Read Cristina Toro's inspiring story about her life with lupus and how her daughter helped motivate her to take part in the Walk to End Lupus Now™
News & Stories
Congress passed the Consolidated Appropriations Act of 2014. While this funding brings some good news in the fight against lupus, the Act only restores some of the money to the NIH that was previously cut through the automatic spending reductions (sequestration).
In 2011, Bonnie and Todd Kassel learned their 12-year-old daughter Taylor was diagnosed with lupus nephritis. Their angst transformed into lupus awareness, advocacy and action. Read more.
The Lupus Foundation of America will partner with the Foundation for the National Institutes of Health (FNIH) to support a new $230 million, five-year initiative that will accelerate the ability to develop new medicines for lupus and other diverse and complex diseases.
The Lupus Foundation of America applauds Congress for enacting the Consolidated Appropriations Act of 2014, H.R. 3547 which provides funding for vital lupus research and education programs.
What a way to kick off 2014! Last night, the House and Senate appropriators unveiled the Omnibus Appropriations bill. Thanks to the ongoing advocacy work by the Lupus Foundation of America and our network of activists and supporters, the news for lupus could not be better.
Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.
As 2013 comes to an end, Sandra C. Raymond, President and CEO, reflects on the advances Lupus Foundation of America has made over the years, and speaks about the key priorities for the future.
Our research, education and advocacy programs in 2013 contributed advances that are helping to solve the cruel mystery of lupus.
Kim Cantor, Lupus Foundation of America’s Senior Director of Public Policy and Government Relations, discusses the Foundation’s Medicare for Patients RX (MAPRx) Coalition
Representative Young was a champion for lupus and his outstanding national leadership in advancing biomedical research improved the quality of life for millions of Americans, including people living with lupus and their loved ones.
The U.S. Department of Defense (DOD) Medical Research Program announces two new lupus research grant awards, bringing the total DoD funds to date for support of lupus research to $14 million.
New study reinforces need for Patients’ Access to Treatments Act (H.R. 460) to reduce excessive financial burden placed on people with chronic diseases
More than 250 lupus activists from 31 states joined the fight for more lupus research funding.
Senate Appropriations Committee approves a draft of the fiscal year (FY) 2014 Labor-Health and Human Services-Education appropriations bill.
On June 25, 250 lupus activists from across the nation will take to Capitol Hill to make their voices heard and urge Congress to support expanding the medical research effort on lupus and access to treatments during the Lupus Foundation of America’s National Lupus Advocacy Summit.
A new medical education curriculum to help medical professionals make early diagnosis of lupus has been unveiled by representatives of The Lupus Initiative in Washington, DC.
A number of Affordable Care Act provisions are helpful to people with lupus. These include banning insurance companies from denying coverage for pre-existing conditions; allowing young people up to age 26 to receive health insurance through a parent’s plan; and eliminating insurance coverage caps.
The Lupus Foundation of America convened on Capitol Hill with the Congressional Lupus Caucus and lupus community partners to share the current state of lupus research.
When Mary and Albert Luciano found out in 2008 that their daughter Erin had lupus, they were determined to learn everything they could about the illness.
People with Lupus Retain Protections Under the Health Care Reform Law.
The Prescription Drug User Fee Act authorizes the U.S. Food and Drug Administration to collect an application fee from drug manufacturers for approval of a new drug.
Hollywood phenom Maurissa Tancharoen Whedon finds support through her all-star network of friends and family
Representatives Tom Rooney (R-FL), William Keating (D-MA), Ileana Ros-Lehtinen (R-FL), and Jim Moran (D-VA) announced the formation of a Congressional Lupus Caucus.
By January 1, 2013, 75-watt bulbs will no longer be manufactured for sale in the U.S., followed by 60-watt and 40-watt incandescent light bulbs on January 1, 2014.
The Lupus Foundation of America (LFA) Congratulates Trine Jorgensen, Ph.D., Cleveland Clinic Foundation and I-Cheng Ho, M.D., Ph.D., Brigham and Women’s Hospital
The approval of Benlysta—the first lupus drug in more than 50 years—ushers in a new era of treatment.
A meeting of key stakeholders from the federal government, industry, and academia will be discussing pediatric rheumatic drug treatments and a consolidated adverse events registry.
Lupus Foundation of America is launching a website, Lupus Voices Across America™, that will allow people with lupus and their supporters to share their stories.
Lupus Foundation of America Holds Thirteenth Annual Advocacy Day.
Advocates from across the country will band together for lupus and urge Members of Congress to support increased federal funding for lupus research, awareness, and education.
2014 Walk to End Lupus Now
April 26, 2014
Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.
Come out to our 2nd annual Fairfield County Walk to End Lupus Now!
In conjunction with WTIC CBS Radio, help us honor talk show host Jim Vicevich!
Register today for this empowering day! Let's take lupus from a whisper to a shout!
The walk is a one mile or 5k loop around a section of the UAH campus, beginning at the University Fitness Center. There is an indoor one mile loop available, as well. Registration begins at 3PM, and the walk kicks off at 5PM. Register today!
Join us for The Purple Ball, an elegant evening featuring a cocktail reception, an exciting live and silent auction, and a gourmet dinner. The evening will conclude with the Lupus Leadership Awards
Be part of the Lupus Foundation of America’s Walk to End Lupus Now™ event — America’s largest lupus walk Register Start a Team Donate
GPC College Forum
Lunch and Learn - Register Today!
If you live in the Norwich area and would like to meet with others living with lupus, come to our October Support Group meeting this Saturday from 6:30-8:00 pm.
Our 2014 West Hartford Walk to End Lupus Now will be taking place on Sunday, May 18th in West Hartford’s Blue Back Square!
Come out and support lupus awareness at this year's Huffing Off Stuffing 5k Race!
Read about last year's spectacular event.
Learn more about Lupus Awareness Day.