Dr. Jill Buyon discusses the latest findings and advice concerning pregnancy and lupus.
News & Stories
Dr. Rosalind Ramsey-Goldman provides an overview about lupus and management of the disease.
Dr. Nikki Mirghafori discusses how to use meditation and mindfulness as a tool for managing and coping with stress and chronic pain.
New study results show that a short questionnaire designed for adolescents to assess the impact of lupus on quality of life makes it easier for them to report their mental, physical, and social well-being.
Cindy Coney, a nationally recognized speaker and trainer, offers advice about living with lupus based on her personal experience with the disease.
The study will examine the medical impact of mindfulness interventions for lupus patients.
The sight of spring sunshine after months of dull winter skies gives many people a single-minded urge to lather on the tanning lotion and bask in the backyard for hours. But when you’re living with lupus, soaking up the sun can mean setting yourself up for a flare.
Family, friends, online communities, and peers can help combat isolation
Daylight savings time is a good reminder to prioritize your sleep habits to ensure a good night’s sleep. Now may be a good time to consider changes to your sleep habits to improve your overall health and well-being.
In this month’s “Ask the Experts”, Lupus Foundation of America National Nurse Health Educator Sarah Stothers, RN, BS, answers your questions on how to self-advocate for your health.
Strategies and accommodations can help keep you on the job after a lupus diagnosis
Read five tips to learn more about how easy it can be to start the year off right.
Fabulupus is the latest book to receive the Lupus Foundation of America seal of approval. In this excerpt, the authors discuss and offer advice on how to overcome the obstacles lupus can create in maintaining or developing friendships at any age.
Fabulupus is the latest book to receive the Lupus Foundation of America seal of approval. We spoke to the authors to find out more about their motivations for writing the book. Read more!
Ask The Experts: Sheri Abrams provides information about social security and SSI benefits for those with lupus
How service animals help those with chronic medical conditions
It is important that those with lupus receive a flu vaccine as soon as they are available. Sarah Stothers, RN, BS, provides an update for the 15-16 flu season.
After a lupus diagnosis at age 40, Joy felt as though she had lost herself but now she needed to find a way to move forward. Let Joy’s story of following her own path inspire you to follow your own.
Rowan Mulligan turned her lupus diagnosis into an opportunity to change her community and raise money and awareness for those affected by lupus. Read her story.
August 2015 - Dr. Donald Thomas answered your 15 questions about lupus diagnosis.
In honor of National Friendship Day, we’re sharing some of your advice on how friends could better support people with lupus in maintaining a social life.
Attorney by day, romance novelist by night, Chloe Barlow found her inspiration to write after struggling with the realities of chronic illness. Read her story now!
Lupus wasn’t Alex's disease at all — it was her mom’s. That all changed when she was diagnosed at 16-years-old but her dream to create films has not dampened. Read her story.
As a high school teacher and conductor, Amy has had to adapt to her disease on the days when she can’t even hold a baton and finds comfort in a strong support system.
Before lupus, Allie was fiercely independent and faced every challenge head on. She thought that would all have to change when she was diagnosed with lupus. But with the help of her mom, Allie has been able to triumph over the obstacles that come from a life with chronic illness.
How to be a successful, productive employee
Bonds that stand the test of time - and lupus
LFA-REAL aims to improve health and quality of life for people with lupus.
Chris Joyner always looked up to his sister Dawn. Their shared love of music helped Chris become a professional musician but her life with lupus inspired him to write a song about her struggles. Read more.
Be a part of the Summer 2015 issue of Lupus Now magazine - check out the topics now!
Friends, family can provide extra support this time of year
The second annual open enrollment period for Marketplace plans runs from November 15, 2014 to February 15, 2015; however, in order for coverage to begin January 1, 2015, enrollees must choose a plan by December 15, 2014. As the Health Insurance Marketplace is about to turn a year old, it is important to look back at the first year and learn how Marketplace plans are meeting the needs of people with lupus.
Ask The Experts: Dr. Betsy Blazek O'Neill discusses dealing with winter wellness with lupus.
Be a part of the Spring 2015 issue of Lupus Now magazine. The Editor is looking for people to interview - check out the topics now!
Cindy Coney talks about how living with a disease that most people can't see is a mixed blessing and dealing with the common statement, "but you don't look sick?"
