Cindy Coney, a nationally recognized speaker and former national board chair of the Lupus Foundation of America, draws from her own personal experience about how to find energy to play while living with lupus.
News & Stories
When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.
Newly retired P.E. teacher, Janice Wolfe-Easley, found solace in scrapbooking. Learn more about Janice’s story and how scrapbooking keeps her in high spirits.
A recent review of lupus quality of life studies found five common themes that describe the experiences of adults living with lupus. Healthcare providers can now use these themes to develop and expand patient-focused care and support services that will improve health and treatment outcomes.
Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.
Ask the Experts: Susan Gustafson, Health Insurance Specialist, Centers for Medicare & Medicaid Services discusses the Health Insurance Marketplace
Cindy Coney, immediate past chair of the Lupus Foundation of America, will be the keynote speaker at the 13th annual North Carolina Lupus Summit in Charlotte. Read more about her story.
Jessica Goldman Foung discusses helpful tips to keep healthy this holiday season during holiday feasts.
Dawn E. Isherwood, Lupus Foundation of America Health Educator, shares best practices and encouragement to quit smoking.
Dr. Hermine Brunner of the Cincinnati Children's Hospital discusses her research on health-related quality of life in children and adolescents with lupus.
R. Paola Daly, Outcomes & Health Senior Manager, Lupus Foundation of America, shares her experience from the annual American College of Rheumatology meeting in San Diego and great tools she learned about on living well with lupus.
The Health Insurance Marketplace offers coverage to many Americans who currently do not have health insurance. We have gathered relevant links to help you locate the information you need to know.
Jody Gehrmann shares her experience of living with lupus and staying physically active and the journey she and her husband are taking to climb Mount Kilimanjaro.
A study published in a recent issue of the journal Lupus reports that people with lupus had a 70 percent increased risk of developing shingles compared to participants without inflammatory disease.
Research shows that owning a pet can be good for your health.
A number of Affordable Care Act provisions are helpful to people with lupus. These include banning insurance companies from denying coverage for pre-existing conditions; allowing young people up to age 26 to receive health insurance through a parent’s plan; and eliminating insurance coverage caps.
The cold and flu season is upon us again, and this year it has gotten off to "about the earliest start in the last decade," according to the Centers for Disease Control and Prevention. Dawn Isherwood, Health Educator for the Lupus Foundation of America, writes about a few ways to avoid the cold and flu this season.
Studies Focus on Advancing Research and Improving Quality of Life for People With Lupus.
It’s no secret that infections pose a greater risk for people living with lupus. In fact, infections are the second most common major cause of illness and death for people with the disease. It is important to make your health a priority, and take steps to protect yourself.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
People with strong social relationships have fewer health problems, are happier, and have increased longevity, researchers found.
In addition to medications and other medical care from doctors, a large and growing number of people turn to other healing practices to try to improve their health.
The findings of this study indicate that adolescent girls with lupus scored significantly lower on measures of positive body image and felt increases in negative mood, negative self-esteem, and depressive symptoms.
The researchers hoped to determine whether children with lupus have worse academic functioning relative to their peers of similar demographic and socioeconomic background.
Professional Soccer Player and Olympic Gold Medalist Shannon Boxx Scores New Goal As Lupus Awareness
The Lupus Foundation of America’s Summer Issue of Lupus Now® Magazine highlights Shannon Boxx' journey as a professional soccer player living with lupus.
The researchers hoped to learn about possible differences in treatment preferences for lupus among members of different racial/ethnic patient groups, as well as demographic or clinical characteristics associated with such preferences.
While most research is on children, there is evidence that play is as important for healthy adults and those with chronic illnesses as it is for children
Meditation, Fellowship, Prayer: There Are Many Paths to a Spiritual Center
Joining in the federal government’s ongoing skin safety campaign, the Food and Drug Administration released new rules that all sunscreen manufacturers must abide by starting in December 2012 for larger companies that make sunscreen, and in December 2013 for smaller companies.
If you’re living with lupus, it takes something extra to succeed at work while managing your symptoms. Read on to find out how Olympic gold medalist Shannon Boxx and others with lupus learned to thrive in their careers.
