News & Stories

General News | Mar. 25, 2015

People With Lupus Must Have Access to Prescription Drugs

People with lupus need and deserve a full arsenal of treatments. With many new and innovative drugs for lupus in the drug pipeline, these highly anticipated treatments will mean nothing if people with lupus cannot afford them.

Blog | Mar. 03, 2015

Increasing Federal Support for Lupus Research

This year, the Lupus Foundation of America is implementing numerous projects to achieve our goals to increase federal support for lupus research and services to benefit people with lupus, their families and caregivers. Find out more about two of our exciting endeavors in this letter from our CEO, Sandra C. Raymond.

Blog | Jan. 05, 2015

Save-the-Date! National Lupus Advocacy Summit: June 15 & 16, 2015

We urge everyone affected by lupus to join us for this important and exciting event and look forward to seeing everyone in Washington, D.C. in June!

General News | Dec. 15, 2014

Government Spending Bill Includes Funding for Vital Lupus Programs

Statement from Sandra C. Raymond, President and CEO of the Lupus Foundation of America

General News | Oct. 29, 2014

U.S. Department of Defense Announces $3.4 Million to Support Lupus Research

Award is the largest amount allocated to lupus since 2006

Blog | Oct. 07, 2014

A Family Devoted to Awareness

Last year, while living in Puerto Rico, 14-year-old Amarissa Mauricio and her family had their lives turned upside down when she began to experience an onslaught of symptoms including fevers, skin rash, infection and joint pain so extreme she was unable to walk.

Blog | Sep. 09, 2014

New Partnership to Accelerate Lupus Medicine Development

Increasing funding for lupus research is a top priority for the Lupus Foundation of America. We urge Congress to robustly fund the National Institutes of Health (NIH), the largest source of biomedical research (and lupus) funding in the country.

General News | Sep. 09, 2014

Leading Orgs Take to the Hill to Discuss Need to Accelerate New Medicines for Lupus & Other Diseases

Lupus Foundation of America and Rheumatology Research Foundation hold congressional briefing

Blog | Aug. 18, 2014

Five Lessons Health Advocates Can Teach Us

Health advocates are part of a new profession to help patients remove barriers to the care they want and need. This emerging field helps patients by building skills and connecting them to resources so patients can participate and drive their health care experience and make the best decisions possible.

Magazine | Aug. 13, 2014

Making a Difference

These six women knew little about lupus when they were diagnosed. Not content to keep what they learned to themselves, they became committed to raising awareness of the disease that changed their lives.

General News | Jul. 25, 2014

LFA Stimulates $7.6 Million in New Funding for Lupus Research and Education Programs

Our advocacy efforts are part of the Foundation’s comprehensive strategy to increase funding to solve the cruel mystery of lupus.

Blog | Jun. 18, 2014

Help Us, Help You: Why Surveys Matter

In her blog, Sara Chang, Senior Manager of Advocacy and Government Relations writes about the importance of participating in surveys.

Magazine | May. 27, 2014

A Special Bond: Actor Ian Harding supports his mom through lupus advocacy

Actor Ian Harding from Pretty Little Liars supports his mom Mary through lupus advocacy, awareness and fundraising efforts

General News | May. 21, 2014

Chronic Disease and Disability Communities Pay Tribute to Senator Tom Harkin

Tribute raises critically needed funds to support the Lupus Foundation of America’s mission

General News | May. 01, 2014

Public Urged To Take Action to Fight ‘Cruel Mystery’ affecting Millions Worldwide

May is Lupus Awareness Month; Lupus Foundation of America education programs and events taking place nationwide.

General News | Apr. 19, 2014

Nick Cannon Leads Thousands of DC Residents in the Walk to End Lupus Now®

More than 4,000 local supporters walk to raise funds, awareness and congressional support for lupus

Blog | Apr. 15, 2014

Making a Positive Impact with Mom by My Side

Read Aiden's story about her life with lupus and how she couldn't have gone through this experience without the help from her mom.

Blog | Apr. 01, 2014

My Life With Lupus, For the Better

Lupus Foundation of America activist, Mallory Dixon, reflects on her life living with lupus and shares her incredible lupus journey over past year. Read Mallory's story and learn why she is grateful for her lupus diagnosis and how she lives each day to the fullest.

Video | Mar. 28, 2014

Spreading Our Wings

The stories of four people whose lives have been forever changed by lupus and the Foundation's efforts to improve the quality of life for everyone affected by lupus.

Blog | Feb. 18, 2014

Excited About Funding Increases? Not So fast.

Congress passed the Consolidated Appropriations Act of 2014. While this funding brings some good news in the fight against lupus, the Act only restores some of the money to the NIH that was previously cut through the automatic spending reductions (sequestration).