Last year, while living in Puerto Rico, 14-year-old Amarissa Mauricio and her family had their lives turned upside down when she began to experience an onslaught of symptoms including fevers, skin rash, infection and joint pain so extreme she was unable to walk.
Pain management is key to getting a good night’s rest
Jewel, a young woman who enjoys living an adventurous and active lifestyle, shares her story on how she has been able to continue her active life despite lupus.
As summer draws to a close and the cooler months creep in, flu season is right around the corner. It is important to take preventative measures to protect yourself against the flu. Those with lupus are at increased risk for infections (including the flu); so, for most people, getting a flu shot should be a top priority.
Entertainer and TV personality Nick Cannon explains his philosophy about living and coping with this unpredictable and misunderstood disease.
Ask the Experts: Cindy Coney discusses dealing with holiday stress with lupus.
Farah Jasmine, author of the blog High Heels and Training Wheels, discusses some of the difficulties of taking part in some of the most typical parts of being a parent: back to school shopping and school activities.
Health advocates are part of a new profession to help patients remove barriers to the care they want and need. This emerging field helps patients by building skills and connecting them to resources so patients can participate and drive their health care experience and make the best decisions possible.
These activities can keep you and your loved ones busy
Regular Practice can ease symptoms, boost mood and energy levels
Researchers study effectiveness of the HPV vaccine in people with lupus
Actor Ian Harding from Pretty Little Liars supports his mom Mary through lupus advocacy, awareness and fundraising efforts
Any type of creative outlet—painting, sculpture, photography, acting, or dance—can be therapeutic, provided the artist is able to find a sense of healing and release in the practice. See how four people living with lupus are using art to help them cope with lupus.
Read Aiden's story about her life with lupus and how she couldn't have gone through this experience without the help from her mom.
There are many things that can be done prior to elective surgery, to increase the possibility of a safe outcome.
Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.
A new study supported by the Lupus Foundation of America and published in Arthritis and Rheumatology offers clinicians and researchers a new way to better understand how various treatments may impact the quality of life of children and adolescents living with lupus.
Lupus Foundation of America activist, Mallory Dixon, reflects on her life living with lupus and shares her incredible lupus journey over past year. Read Mallory's story and learn why she is grateful for her lupus diagnosis and how she lives each day to the fullest.
Sometimes, the best exercise might be the simplest: walking. Indeed, walking builds joint strength, and it helps shed pounds so that joints carry a lighter load. And it’s ideal for people at all fitness levels, especially beginners.
The Editor of Lupus Now magazine needs people to interview for the Summer 2014 issue. If you have activities your family does together - despite lupus, or use yoga to help you live better, we want to hear from you!
The best part about warm weather is our renewed ability to enjoy outdoor activities. However, it’s best not to jump right into a rigorous exercise program. This is a good time to ease your body into the idea of working out. Learn key tools that all people with lupus should know about exercise.
People who live with chronic diseases such as lupus often come to value health care providers who give particularly attentive and effective care. But what many don’t realize is that while you may be grateful for these medical professionals, many of them also appreciate you.
Cindy Coney, a nationally recognized speaker and former national board chair of the Lupus Foundation of America, draws from her own personal experience about how to find energy to play while living with lupus.
When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.
Newly retired P.E. teacher, Janice Wolfe-Easley, found solace in scrapbooking. Learn more about Janice’s story and how scrapbooking keeps her in high spirits.
A recent review of lupus quality of life studies found five common themes that describe the experiences of adults living with lupus. Healthcare providers can now use these themes to develop and expand patient-focused care and support services that will improve health and treatment outcomes.
Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.
Ask the Experts: Susan Gustafson, Health Insurance Specialist, Centers for Medicare & Medicaid Services discusses the Health Insurance Marketplace
Cindy Coney, immediate past chair of the Lupus Foundation of America, will be the keynote speaker at the 13th annual North Carolina Lupus Summit in Charlotte. Read more about her story.
Jessica Goldman Foung discusses helpful tips to keep healthy this holiday season during holiday feasts.
Dawn E. Isherwood, Lupus Foundation of America Health Educator, shares best practices and encouragement to quit smoking.
Dr. Hermine Brunner of the Cincinnati Children's Hospital discusses her research on health-related quality of life in children and adolescents with lupus.
