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How can I keep my child’s school up to date on how lupus is affecting them?

Is lupus nephritis in children treated differently than in adults?

Do children have neuropsychiatric lupus symptoms?

Can children develop lupus nephritis?

What are some helpful hints when caring for my child with lupus?

Should I explain my child’s lupus to teachers and extracurricular activities leaders?

How do friends and family cope with a diagnosis of lupus in a child?

Is there a specific diet for children with lupus?

Is lupus the same in children and adults?

How is lupus diagnosed in children?

How do I help my child with lupus successfully transition to adulthood?

How do I transition into my role as a caregiver?

As a caregiver, how do I handle the unpredictability of lupus?

How do I deal with feelings of anger or frustration?

Why is having a support system important?

How do I explain my child’s lupus to others?

Which organizations offer support and resources to caregivers?

How can a caregiver be prepared for an emergency?

How do I explain lupus to my child?

How can I manage being a caregiver from a distance?

How do I care for my loved one who has lupus while caring for myself?

What are 504 Plans and IEPs?

How can I learn to accept my lupus?

What kinds of doctors treat lupus?

Can I treat lupus with complementary and alternative medicines?


News & Stories

Magazine | Jul. 14, 2016

Know how to help: New research reveals type of support is key in lupus

Like "love languages", for those with chronic disease, a sense of well-being is more about the match between the kind of support we want and the kind we receive.

Blog | Apr. 19, 2016

How to Help: A Tool for Helping Friends and Family Members with Lupus

Finding the support that you need, or supporting someone you care about is not just about how much help is offered. The type of help offered is just as important.

Blog | Oct. 13, 2015

Q&A with Dr. Stacy Ardoin - Lupus in Children and Adolescents

October 2015 - Dr. Stacy Ardoin answered your 15 questions about lupus in children and adolescents.

Blog | Apr. 01, 2015

Q&A with Sharon Mack - Understanding & Managing the Stress of Caregiving

April 2015 - Sharon Mack, Health Educator for the Lupus Foundation of America, provides helpful tips and advice about caring for a loved one with lupus while caring for yourself as part of the Ask the Experts program.

Blog | Mar. 02, 2015

Finding Help to Afford Prescription Medications

For people with chronic illnesses like lupus, affording monthly medications can be a struggle. Knowing your options can help when it comes to navigating the process of applying for funding assistance.

Podcasts | Feb. 27, 2015

Ask the Expert - Understanding & Managing the Stress of Caregiving

Ask The Experts: Sharon Mack, Health Educator for the Lupus Foundation of America, provides helpful tips and advice about caring for a loved one with lupus while caring for yourself.

Blog | Nov. 14, 2014

Guest Blog – Becoming a Lupus Caregiver

November is National Family Caregivers Month. Mary Jane Goodman-Giddens, caregiver to two children with lupus, offers her personal advice for new caregivers and talks about the importance of taking care of yourself.

General News | Sep. 16, 2014

“UNVEIL” Survey Reveals a Life Interrupted by Lupus

Results show how disease takes a toll on life for people with lupus and lupus caregivers

Blog | Aug. 18, 2014

Five Lessons Health Advocates Can Teach Us

Health advocates are part of a new profession to help patients remove barriers to the care they want and need. This emerging field helps patients by building skills and connecting them to resources so patients can participate and drive their health care experience and make the best decisions possible.

Blog | Apr. 15, 2014

Making a Positive Impact with Mom by My Side

Read Aiden's story about her life with lupus and how she couldn't have gone through this experience without the help from her mom.

Blog | Apr. 15, 2014

Caregivers, You Are Not Alone

Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.

Blog | Feb. 18, 2014

Painting a Picture of Lupus—Why you are the Artist That Matters Most

A bird’s eye view of lupus research from the Lupus Foundation of America’s Education and Research Department

Magazine | Feb. 05, 2014

Parental Support - Finding guidance for Mom and Dad

When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.

Blog | Feb. 04, 2014

The Kassel Family Steps Up and Makes a Big Difference

In 2011, Bonnie and Todd Kassel learned their 12-year-old daughter Taylor was diagnosed with lupus nephritis. Their angst transformed into lupus awareness, advocacy and action. Read more.

Research News | Dec. 05, 2013

Cancer Risk May Be Higher Among Young Patients with Lupus

Children with lupus may have a higher risk for developing cancer – especially blood cancers such as non-Hodgkin’s lymphoma and leukemia – compared to children without lupus.

Podcasts | Sep. 01, 2013

Caregiving and Lupus

Ask the Expert: Mr. Paul DelPonte from National Alliance for Caregiving discusses the caregiving and lupus.

Magazine | Nov. 01, 2012

Growing Up: Teens, young adults must learn to manage lupus on their own

For many young people with lupus, the transition to caring for themselves as adults is challenging.

Podcasts | Sep. 11, 2012

Parents Caring for Children with Lupus

Dr. Emily von Scheven of the University of California at San Francisco discusses the challenges of caring for a child with lupus.

Magazine | Nov. 01, 2011

Helping Hands -  Roles are redefined when you become the caregiver of a loved one.

Many experience changing dynamics in their relationship when a loved one is handed a lupus diagnosis.

Magazine | Nov. 01, 2011

School Rules

How 504 Plans and IEPs Can Help Children With Lupus Succeed in School

Magazine | Mar. 01, 2011

Family Ties: Eduardo Xol creates Zen retreat for sister living with lupus

As a member of the design team on the popular series Extreme Makeover: Home Edition, Eduardo Xol helps improve the lives of a family in need every week for ABC TV. Off camera, Xol is helping his sister cope with lupus.

