Last year, while living in Puerto Rico, 14-year-old Amarissa Mauricio and her family had their lives turned upside down when she began to experience an onslaught of symptoms including fevers, skin rash, infection and joint pain so extreme she was unable to walk.
News & Stories
Increasing funding for lupus research is a top priority for the Lupus Foundation of America. We urge Congress to robustly fund the National Institutes of Health (NIH), the largest source of biomedical research (and lupus) funding in the country.
Leading Orgs Take to the Hill to Discuss Need to Accelerate New Medicines for Lupus & Other Diseases
Lupus Foundation of America and Rheumatology Research Foundation hold congressional briefing
Health advocates are part of a new profession to help patients remove barriers to the care they want and need. This emerging field helps patients by building skills and connecting them to resources so patients can participate and drive their health care experience and make the best decisions possible.
These six women knew little about lupus when they were diagnosed. Not content to keep what they learned to themselves, they became committed to raising awareness of the disease that changed their lives.
Our advocacy efforts are part of the Foundation’s comprehensive strategy to increase funding to solve the cruel mystery of lupus.
In her blog, Sara Chang, Senior Manager of Advocacy and Government Relations writes about the importance of participating in surveys.
Actor Ian Harding from Pretty Little Liars supports his mom Mary through lupus advocacy, awareness and fundraising efforts
Tribute raises critically needed funds to support the Lupus Foundation of America’s mission
May is Lupus Awareness Month; Lupus Foundation of America education programs and events taking place nationwide.
More than 4,000 local supporters walk to raise funds, awareness and congressional support for lupus
Read Aiden's story about her life with lupus and how she couldn't have gone through this experience without the help from her mom.
Lupus Foundation of America activist, Mallory Dixon, reflects on her life living with lupus and shares her incredible lupus journey over past year. Read Mallory's story and learn why she is grateful for her lupus diagnosis and how she lives each day to the fullest.
The stories of four people whose lives have been forever changed by lupus and the Foundation's efforts to improve the quality of life for everyone affected by lupus.
Read Cristina Toro's inspiring story about her life with lupus and how her daughter helped motivate her to take part in the Walk to End Lupus Now™
Congress passed the Consolidated Appropriations Act of 2014. While this funding brings some good news in the fight against lupus, the Act only restores some of the money to the NIH that was previously cut through the automatic spending reductions (sequestration).
In 2011, Bonnie and Todd Kassel learned their 12-year-old daughter Taylor was diagnosed with lupus nephritis. Their angst transformed into lupus awareness, advocacy and action. Read more.
The Lupus Foundation of America will partner with the Foundation for the National Institutes of Health (FNIH) to support a new $230 million, five-year initiative that will accelerate the ability to develop new medicines for lupus and other diverse and complex diseases.
The Lupus Foundation of America applauds Congress for enacting the Consolidated Appropriations Act of 2014, H.R. 3547 which provides funding for vital lupus research and education programs.
What a way to kick off 2014! Last night, the House and Senate appropriators unveiled the Omnibus Appropriations bill. Thanks to the ongoing advocacy work by the Lupus Foundation of America and our network of activists and supporters, the news for lupus could not be better.
Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.
As 2013 comes to an end, Sandra C. Raymond, President and CEO, reflects on the advances Lupus Foundation of America has made over the years, and speaks about the key priorities for the future.
Our research, education and advocacy programs in 2013 contributed advances that are helping to solve the cruel mystery of lupus.
Kim Cantor, Lupus Foundation of America’s Senior Director of Public Policy and Government Relations, discusses the Foundation’s Medicare for Patients RX (MAPRx) Coalition
Representative Young was a champion for lupus and his outstanding national leadership in advancing biomedical research improved the quality of life for millions of Americans, including people living with lupus and their loved ones.
The U.S. Department of Defense (DOD) Medical Research Program announces two new lupus research grant awards, bringing the total DoD funds to date for support of lupus research to $14 million.