R. Paola Daly, Outcomes & Health Senior Manager, Lupus Foundation of America, shares her experience from the annual American College of Rheumatology meeting in San Diego and great tools she learned about on living well with lupus.
Most teenagers today lead incredibly busy lives—their days packed with schoolwork, extracurricular activities, jobs, sports, family, and friends. But adding a chronic illness like lupus can threaten that balance. Three teens tell their story.
The Health Insurance Marketplace offers coverage to many Americans who currently do not have health insurance. We have gathered relevant links to help you locate the information you need to know.
Jody Gehrmann shares her experience of living with lupus and staying physically active and the journey she and her husband are taking to climb Mount Kilimanjaro.
We each have the right to express ourselves. But when communication causes confusion, misunderstanding, and frustration, it’s not communication. In this article, psychologists Paul J. Donoghue, Ph.D., and Mary E. Siegel, Ph.D., examine how we speak, how we listen, and how we can be more effective at both.
Five men share their stories about living with lupus, and finding support in groups specifically for men.
Summer is the season of fun and relaxation, a perfect time to pick up a new hobby. Here are five popular and inexpensive pastimes for people of all activity levels, and easy ways to get started.
A study published in a recent issue of the journal Lupus reports that people with lupus had a 70 percent increased risk of developing shingles compared to participants without inflammatory disease.
Research shows that owning a pet can be good for your health.
A number of Affordable Care Act provisions are helpful to people with lupus. These include banning insurance companies from denying coverage for pre-existing conditions; allowing young people up to age 26 to receive health insurance through a parent’s plan; and eliminating insurance coverage caps.
The cold and flu season is upon us again, and this year it has gotten off to "about the earliest start in the last decade," according to the Centers for Disease Control and Prevention. Dawn Isherwood, Health Educator for the Lupus Foundation of America, writes about a few ways to avoid the cold and flu this season.
Studies Focus on Advancing Research and Improving Quality of Life for People With Lupus.
It’s no secret that infections pose a greater risk for people living with lupus. In fact, infections are the second most common major cause of illness and death for people with the disease. It is important to make your health a priority, and take steps to protect yourself.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
People with strong social relationships have fewer health problems, are happier, and have increased longevity, researchers found.
In addition to medications and other medical care from doctors, a large and growing number of people turn to other healing practices to try to improve their health.
The findings of this study indicate that adolescent girls with lupus scored significantly lower on measures of positive body image and felt increases in negative mood, negative self-esteem, and depressive symptoms.
The researchers hoped to determine whether children with lupus have worse academic functioning relative to their peers of similar demographic and socioeconomic background.
Professional Soccer Player and Olympic Gold Medalist Shannon Boxx Scores New Goal As Lupus Awareness
The Lupus Foundation of America’s Summer Issue of Lupus Now® Magazine highlights Shannon Boxx' journey as a professional soccer player living with lupus.
The researchers hoped to learn about possible differences in treatment preferences for lupus among members of different racial/ethnic patient groups, as well as demographic or clinical characteristics associated with such preferences.
Playing and being silly can have deeper meanings and, sometimes, a profound impact on people with lupus.
Meditation, Fellowship, Prayer: There Are Many Paths to a Spiritual Center
Joining in the federal government’s ongoing skin safety campaign, the Food and Drug Administration released new rules that all sunscreen manufacturers must abide by starting in December 2012 for larger companies that make sunscreen, and in December 2013 for smaller companies.
If you’re living with lupus, it takes something extra to succeed at work while managing your symptoms. Read on to find out how Olympic gold medalist Shannon Boxx and others with lupus learned to thrive in their careers.
Dr. Karen Costenbader of the Brigham and Women's Hospital in Boston provides information about ways people living with lupus can better cope with the disease.
A more detailed understanding of the reproductive behavior of women with lupus can help identify their needs in terms of caring for their disease and become educated about its possible effects, including those on reproduction.
Having lupus is known to negatively affect specific aspects of work life. In general, the following are associated with work loss among people with lupus: lower levels of education, minority race/ethnicity, advanced age, longer disease duration, higher disease activity, and cognitive involvement.
The results of this study indicate that having lupus is significantly disruptive in a number of aspects of family life, including family activity participation, role functioning, and mental health, as well as social support and intimacy.
Spring Issue of Lupus Now® Magazine highlights how Maurissa Tancharoen Whedon found support through her all-star network of friends and family.