Dr. Karen Costenbader of the Brigham and Women's Hospital in Boston provides information about ways people living with lupus can better cope with the disease.
A more detailed understanding of the reproductive behavior of women with lupus can help identify their needs in terms of caring for their disease and become educated about its possible effects, including those on reproduction.
Having lupus is known to negatively affect specific aspects of work life. In general, the following are associated with work loss among people with lupus: lower levels of education, minority race/ethnicity, advanced age, longer disease duration, higher disease activity, and cognitive involvement.
The results of this study indicate that having lupus is significantly disruptive in a number of aspects of family life, including family activity participation, role functioning, and mental health, as well as social support and intimacy.
Spring Issue of Lupus Now® Magazine highlights how Maurissa Tancharoen Whedon found support through her all-star network of friends and family.
Thinning hair is common among people living with lupus. So is the whirlwind of emotions that comes with hair loss. Whether the result of lupus or a side effect of medications, hair loss can be a big shock, particularly when hair does not grow back.
Music can be therapeutic for many problems the body encounters, including symptoms of stress, pain, and fatigue that many who live with lupus experience on a regular basis.
LFA Funded Studies Focused on Advancing Research and Improving Quality of Life for People with Lupus
Investigators Present Research Findings at 2011 American College of Rheumatology Scientific Meeting.
Dr. Meenakshi Jolly, of Rush University Medical Center in Chicago, discusses the results of a study to validate an instrument to measure disease activity and quality of life.
Though your body may be layered under sweatshirts and coats, staying active and healthy is important in the winter months.
Many experience changing dynamics in their relationship when a loved one is handed a lupus diagnosis.
Preplanning Can Ensure a Smoother Transition to Your New Home
The researchers hoped to learn the prevalence of self-reported photosensitivity among people with lupus, as well as its effects on quality of life.
The researchers hoped to learn about lupus-related factors, especially heart disease, that may contribute to the development of depression in people with lupus.
What do blueberries, strawberries, and acai berries have in common? The natural compounds called polyphenolics found in these red and blue fruits—and possibly in walnuts—activate the brain’s natural “housekeeper” mechanism, which cleans up and recycles toxic proteins linked to age-related memory loss and other mental decline. In other words, yummy berries may boost your memory as you grow older.
Dario Dieguez, PhD, from the Lupus Foundation of America joined leading NIH lupus experts to explore current issues in lupus, including risk factors and treatment therapies.
Several celebrities and a crowd of 600 people celebrated a new era of lupus at Lupus Foundation of America's National Butterfly Gala in Washington, D.C.
Lupus Foundation of America is launching a website, Lupus Voices Across America™, that will allow people with lupus and their supporters to share their stories.
The Peer Reviewed Medical Research Program 2011 vision is to improve the health and well-being of all military service members, veterans, and beneficiaries.
LFA to honor Roch Doliveux, Chief Executive Officer, UCB; U.S. Senator Thad Cochran (MS); and Francis S. Collins, M.D., Ph.D., Director, National Institutes of Health.
The researchers hoped to learn whether contraceptive counseling had effects on the frequency of use of contraceptives.
March is Save Your Vision Month, and the American Optometric Association (AOA) encourages Americans to prevent workplace eyestrain by following some easy and important steps.
As a member of the design team on the popular series Extreme Makeover: Home Edition, Eduardo Xol helps improve the lives of a family in need every week for ABC TV. Off camera, Xol is helping his sister cope with lupus.
For individuals with lupus, bone health may be a concern as medications can lead to bone loss. However, low bone mass density is often treatable.
While you can’t stop seeing your numerous physicians, you can find ways to lower your health care costs.
The researchers tested the LupusQoL-US instrument to see how well it could pick up different active clinical features of lupus from the point of view of the patient’s experience.
Program Provides Individuals the Opportunity to Learn from Leading Lupus Experts.
Lupus is an unpredictable and life-changing disease. Putting yourself in charge of your own health, relationships and life is just one way fight back against lupus.
Many people with lupus ask, “Is there anything I can do to improve my health?” If you’re a smoker, the answer is yes: Stop smoking! More than any other lifestyle choice you can make, that will have the greatest positive impact on your lupus and overall health.
