Like "love languages", for those with chronic disease, a sense of well-being is more about the match between the kind of support we want and the kind we receive.
News & Stories
Finding the support that you need, or supporting someone you care about is not just about how much help is offered. The type of help offered is just as important.
October 2015 - Dr. Stacy Ardoin answered your 15 questions about lupus in children and adolescents.
April 2015 - Sharon Mack, Health Educator for the Lupus Foundation of America, provides helpful tips and advice about caring for a loved one with lupus while caring for yourself as part of the Ask the Experts program.
For people with chronic illnesses like lupus, affording monthly medications can be a struggle. Knowing your options can help when it comes to navigating the process of applying for funding assistance.
Ask The Experts: Sharon Mack, Health Educator for the Lupus Foundation of America, provides helpful tips and advice about caring for a loved one with lupus while caring for yourself.
November is National Family Caregivers Month. Mary Jane Goodman-Giddens, caregiver to two children with lupus, offers her personal advice for new caregivers and talks about the importance of taking care of yourself.
Results show how disease takes a toll on life for people with lupus and lupus caregivers
Health advocates are part of a new profession to help patients remove barriers to the care they want and need. This emerging field helps patients by building skills and connecting them to resources so patients can participate and drive their health care experience and make the best decisions possible.
Read Aiden's story about her life with lupus and how she couldn't have gone through this experience without the help from her mom.
Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.
A bird’s eye view of lupus research from the Lupus Foundation of America’s Education and Research Department
When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.
In 2011, Bonnie and Todd Kassel learned their 12-year-old daughter Taylor was diagnosed with lupus nephritis. Their angst transformed into lupus awareness, advocacy and action. Read more.
Children with lupus may have a higher risk for developing cancer – especially blood cancers such as non-Hodgkin’s lymphoma and leukemia – compared to children without lupus.
Ask the Expert: Mr. Paul DelPonte from National Alliance for Caregiving discusses the caregiving and lupus.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
Dr. Emily von Scheven of the University of California at San Francisco discusses the challenges of caring for a child with lupus.
Many experience changing dynamics in their relationship when a loved one is handed a lupus diagnosis.
How 504 Plans and IEPs Can Help Children With Lupus Succeed in School
As a member of the design team on the popular series Extreme Makeover: Home Edition, Eduardo Xol helps improve the lives of a family in need every week for ABC TV. Off camera, Xol is helping his sister cope with lupus.
Keeping track of your medications, and taking them correctly, can feel overwhelming. Learn more about how to get the most out of your medications.
Join us at Marlins Park for 2016 Walk to End Lupus Now! Come and spend your afternoon at the ballpark while helping us raise awareness!
The Living Well With Lupus Symposium provides information and strategies to help you live well with lupus.
This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.
Don't miss this opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home!
Please join us for our Living Well with Lupus Seminar in Orlando.
View upcoming support groups, educational programs, fundraising events, and more.
Thank you Palm Beach for coming out to Walk to End Lupus Now. You have until July 5 to turn in your donations and help us reach our goal.
Thank you Orlando for coming out to Walk to End Lupus Now. You have until June 21 to turn in your donations and help us reach our goal.
Thank you Jacksonville for coming out to Walk to End Lupus Now. You have until April 13 to turn in your donations and help us reach our goal.
Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.
Thank you for Melbourne for coming out to Walk to End Lupus Now. You have until December 14 to turn in your donations and help us reach our goal.
Thank you for Miami for coming out to Walk to End Lupus Now. You have until November 30 to turn in your donations and help us reach our goal.
Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.
We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
NEW in 2015! The Walk to End Lupus Now is coming to Northern Florida in Jacksonville. Join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.
Help us solve the cruel mystery!
Register Today for the Annual Lupus Education Conference in St. Louis
Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.
New Date, Same Mission! Click here for details