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News & Stories

Blog | Apr. 15, 2014

How to Prepare for Surgery When you Have Lupus

There are many things that can be done prior to elective surgery, to increase the possibility of a safe outcome.

Blog | Jan. 22, 2014

Sharing a Marketplace Experience

Candice Erickson and her family now qualify for a better health insurance policy through the Health Insurance Marketplace. Learn how Candice Erickson and her family are benefiting from the Affordable Care Act.

Blog | Jan. 07, 2014

We Just Enrolled in Obamacare

Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.

Blog | Dec. 04, 2013

Access to Prescription Drugs is a Must

Kim Cantor, Lupus Foundation of America’s Senior Director of Public Policy and Government Relations, discusses the Foundation’s Medicare for Patients RX (MAPRx) Coalition

Podcasts | Nov. 12, 2013

App Assists Transition from Pediatric to Adult Lupus Care

Dr. Miriam Kaufman discusses a smartphone app that helps adolescents make the transition from pediatric to adult lupus care.

Blog | Oct. 22, 2013

Getting the Most from Your Doctor’s Appointment

Blog | Sep. 30, 2013

New Health Insurance Marketplace

Having affordable, comprehensive health insurance coverage is critical and necessary to help manage lupus. Yet, many do not have the coverage they need. Learn more.

Magazine | Mar. 01, 2013

Access to Care: What is Being Done, and for Whom?

After more than a half-century of drought, many new treatments are in development for lupus. However, approval of a new treatment does not ensure that all people with lupus will be able to try it.

Magazine | Nov. 01, 2012

Growing Up: Teens, young adults must learn to manage lupus on their own

For many young people with lupus, the transition to caring for themselves as adults is challenging.

Magazine | Nov. 01, 2012

AVISE™ SLE: Improving Diagnosis, Improving Care

A single test that can help diagnose a complex disease like lupus by ruling out other potential diseases could help physicians reach a definitive diagnosis in a shorter period of time. The AVISE™ SLE test has been shown to do just that.

General News | Jun. 28, 2012

The LFA Salutes the Supreme Court’s Decision to Uphold the Affordable Care Act

People with Lupus Retain Protections Under the Health Care Reform Law.

General News | Nov. 03, 2011

“Strike While the Iron is Hot” How the Lupus Initiative is Advancing Rheumatology

The Rhuematologist features "The Lupus Initiative," a national health care provider education initiative to improve lupus diagnosis, treatment, and management among minorities.

Magazine | Nov. 01, 2011

Connect the Dots: How to Foster Coordinated Health Care

No matter what your health condition, it makes sense that your doctors talk to each other. It’s called “coordinated care”—the idea that all the health care providers involved in your care should share information promptly about your condition, treatments, and medical needs.

General News | Oct. 31, 2011

Lupus Organizations Around the Globe Urge NICE to Provide Coverage for Benlysta®

National lupus organizations, and individuals with lupus and their families around the world, are rallying to protect access to new treatments of lupus.

General News | Jul. 13, 2011

Health Canada and European Medicines Agency Approves BENLYSTA™

Health Canada and European Regulators have approved BENLYSTA™.

Magazine | Jul. 01, 2011

You and Your Doctor: Why Do Medications Seem to Stop Working?

Don’t make your lupus worse by ignoring your doctor’s instructions—take your medications as prescribed. And if there is some reason you aren’t taking them, talk to your doctor or pharmacist. Help them to help you!

General News | May. 20, 2011

European Review Board Issues Positive Opinion for Benlysta®

The European Medicines Agency’s Committee for Medicinal Products for Human Use has issued a positive opinion, recommending marketing authorisation for BENLYSTA®.

Magazine | Mar. 01, 2011

You and Your Doctor: It’s Not “All in Your Mind”

As people with lupus know all too well, mysterious symptoms that appear and disappear are hallmarks of the disease. But when you’re seeing a doctor who isn’t familiar with lupus, all of these issues can sound like a long list of complaints that just don’t make sense.

Magazine | Nov. 01, 2010

You and Your Doctor: Supplements

You know the importance of following your doctor’s guidelines about medication, exercise, and rest; reducing stress; and eating a healthy diet. But if you’re like many people with lupus, at one time or another you’ve come across a dietary or herbal supplement that really sounds as though it could help you. So, what do you do?

Research News | Aug. 18, 2010

A Self-Assessed Lupus Organ Damage Instrument

The researchers hoped to learn whether a lupus damage questionnaire, filled out by lupus patients instead of their doctors, would be accurate and/or useful.


Events

Dec. 06, 2014 10:00 am | Broward College (North Campus)

Redefining Lupus : Putting the Pieces Together (South Florida- Broward)

Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.

May. 01, 2014 7:00 pm | Teleconferences

Ask the Experts: Living with Lupus :An Insider’s Perspective

Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.

Jan. 01, 2014 9:00 am—Jan. 01, 2018 5:00 pm

Philadelphia Tri-State Program Calendar

View upcoming support groups, educational programs, fundraising events, and more.

Oct. 05, 2013 9:30 am

7th Annual Georgia Lupus Summit

Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.

Jun. 28, 2014 9:00 am | Meeting will take place at Overlook Hospital, Summit, New Jersey

Annual Business Meeting

Meeting Agenda: Opening Remarks, Educational Seminar, Board Elections, Cathy Lee Iczkowski Service Award, Butterfly of Hope Recognition Awards, Walk Award Presentations, Volunteer Recognition Awards, Closing Remarks.

May. 31, 2014 10:00 am | Washington, DC

Understanding Advocacy- How You Can Help!

Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.

Feb. 18, 2014 8:30 am

Lupus Awareness Day at the Georgia State Capitol

Register today for this empowering day! Let's take lupus from a whisper to a shout!

Sep. 07, 2013 8:01 am | STAR Center Metro Parks

9th Annual Women of Color Health Awareness Conference

Stop by and visit the LFA, PNW table at the event.

Aug. 21, 2013 6:00 pm | Broadlawns Medical Center

Support Group

May. 07, 2014 6:30 pm | Salt Lake City*

Social Butterflies

Our Social Butterfly group is a non-mediated, casual gathering where lupies and/or their loved ones can gather to talk, get to know one another, share stories, and make friends. Sometimes it helps to share your experiences with people who really "get it"! *Groups also meet in American Fork, and St. George. Follow Link for more information.

Sep. 28, 2013 9:00 am | Jordan Creek Town Center lake area, West Des Moines, IA

Walk to End Lupus Now

Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!