Get Answers

How can I keep my child’s school up to date on how lupus is affecting them?

Is lupus nephritis in children treated differently than in adults?

Do children have neuropsychiatric lupus symptoms?

Can children develop lupus nephritis?

What are some helpful hints when caring for my child with lupus?

Should I explain my child’s lupus to teachers and extracurricular activities leaders?

How do friends and family cope with a diagnosis of lupus in a child?

Is there a specific diet for children with lupus?

Is lupus the same in children and adults?

How is lupus diagnosed in children?

How do I help my child with lupus successfully transition to adulthood?

How do I transition into my role as a caregiver?

As a caregiver, how do I handle the unpredictability of lupus?

How do I deal with feelings of anger or frustration?

Why is having a support system important?

How do I explain my child’s lupus to others?

Which organizations offer support and resources to caregivers?

How can a caregiver be prepared for an emergency?

How do I explain lupus to my child?

How can I manage being a caregiver from a distance?

How do I care for my loved one who has lupus while caring for myself?

What are 504 Plans and IEPs?

How can I learn to accept my lupus?

What kinds of doctors treat lupus?

Can I treat lupus with complementary and alternative medicines?


News & Stories

General News | Sep. 16, 2014

“UNVEIL” Survey Reveals a Life Interrupted by Lupus

Results show how disease takes a toll on life for people with lupus and lupus caregivers

Blog | Aug. 18, 2014

Five Lessons Health Advocates Can Teach Us

Health advocates are part of a new profession to help patients remove barriers to the care they want and need. This emerging field helps patients by building skills and connecting them to resources so patients can participate and drive their health care experience and make the best decisions possible.

Blog | Apr. 15, 2014

Making a Positive Impact with Mom by My Side

Read Aiden's story about her life with lupus and how she couldn't have gone through this experience without the help from her mom.

Blog | Apr. 15, 2014

Caregivers, You Are Not Alone

Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.

Blog | Feb. 18, 2014

Painting a Picture of Lupus—Why you are the Artist That Matters Most

A bird’s eye view of lupus research from the Lupus Foundation of America’s Education and Research Department

Magazine | Feb. 05, 2014

Parental Support - Finding guidance for Mom and Dad

When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.

Blog | Feb. 04, 2014

The Kassel Family Steps Up and Makes a Big Difference

In 2011, Bonnie and Todd Kassel learned their 12-year-old daughter Taylor was diagnosed with lupus nephritis. Their angst transformed into lupus awareness, advocacy and action. Read more.

Research News | Dec. 05, 2013

Cancer Risk May Be Higher Among Young Patients with Lupus

Children with lupus may have a higher risk for developing cancer – especially blood cancers such as non-Hodgkin’s lymphoma and leukemia – compared to children without lupus.

Podcasts | Sep. 01, 2013

Caregiving and Lupus

Ask the Expert: Mr. Paul DelPonte from National Alliance for Caregiving discusses the caregiving and lupus.

Magazine | Nov. 01, 2012

Growing Up: Teens, young adults must learn to manage lupus on their own

For many young people with lupus, the transition to caring for themselves as adults is challenging.

Podcasts | Sep. 11, 2012

Parents Caring for Children with Lupus

Dr. Emily von Scheven of the University of California at San Francisco discusses the challenges of caring for a child with lupus.

Magazine | Nov. 01, 2011

Helping Hands -  Roles are redefined when you become the caregiver of a loved one.

Many experience changing dynamics in their relationship when a loved one is handed a lupus diagnosis.

Magazine | Nov. 01, 2011

School Rules

How 504 Plans and IEPs Can Help Children With Lupus Succeed in School

Magazine | Mar. 01, 2011

Family Ties: Eduardo Xol creates Zen retreat for sister living with lupus

As a member of the design team on the popular series Extreme Makeover: Home Edition, Eduardo Xol helps improve the lives of a family in need every week for ABC TV. Off camera, Xol is helping his sister cope with lupus.

Magazine | Nov. 01, 2010

About Time: Get the Most Out of Your Meds

Keeping track of your medications, and taking them correctly, can feel overwhelming. Learn more about how to get the most out of your medications.


Events

Feb. 28, 2015 7:30 am | Mercato

Walk to End Lupus Now Southwest Florida

Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.

May. 02, 2015 4:00 pm | Palm Beach Zoo

Walk to End Lupus Now South Florida Spring

We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Oct. 27, 2014 7:30 pm—Oct. 27, 2015 12:00 am | Via Teleconference

2014 Ask The Experts Teleconference Series

Don't miss this opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home!  

Nov. 13, 2014 7:00 pm | Teleconference

Ask The Experts: Lupus and Stress

Learn how to reduce and cope with stress.

Dec. 06, 2014 10:00 am | Broward College (North Campus)

Redefining Lupus : Putting the Pieces Together (South Florida- Broward)

Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.

Oct. 25, 2014 10:00 am | Palm Beach Atlantic University

Redefining Lupus : Putting the Pieces Together (South Florida- Palm Beach)

Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.

Oct. 28, 2014 9:00 am—Oct. 28, 2018 5:00 pm

Philadelphia Tri-State Program Calendar

View upcoming support groups, educational programs, fundraising events, and more.

Oct. 05, 2013 9:30 am

7th Annual Georgia Lupus Summit

Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.

May. 31, 2014 10:00 am | Washington, DC

Understanding Advocacy- How You Can Help!

Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.

Feb. 18, 2014 8:30 am

Lupus Awareness Day at the Georgia State Capitol

Register today for this empowering day! Let's take lupus from a whisper to a shout!

Sep. 21, 2013 9:00 am | Kansas City

Kansas City Behind the Mask Education Conference

Questions about coping with Lupus? Sign up today!