When April Golston of Santa Cruz, California, was preparing to send her son off to college, she never dreamed that arranging health insurance coverage or finding a new health care team would be such frustrating obstacles.
News & Stories
Stay physically and financially healthy by checking out these simplified steps for making the most of your coverage.
The year-long initiative to make research on lupus treatments more inclusive and effective formally began on July 1.
Participating in research can be a rewarding experience, and is essential to improve the quality of life of people with lupus.
Ask The Experts: Sarah Stothers, National Nurse Health Educator provides information about self-advocacy in lupus.
The second annual open enrollment period for Marketplace plans runs from November 15, 2014 to February 15, 2015; however, in order for coverage to begin January 1, 2015, enrollees must choose a plan by December 15, 2014. As the Health Insurance Marketplace is about to turn a year old, it is important to look back at the first year and learn how Marketplace plans are meeting the needs of people with lupus.
In her blog, Sara Chang, Senior Manager of Advocacy and Government Relations writes about the importance of participating in surveys.
There are many things that can be done prior to elective surgery, to increase the possibility of a safe outcome.
People who live with chronic diseases such as lupus often come to value health care providers who give particularly attentive and effective care. But what many don’t realize is that while you may be grateful for these medical professionals, many of them also appreciate you.
Candice Erickson and her family now qualify for a better health insurance policy through the Health Insurance Marketplace. Learn how Candice Erickson and her family are benefiting from the Affordable Care Act.
Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.
Kim Cantor, Lupus Foundation of America’s Senior Director of Public Policy and Government Relations, discusses the Foundation’s Medicare for Patients RX (MAPRx) Coalition
Dr. Miriam Kaufman discusses a smartphone app that helps adolescents make the transition from pediatric to adult lupus care.
Having affordable, comprehensive health insurance coverage is critical and necessary to help manage lupus. Yet, many do not have the coverage they need. Learn more.
After more than a half-century of drought, many new treatments are in development for lupus. However, approval of a new treatment does not ensure that all people with lupus will be able to try it.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
A single test that can help diagnose a complex disease like lupus by ruling out other potential diseases could help physicians reach a definitive diagnosis in a shorter period of time. The AVISE™ SLE test has been shown to do just that.
People with Lupus Retain Protections Under the Health Care Reform Law.
The Rhuematologist features "The Lupus Initiative," a national health care provider education initiative to improve lupus diagnosis, treatment, and management among minorities.
No matter what your health condition, it makes sense that your doctors talk to each other. It’s called “coordinated care”—the idea that all the health care providers involved in your care should share information promptly about your condition, treatments, and medical needs.
National lupus organizations, and individuals with lupus and their families around the world, are rallying to protect access to new treatments of lupus.
Health Canada and European Regulators have approved BENLYSTA™.
Don’t make your lupus worse by ignoring your doctor’s instructions—take your medications as prescribed. And if there is some reason you aren’t taking them, talk to your doctor or pharmacist. Help them to help you!
The European Medicines Agency’s Committee for Medicinal Products for Human Use has issued a positive opinion, recommending marketing authorisation for BENLYSTA®.
As people with lupus know all too well, mysterious symptoms that appear and disappear are hallmarks of the disease. But when you’re seeing a doctor who isn’t familiar with lupus, all of these issues can sound like a long list of complaints that just don’t make sense.
You know the importance of following your doctor’s guidelines about medication, exercise, and rest; reducing stress; and eating a healthy diet. But if you’re like many people with lupus, at one time or another you’ve come across a dietary or herbal supplement that really sounds as though it could help you. So, what do you do?
The researchers hoped to learn whether a lupus damage questionnaire, filled out by lupus patients instead of their doctors, would be accurate and/or useful.
Please join us for our inaugural Lupus Awareness Night with the Miami Dolphins. Come and spend the afternoon with us as we watch the Miami Dolphins play against the San Francisco 49ers while raising awareness!
We invite you to join us at Anthony's Coal Fired Pizza in Coral Gables for our Pizza with a Purpose Fundraiser! Bring along your friends and family to celebrate the upcoming Walk to End Lupus Now in Miami- Florida's largest lupus walk!
La Fundacion Americana de Lupus, Capitulo de Florida les invita a participar en la caminata mas grande de lupus de la Florida para recaudar fondos y levantar el conocimiento sobre lupus.
Join us to learn how to optimize your health with evidence based tools.
We invite you to join us at Chipotle for a night out for lupus! Bring along your friends and family to celebrate the upcoming Walk to End Lupus Now in Miami – Florida’s largest lupus walk!
Join us at Marlins Park for 2016 Walk to End Lupus Now! Come and spend your afternoon at the ballpark while helping us raise awareness!
This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.
Please join us for our Living Well with Lupus Seminar in Orlando.
View upcoming support groups, educational programs, fundraising events, and more.
Thank you Palm Beach for coming out to Walk to End Lupus Now. You have until July 5 to turn in your donations and help us reach our goal.
Thank you Orlando for coming out to Walk to End Lupus Now. You have until June 21 to turn in your donations and help us reach our goal.
Thank you Jacksonville for coming out to Walk to End Lupus Now. You have until April 13 to turn in your donations and help us reach our goal.
Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.
Thank you for Melbourne for coming out to Walk to End Lupus Now. You have until December 14 to turn in your donations and help us reach our goal.
Thank you for Miami for coming out to Walk to End Lupus Now. You have until November 30 to turn in your donations and help us reach our goal.
What you need to know to help with issues surrounding disability.
Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.
Help us solve the cruel mystery!
Join us to hear about lupus and primary care.
Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.
New Date, Same Mission! Click here for details
Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!