New study reinforces need for Patients’ Access to Treatments Act (H.R. 460) to reduce excessive financial burden placed on people with chronic diseases
More than 250 lupus activists from 31 states joined the fight for more lupus research funding.
Senate Appropriations Committee approves a draft of the fiscal year (FY) 2014 Labor-Health and Human Services-Education appropriations bill.
On June 25, 250 lupus activists from across the nation will take to Capitol Hill to make their voices heard and urge Congress to support expanding the medical research effort on lupus and access to treatments during the Lupus Foundation of America’s National Lupus Advocacy Summit.
A new medical education curriculum to help medical professionals make early diagnosis of lupus has been unveiled by representatives of The Lupus Initiative in Washington, DC.
A number of Affordable Care Act provisions are helpful to people with lupus. These include banning insurance companies from denying coverage for pre-existing conditions; allowing young people up to age 26 to receive health insurance through a parent’s plan; and eliminating insurance coverage caps.
The Lupus Foundation of America convened on Capitol Hill with the Congressional Lupus Caucus and lupus community partners to share the current state of lupus research.
When Mary and Albert Luciano found out in 2008 that their daughter Erin had lupus, they were determined to learn everything they could about the illness.
People with Lupus Retain Protections Under the Health Care Reform Law.
The Prescription Drug User Fee Act authorizes the U.S. Food and Drug Administration to collect an application fee from drug manufacturers for approval of a new drug.
Hollywood phenom Maurissa Tancharoen Whedon finds support through her all-star network of friends and family
Representatives Tom Rooney (R-FL), William Keating (D-MA), Ileana Ros-Lehtinen (R-FL), and Jim Moran (D-VA) announced the formation of a Congressional Lupus Caucus.
By January 1, 2013, 75-watt bulbs will no longer be manufactured for sale in the U.S., followed by 60-watt and 40-watt incandescent light bulbs on January 1, 2014.
The Lupus Foundation of America (LFA) Congratulates Trine Jorgensen, Ph.D., Cleveland Clinic Foundation and I-Cheng Ho, M.D., Ph.D., Brigham and Women’s Hospital
The approval of Benlysta—the first lupus drug in more than 50 years—ushers in a new era of treatment.
A meeting of key stakeholders from the federal government, industry, and academia will be discussing pediatric rheumatic drug treatments and a consolidated adverse events registry.
Lupus Foundation of America is launching a website, Lupus Voices Across America™, that will allow people with lupus and their supporters to share their stories.
Lupus Foundation of America Holds Thirteenth Annual Advocacy Day.
Advocates from across the country will band together for lupus and urge Members of Congress to support increased federal funding for lupus research, awareness, and education.
Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.
We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
Learn how to reduce and cope with stress.
What you need to know to help with issues surrounding disability.
Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.
View upcoming support groups, educational programs, fundraising events, and more.
The walk is a one mile or 5k loop around a section of the UAH campus, beginning at the University Fitness Center. There is an indoor one mile loop available, as well. Registration begins at 3PM, and the walk kicks off at 5PM. Register today!
Take ACTION this May to raise awareness of lupus and end its brutal impact.
Be sure to join us for our last walk of the season in Louisville, KY on Saturday, September 27th. Check-In & Walk-Up Registration opens at 8AM, and the walk kicks off at 10AM. Register today!
Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.
Help Us Solve The Cruel Mystery™
Come out to our 5th annual Fairfield County Walk to End Lupus Now!
In conjunction with WTIC CBS Radio, help us honor talk show host Jim Vicevich!
Register today for this empowering day! Let's take lupus from a whisper to a shout!
Help Us Solve The Cruel Mystery™
Join us in Tacoma for a multicultural event!
Join us in turning the Seattle Great Wheel PURPLE!
GPC College Forum
Lunch and Learn - Register Today!
Our 2014 West Hartford Walk to End Lupus Now will be taking place on Sunday, May 18th in West Hartford’s Blue Back Square!
Come out and support lupus awareness at this year's Huffing Off Stuffing 5k Race!
Read about last year's spectacular event.
Learn more about Lupus Awareness Day.