters to this important presentation.
LFA support groups provide a warm and caring environment where people with lupus, their family members, caregivers and loved ones can share their experiences, methods of coping and insights into living with this chronic illness.