Blog | Feb. 04, 2014

The Kassel Family Steps Up and Makes a Big Difference

In 2011, Bonnie and Todd Kassel learned their 12-year-old daughter Taylor was diagnosed with lupus nephritis. Their angst transformed into lupus awareness, advocacy and action. Read more.

General News | Feb. 04, 2014

NIH Announces Partnership to Accelerate Development of New Treatments for Lupus & Other Diseases

The Lupus Foundation of America will partner with the Foundation for the National Institutes of Health (FNIH) to support a new $230 million, five-year initiative that will accelerate the ability to develop new medicines for lupus and other diverse and complex diseases.

General News | Jan. 17, 2014

The Consolidated Appropriations Bill Provides Significant Funding for Vital Lupus Programs

The Lupus Foundation of America applauds Congress for enacting the Consolidated Appropriations Act of 2014, H.R. 3547 which provides funding for vital lupus research and education programs.

Blog | Jan. 14, 2014

Congress Recognizes the Importance of Lupus Research and Programs

What a way to kick off 2014! Last night, the House and Senate appropriators unveiled the Omnibus Appropriations bill. Thanks to the ongoing advocacy work by the Lupus Foundation of America and our network of activists and supporters, the news for lupus could not be better.

Blog | Jan. 07, 2014

We Just Enrolled in Obamacare

Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.

Blog | Dec. 30, 2013

CEO Insights and Foresight

As 2013 comes to an end, Sandra C. Raymond, President and CEO, reflects on the advances Lupus Foundation of America has made over the years, and speaks about the key priorities for the future.

Blog | Dec. 24, 2013

2013: Transforming Challenges in Lupus into Progress and Hope

Our research, education and advocacy programs in 2013 contributed advances that are helping to solve the cruel mystery of lupus.

Blog | Dec. 04, 2013

Access to Prescription Drugs is a Must

Kim Cantor, Lupus Foundation of America’s Senior Director of Public Policy and Government Relations, discusses the Foundation’s Medicare for Patients RX (MAPRx) Coalition

General News | Oct. 21, 2013

In Memoriam - Representative C.W. Bill Young

Representative Young was a champion for lupus and his outstanding national leadership in advancing biomedical research improved the quality of life for millions of Americans, including people living with lupus and their loved ones.

General News | Oct. 18, 2013

US Department of Defense Provides Another $1.8 Million to Support Research on Lupus

The U.S. Department of Defense (DOD) Medical Research Program announces two new lupus research grant awards, bringing the total DoD funds to date for support of lupus research to $14 million.

General News | Sep. 11, 2013

The Lupus Foundation of America Helps Pave the Way for Access to Future Lupus Treatments

New study reinforces need for Patients’ Access to Treatments Act (H.R. 460) to reduce excessive financial burden placed on people with chronic diseases

Video | Jul. 17, 2013

2013 National Lupus Advocacy Summit

More than 250 lupus activists from 31 states joined the fight for more lupus research funding.

General News | Jul. 12, 2013

Activists Heard! Senate Committee Boosts Lupus Research Funding

Senate Appropriations Committee approves a draft of the fiscal year (FY) 2014 Labor-Health and Human Services-Education appropriations bill.

General News | Jun. 24, 2013

Lupus Activists on Capitol Hill Urge Congress To Expand Research

On June 25, 250 lupus activists from across the nation will take to Capitol Hill to make their voices heard and urge Congress to support expanding the medical research effort on lupus and access to treatments during the Lupus Foundation of America’s National Lupus Advocacy Summit.

General News | May. 16, 2013

Lupus Educational Curriculum Developed to Address Diagnosis Challenges

A new medical education curriculum to help medical professionals make early diagnosis of lupus has been unveiled by representatives of The Lupus Initiative in Washington, DC.

Magazine | Mar. 01, 2013

Insuring Your Health

A number of Affordable Care Act provisions are helpful to people with lupus. These include banning insurance companies from denying coverage for pre-existing conditions; allowing young people up to age 26 to receive health insurance through a parent’s plan; and eliminating insurance coverage caps.

General News | Jul. 11, 2012

The Lupus Foundation of America and the Congressional Lupus Caucus Hold Briefing on Capitol Hill

The Lupus Foundation of America convened on Capitol Hill with the Congressional Lupus Caucus and lupus community partners to share the current state of lupus research.

Magazine | Jul. 01, 2012

Circle of Hope: Erin Luciano

When Mary and Albert Luciano found out in 2008 that their daughter Erin had lupus, they were determined to learn everything they could about the illness.

General News | Jun. 28, 2012

The LFA Salutes the Supreme Court’s Decision to Uphold the Affordable Care Act

People with Lupus Retain Protections Under the Health Care Reform Law.

General News | Jun. 01, 2012

PDUFA Reauthorization is critical to millions of Americans with chronic diseases

The Prescription Drug User Fee Act authorizes the U.S. Food and Drug Administration to collect an application fee from drug manufacturers for approval of a new drug.