Magazine | Nov. 01, 2010

About Time: Get the Most Out of Your Meds

Keeping track of your medications, and taking them correctly, can feel overwhelming. Learn more about how to get the most out of your medications.


Events

Jun. 14, 2016 6:30 pm | Baptist Health Resource Center

Miami/Dade Lupus Support Group (Doral)

Jun. 14, 2016 7:00 pm | Highland Regional Library

North Florida Lupus Support Group (Jacksonville)

Oct. 22, 2016 5:00 pm | Marlins Park

Walk to End Lupus Now Miami

Join us at Marlins Park for 2016 Walk to End Lupus Now! Come and spend your afternoon at the ballpark while helping us raise awareness!

Oct. 15, 2016 9:00 am | The HUB - Cira Centre

Living Well with Lupus Symposium - Philadelphia

The Living Well With Lupus Symposium provides information and strategies to help you live well with lupus.

Mar. 03, 2016 7:00 pm | Teleconference

Lupus and the Kidneys: Ask the Experts

This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.

Feb. 25, 2016 7:00 pm—Jan. 01, 2017 7:00 am | Via Teleconference & Webcast

2016 Ask The Experts Teleconference Series

Don't miss this opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home!  

Feb. 20, 2016 10:00 am | Nova Southeastern University

Living Well with Lupus Seminar Orlando

Please join us for our Living Well with Lupus Seminar in Orlando.

Jan. 01, 2017 | Philadelphia Tri-State Region

Philadelphia Tri-State Program Calendar

View upcoming support groups, educational programs, fundraising events, and more.

Jun. 05, 2016 4:00 pm—Jul. 05, 2016 12:00 am | Palm Beach Zoo

Walk to End Lupus Now Palm Beach Donation Deadline

Thank you Palm Beach for coming out to Walk to End Lupus Now. You have until July 5 to turn in your donations and help us reach our goal.

May. 21, 2016 3:00 pm—Jun. 21, 2016 6:30 pm | Lake Eola Park

Walk to End Lupus Now Orlando Donation Deadline

Thank you Orlando for coming out to Walk to End Lupus Now. You have until June 21 to turn in your donations and help us reach our goal.

Mar. 13, 2016 4:00 pm—Apr. 13, 2016 6:30 pm | Riverside Arts Market

Walk to End Lupus Now Jacksonville Donation Deadline

Thank you Jacksonville for coming out to Walk to End Lupus Now. You have until April 13 to turn in your donations and help us reach our goal.

May. 30, 2015 9:00 am | Nova Southeastern University

Support Group Training

Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.

Nov. 14, 2015 2:00 pm—Dec. 14, 2015 12:00 am | Wickham Park

Walk to End Lupus Now Central Florida Donation Deadline

Thank you for Melbourne for coming out to Walk to End Lupus Now. You have until December 14 to turn in your donations and help us reach our goal.

Oct. 25, 2015 3:00 pm—Nov. 30, 2015 12:00 am | Marlins Park

Walk to End Lupus Now South Florida Fall Donation Deadline

Thank you for Miami for coming out to Walk to End Lupus Now. You have until November 30 to turn in your donations and help us reach our goal.

Nov. 15, 2014 10:30 am | Physicians Regional Medical Center, Palm Dining Room

Southwest Florida Lupus Support Group (Naples)

Nov. 20, 2014 6:30 pm | Bethesda Memorial Hospital, Sand Dollar Room

South Palm Beach Lupus Support Group (Boynton Beach)

Oct. 29, 2014 12:30 pm | Broward Health Coral Springs Hospital, Classroom C

West Broward Lupus Support Group (Coral Springs)

Nov. 12, 2014 7:00 pm | Memorial Regional Hospital South Conf. Room 4

East Broward Lupus Support Group (Hollywood)

Nov. 11, 2014 7:00 pm | Online

Viviendo con Lupus (Living with Lupus) Online Spanish Support Group

Nov. 10, 2014 6:00 pm | St Mary's Medical Center,Main Entrance Conference Room

North Palm Beach Lupus Support Group ( West Palm Beach)

Feb. 28, 2015 7:30 am | Mercato

Walk to End Lupus Now Southwest Florida

Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.

May. 02, 2015 4:00 pm | Palm Beach Zoo

Walk to End Lupus Now South Florida Spring

We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Mar. 29, 2015 4:30 pm | Riverside Arts Market

Walk to End Lupus Now Northern Florida

NEW in 2015! The Walk to End Lupus Now is coming to Northern Florida in Jacksonville. Join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Oct. 05, 2013 9:30 am

7th Annual Georgia Lupus Summit

Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.

Oct. 30, 2016 7:00 am

25th Annual Lupus Loop 5K Run & 2.5 Mile Walk to End Lupus Now™

Help us solve the cruel mystery!

Oct. 17, 2015 | Wichita

Lupus Conference

Nov. 01, 2014 10:00 am | Online

Online Living with Lupus Support Group

Nov. 12, 2014 6:30 pm | Clay County Library Orange Park Branch, Room A

North Florida Lupus Support Group (Orange Park)

Aug. 27, 2016 9:00 am | St. Louis, MO

Lupus Education Conference - Saint Louis

Register Today for the Annual Lupus Education Conference in St. Louis

May. 31, 2014 10:00 am | Washington, DC

Understanding Advocacy- How You Can Help!

Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.

Mar. 26, 2015 8:30 am

2015 Lupus Awareness Day at the Georgia State Capitol

New Date, Same Mission! Click here for details