In her blog, Sara Chang, Senior Manager of Advocacy and Government Relations writes about the importance of participating in surveys.
News & Stories
There are many things that can be done prior to elective surgery, to increase the possibility of a safe outcome.
People who live with chronic diseases such as lupus often come to value health care providers who give particularly attentive and effective care. But what many don’t realize is that while you may be grateful for these medical professionals, many of them also appreciate you.
Candice Erickson and her family now qualify for a better health insurance policy through the Health Insurance Marketplace. Learn how Candice Erickson and her family are benefiting from the Affordable Care Act.
Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.
Kim Cantor, Lupus Foundation of America’s Senior Director of Public Policy and Government Relations, discusses the Foundation’s Medicare for Patients RX (MAPRx) Coalition
Dr. Miriam Kaufman discusses a smartphone app that helps adolescents make the transition from pediatric to adult lupus care.
Having affordable, comprehensive health insurance coverage is critical and necessary to help manage lupus. Yet, many do not have the coverage they need. Learn more.
After more than a half-century of drought, many new treatments are in development for lupus. However, approval of a new treatment does not ensure that all people with lupus will be able to try it.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
A single test that can help diagnose a complex disease like lupus by ruling out other potential diseases could help physicians reach a definitive diagnosis in a shorter period of time. The AVISE™ SLE test has been shown to do just that.
People with Lupus Retain Protections Under the Health Care Reform Law.
The Rhuematologist features "The Lupus Initiative," a national health care provider education initiative to improve lupus diagnosis, treatment, and management among minorities.
No matter what your health condition, it makes sense that your doctors talk to each other. It’s called “coordinated care”—the idea that all the health care providers involved in your care should share information promptly about your condition, treatments, and medical needs.
National lupus organizations, and individuals with lupus and their families around the world, are rallying to protect access to new treatments of lupus.
Health Canada and European Regulators have approved BENLYSTA™.
Don’t make your lupus worse by ignoring your doctor’s instructions—take your medications as prescribed. And if there is some reason you aren’t taking them, talk to your doctor or pharmacist. Help them to help you!
The European Medicines Agency’s Committee for Medicinal Products for Human Use has issued a positive opinion, recommending marketing authorisation for BENLYSTA®.
As people with lupus know all too well, mysterious symptoms that appear and disappear are hallmarks of the disease. But when you’re seeing a doctor who isn’t familiar with lupus, all of these issues can sound like a long list of complaints that just don’t make sense.
You know the importance of following your doctor’s guidelines about medication, exercise, and rest; reducing stress; and eating a healthy diet. But if you’re like many people with lupus, at one time or another you’ve come across a dietary or herbal supplement that really sounds as though it could help you. So, what do you do?
The researchers hoped to learn whether a lupus damage questionnaire, filled out by lupus patients instead of their doctors, would be accurate and/or useful.
Learn how to reduce and cope with stress.
What you need to know to help with issues surrounding disability.
Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.
View upcoming support groups, educational programs, fundraising events, and more.
Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.
Come out for our Life & Lupus Educational Symposium, featuring medical and alternative health professionals.
Meeting Agenda: Opening Remarks, Educational Seminar, Board Elections, Cathy Lee Iczkowski Service Award, Butterfly of Hope Recognition Awards, Walk Award Presentations, Volunteer Recognition Awards, Closing Remarks.
Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.
Register today for this empowering day! Let's take lupus from a whisper to a shout!
Stop by and visit the LFA, PNW table at the event.
Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!