Magazine | Mar. 01, 2012

Warrior Princess: Maurissa Tancharoen Whedon finds support through friends and family

Hollywood phenom Maurissa Tancharoen Whedon finds support through her all-star network of friends and family

General News | Feb. 07, 2012

Congressional Lupus Caucus Launched in U.S. House of Representatives to Advance Awareness of Lupus

Representatives Tom Rooney (R-FL), William Keating (D-MA), Ileana Ros-Lehtinen (R-FL), and Jim Moran (D-VA) announced the formation of a Congressional Lupus Caucus.

General News | Jan. 05, 2012

Changes to Lighting in your Home

By January 1, 2013, 75-watt bulbs will no longer be manufactured for sale in the U.S., followed by 60-watt and 40-watt incandescent light bulbs on January 1, 2014.

General News | Aug. 23, 2011

The U.S. Department of Defense Awards $2.3 Million in Funding for Lupus Research

The Lupus Foundation of America (LFA) Congratulates Trine Jorgensen, Ph.D., Cleveland Clinic Foundation and I-Cheng Ho, M.D., Ph.D., Brigham and Women’s Hospital

Magazine | Jul. 01, 2011

Path to Progress

The approval of Benlysta—the first lupus drug in more than 50 years—ushers in a new era of treatment.

General News | Jun. 10, 2011

LFA Represents Lupus Community at Pediatric Rheumatic Drug Treatment Meeting

A meeting of key stakeholders from the federal government, industry, and academia will be discussing pediatric rheumatic drug treatments and a consolidated adverse events registry.

General News | May. 02, 2011

Lupus Foundation of America Launches New Lupus Voices Across America™ Web site

Lupus Foundation of America is launching a website, Lupus Voices Across America™, that will allow people with lupus and their supporters to share their stories.

General News | Mar. 04, 2011

Lupus Advocates Paint Capitol Hill Purple

Lupus Foundation of America Holds Thirteenth Annual Advocacy Day.

General News | Feb. 28, 2011

Advocates Seek Increased Federal Funding to Bridge the Gaps in Lupus Research, Awareness, Education

Advocates from across the country will band together for lupus and urge Members of Congress to support increased federal funding for lupus research, awareness, and education.


Events

May. 01, 2015—May. 31, 2015 | Florida

Know Lupus In Your Community

See what people are doing in your community to raise awareness this May for Lupus. Together we can create a future with no lupus. Do you have an event planned benefitting LFAFL, email us at info@lupusfl.org and we will add it!

May. 01, 2015 8:00 am—May. 31, 2015 12:30 am

Lupus Awareness Month

Visit our Lupus Awareness Month page to find out how you can raise awareness this May and encourage others to do the same.

May. 30, 2015 10:00 am | Nova Southeastern University

Lupus Advocate Bureau Training

The Lupus Advocate Bureau’s (LAB) mission is to raise the awareness of lupus by sharing personal stories and accurate information about lupus and the Lupus Foundation of America (LFAFL) to targeted audiences in Florida.

May. 30, 2015 3:00 pm | Nova Southeastern University

Lupus Q&A Seminar

Join us for the largest lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.

May. 13, 2015—Nov. 18, 2015 | Teleconferences and Seminars

2015 Lupus Empowerment Series: Ask The Experts

We offer an extensive variety of programs, services and resources for people living with lupus, including family members, caregivers and other members of their support systems

Jun. 15, 2015 3:00 pm—Jun. 16, 2015 4:00 pm | Capitol Hill

National Lupus Advocacy Summit

Make your voice heard by joining the hundreds of lupus activists from across the country on Capitol Hill to tell your story.

May. 30, 2015 9:00 am | Nova Southeastern University

Support Group Training

Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.

Dec. 31, 2015

Philadelphia Tri-State Program Calendar

View upcoming support groups, educational programs, fundraising events, and more.

Nov. 14, 2015 12:00 pm | Wickham Park

Walk to End Lupus Now Central Florida

Join us for a fun afternoon as we raise awareness for lupus at our second annual Walk to End Lupus Now in Melbourne!

Aug. 29, 2015 3:00 pm | Marlins Park

Walk to End Lupus Now South Florida Fall

Join us for South Florida Walk to End Lupus Now at our new location at Marlins Park! Pease join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Nov. 15, 2014 10:30 am | Physicians Regional Medical Center, Palm Dining Room

Southwest Florida Lupus Support Group

Our support groups encourage and accept people as they are and provide a comfortable learning environment to help attendees develop the best coping strategies to reduce stress that often accompanies living with lupus.

Nov. 08, 2014 9:30 am | Gregg Chapel AME Church

Panhandle Lupus Support Group

Our support groups encourage and accept people as they are and provide a comfortable learning environment to help attendees develop the best coping strategies to reduce stress that often accompanies living with lupus.