As you prepare for the holiday season and the cold winter months, be sure to consider what small steps you can take to try to prevent catching a cold or the flu.
Dr. Meenakshi Jolly of the Rush University Medical Center shares observations from studies conducted to learn how to improve the quality of life for people with lupus.
Dr. Lakshmi Nandini Moorthy, chief of pediatric rheumatology at the Robert Wood Johnson Medical School in New Brunswick, discusses a tool to measure the health related quality of life (HRQOL) among children with lupus.
The researchers hoped to accurately determine the frequency and outcome of neuropsychiatric lupus, as well as its impacts on quality of life.
The researchers hoped to learn whether a lupus damage questionnaire, filled out by lupus patients instead of their doctors, would be accurate and/or useful.
Until the 1950s, most people thought of sleep as a passive, dormant part of daily life. We now know sleep affects our daily functioning and our physical and mental health in many ways we are just beginning to understand.
How to Stay Upbeat When Dealing with Lupus
Dealing with conflict takes energy, and when you’re living with lupus, energy can be in short supply. If you’ve tried your best to resolve a problem, but it still remains, consider using these 10 ways to regain control.
Puberty, birth control, bone health, and menopause are just some of the things women living with lupus need to be concerned with, and whether you’re 15, 25, or 60, there’s plenty for you to know.
Dr. David Wofsy of the University of California, San Francisco, leads a discussion and takes questions about being newly diagnosed and living with lupus.
The researchers hoped to learn whether cognitive behavioral thearpy could help people with lupus cope with stress, anxiety, and depression, all of which may co-occur with a chronic illness.
Learning how to manage your time effectively, and how to say “no,” is a difficult but necessary part of managing lupus.
Join us for the only lupus educational series in Florida. These comprehensive events will cover a variety of topics and the latest lupus advancements to help you put the pieces together while empowering you to become an informed patient and advocate.
Lupus: Ask the Experts is a series of live educational teleconferences on a variety of topics designed to provide you with important information about living with lupus. Don't miss this opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home!
Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.
Don't miss this opportunity to learn about lupus from Dr. Cynthia Elliott.
Newly Diagnosed? Want to learn more? Come learn about lupus, its symptoms, treatments, and coping techniques.
This eight-city series of educational seminars will provide individuals affected by lupus with methods for not only living, but also thriving. The seminars will provide information on two different topics and participants will learn from both subject matter experts and a panel of individuals living with lupus. Feel empowered to take charge of your health!
The Heartland Chapter’s Summer Jam Youth Retreat is the only LFA-sponsored camp in the country for young women with lupus.
The Right Moves for Lupus is an introductory gentle exercise program designed for lupus patients.
Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.
Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.
The Mid-South Chapter is presenting its first "Living with Lupus" seminar in Huntsville, AL on Saturday, March 15, 2014. Dr. Winn Chatham will be presenting the topic, "Current & Promising New Approaches to Treating Lupus".
The walk is a one mile or 3k loop around Veteran's Park in Hoover park. Registration begins at 8AM, and the walk kicks off at 10AM. Register today!
Join us for The Purple Ball, an elegant evening featuring a cocktail reception, an exciting live and silent auction, and a gourmet dinner. The evening will conclude with the Lupus Leadership Awards
Be part of the Lupus Foundation of America’s Walk to End Lupus Now™ event — America’s largest lupus walk Register Start a Team Donate
Our Annual Lupus Symposium in Augusta has moved to March 22, 2014!
La Fundación de lupus de América, Capítulo de Illinois te invita a vivir bien con lupus.
Participants will learn ways to manage severe and chronic pain including medications, therapies, and coping strategies.
Participants will learn ways to manage severe and chronic pain including medications, therapies, and coping strategies.
Learn how to help manage severe and chronic pain associated with lupus including practical tips and precautions, prevention, and coping strategies.
Stop by and visit the LFA, PNW table at the event.
Learn more about living with lupus at the Life + Lupus... an Educational Symposium.
Questions about coping with Lupus? Sign up today!
Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!