Thinning hair is common among people living with lupus. So is the whirlwind of emotions that comes with hair loss. Whether the result of lupus or a side effect of medications, hair loss can be a big shock, particularly when hair does not grow back.
Music can be therapeutic for many problems the body encounters, including symptoms of stress, pain, and fatigue that many who live with lupus experience on a regular basis.
Join us at Marlins Park for 2016 Walk to End Lupus Now! Come and spend your afternoon at the ballpark while helping us raise awareness!
The Living Well With Lupus Symposium provides information and strategies to help you live well with lupus.
Lupus Medical Symposium, "Finding the U in LUPUS: Simple Strategies for Living with Lupus without Losing Yourself" presented by Hilary Pick, LPC and addressing eye concerns with "The Aging Eye" presented by Bhavna Sheth, MD, MBA
This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.
Don't miss this opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home!
Please join us for our Living Well with Lupus Seminar in Orlando.
View upcoming support groups, educational programs, fundraising events, and more.
Thank you Palm Beach for coming out to Walk to End Lupus Now. You have until July 5 to turn in your donations and help us reach our goal.
Thank you Orlando for coming out to Walk to End Lupus Now. You have until June 21 to turn in your donations and help us reach our goal.
Thank you Jacksonville for coming out to Walk to End Lupus Now. You have until April 13 to turn in your donations and help us reach our goal.
Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.
Thank you for Melbourne for coming out to Walk to End Lupus Now. You have until December 14 to turn in your donations and help us reach our goal.
Thank you for Miami for coming out to Walk to End Lupus Now. You have until November 30 to turn in your donations and help us reach our goal.
Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.
We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
NEW in 2015! The Walk to End Lupus Now is coming to Northern Florida in Jacksonville. Join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
What you need to know to help with issues surrounding disability.
Join us for the SLE Self Help Leader Training - a two day training course designed to prepare people to teach others with lupus how to take a more active part in their health care and live better despite lupus.
Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.
Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus. The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to solving the cruel mystery of lupus.
Lupus: Learning and Living™ is a free educational program for individuals with lupus, their families, and friends. Get the latest information on living and coping with lupus from world-renowned experts.
Help us solve the cruel mystery!
Still unsure of your knowledge of lupus? Dr. Alfred Kim, and Dr. Anne E. Winkler provide a basic understanding of lupus in this Lupus 101 Workshop
Join us to learn how to determine the difference and recognize and properly treat symptoms.
Join us for this teleconference and explore ways to improve interpersonal relationships and build lasting bonds.
Live Well with Lupus Beginners Yoga in Saint Louis
Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus. The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to solving the cruel mystery of lupus. This year's event will highlight aiming high to live a meaningful life.
Register Today for the Annual Lupus Education Conference in St. Louis
Learn how to reduce stress to help cope with lupus and improve your overall well-being.
Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Learn about the various emotions, including depression, that are a normal part of having a chronic illness such as lupus.
This seminars will provide information on two different topics: Health-Related Exercise for People with Lupus and Lupus and Overlapping Disease.
This seminar will provide information on 2 different topics: Lupus and the Musculoskeletal System and Complementary and Alternative Medicine.
This seminar will provide information on 2 different topics: Lupus and the Heart and Lupus and Exercise.
This educational seminar will provide information on 2 different topics: Lupus and Nutrition and Lupus and the Kidneys.
Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus. The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to clueing in on the mystery of lupus.
An educational symposium brought to you by the Lupus Foundation of America, Inc.
Space is limited, so reserve your tickets today! Payment can be sent to Lupus Blacklight Zumba, 208 N Pinecrest, Wichita, KS 67208. For more information please call us!
This eight-city series of educational seminars will provide individuals affected by lupus with methods for not only living, but also thriving. The seminars will provide information on two different topics and participants will learn from both subject matter experts and a panel of individuals living with lupus. Feel empowered to take charge of your health!
Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.
Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.
Participants will learn ways to manage severe and chronic pain including medications, therapies, and coping strategies.
Participants will learn ways to manage severe and chronic pain including medications, therapies, and coping strategies.
Learn how to help manage severe and chronic pain associated with lupus including practical tips and precautions, prevention, and coping strategies.
Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!
Lupus: Ask the Experts is a series of live educational teleconferences designed to provide you with important information about living with lupus.