Nov. 20, 2014 6:30 pm | Bethesda Memorial Hospital, Sand Dollar Room

South Palm Beach Lupus Support Group

Our support groups encourage and accept people as they are and provide a comfortable learning environment to help attendees develop the best coping strategies to reduce stress that often accompanies living with lupus.

Feb. 28, 2015 7:30 am | Mercato

Walk to End Lupus Now Southwest Florida

Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.

May. 02, 2015 4:00 pm | Palm Beach Zoo

Walk to End Lupus Now South Florida Spring

We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Mar. 29, 2015 4:30 pm | Riverside Arts Market

Walk to End Lupus Now Northern Florida

NEW in 2015! The Walk to End Lupus Now is coming to Northern Florida in Jacksonville. Join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Oct. 18, 2014 10:00 am | Teleconference

Ask The Experts: Lupus and Disability

What you need to know to help with issues surrounding disability.

May. 01, 2015 12:00 am—May. 31, 2015 1:00 am

Lupus Awareness Month 2015

Take ACTION this May to raise awareness of lupus and end its brutal impact.

Oct. 17, 2015 | Wichita

Lupus Conference

Sep. 12, 2015 | Wichita

Walk to End Lupus NOW!

Apr. 12, 2015—Apr. 18, 2015 | St. Louis Kansas City

SPIRIT WEEK - WALK TO END LUPUS NOW

Advertise Your Spirit Week Walk Fundraising Events Here

Sep. 12, 2015 9:30 am | Seattle Center, Founder’s Court

Washington Walk to End Lupus Now™ 2015

Nov. 01, 2014 10:00 am | Online

Online Living with Lupus Support Group

Online support groups are moderated by trained facilitators and are offered several times a month in the chat room of our online community

Nov. 01, 2014 1:00 pm | Virginia Mason’s Volney Richmond Auditorium, Lindeman Pavilion

Advances in Lupus Research and Complementary Therapies

May. 01, 2014—May. 31, 2014

Lupus Awareness Month 2014

Take ACTION this May to raise awareness of lupus and end its brutal impact.

May. 01, 2015—May. 31, 2015 | Heartland Chapter

MAY IS - LUPUS AWARENESS MONTH!

May Lupus Awareness Month - Take Action Today!

Jun. 29, 2014 6:30 am—Jul. 29, 2014 2:00 pm | Stone Creek Golf Club

7th Annual “Links for Lupus” Golf Tournament

Apr. 26, 2014 7:00 pm | Scottish Rite Ballroom & Theater

Classical Ballet Academy’s DANCE COLLABORATIONS

May. 31, 2014 10:00 am | Washington, DC

Understanding Advocacy- How You Can Help!

Feel empowered to advocate for yourself on a social and political level to overcome healthcare barriers.

Sep. 13, 2014 9:00 am

Washington Walk To End Lupus Now

Help Us Solve The Cruel Mystery™

Apr. 24, 2014 6:00 pm | Maneeley's Banquet Hall

Mission: Impossible, Possible

In conjunction with WTIC CBS Radio, help us honor talk show host Jim Vicevich!

Mar. 26, 2015 8:30 am

2015 Lupus Awareness Day at the Georgia State Capitol

New Date, Same Mission! Click here for details

Jan. 30, 2014 5:00 pm | Town Hall

AWARE for ALL

Sep. 26, 2015 10:30 am

Oregon Walk to End Lupus Now™  2015

May. 31, 2014 1:00 pm | Asia Pacific Cultural Center

The Many Shades of Lupus

Join us in Tacoma for a multicultural event!

May. 16, 2014 6:30 pm | Pier 57, Seattle, WA

Put On Purple Day!

Join us in turning the Seattle Great Wheel PURPLE!

Jan. 16, 2014 12:00 pm

Georgia Perimeter College Lupus Forum

GPC College Forum
January 16th
Lunch and Learn - Register Today!

May. 18, 2014 9:00 am | West Hartford Town Hall Parking Lot

2014 West Hartford Walk to End Lupus Now!

Our 2014 West Hartford Walk to End Lupus Now will be taking place on Sunday, May 18th in West Hartford’s Blue Back Square!

May. 07, 2015 5:30 pm | LFA-Iowa Office

Des Moines Support Group

Dec. 01, 2013 9:00 am | John Wallace Middle School/Newington Dog Park

Huffing Off Stuffing 5k Race

Come out and support lupus awareness at this year's Huffing Off Stuffing 5k Race!

Nov. 10, 2012 | Mason Murer Art Gallery

2012 Night of Hope

Read about last year's spectacular event.

Feb. 13, 2013 9:00 am | Georgia State Capitol- Atlanta GA

2013 Lupus Awareness Day

Learn more about Lupus Awareness Day.