The National Institutes of Health (NIH) is one of the eight health-related agencies of the U.S. Public Health Services (PHS), which is part of the U.S. Department of Health and Human Services (HHS). The NIH mission is to uncover new knowledge that will lead to better health for everyone, as well as to reduce the burdens of illness and disability.
Participating in Clinical Trials
Clinical research is research that directly involves a particular person or group of people, or that examines humans in other ways, such as their behavior, or uses samples of their tissue. Clinical research in lupus can be broadly divided into two areas: testing new therapies, and expanding our understanding of different aspects of lupus.
A clinical trial is one type of clinical research that follows a pre-defined plan or protocol. By taking part in clinical trials, participants can play a more active role in their own health care. Most importantly, participating in clinical trials helps others by contributing to medical research.
There are dozens of lupus clinical trials in progress. Patient participation in these trials is essential to learning about the possible causes of lupus, testing promising new, safe and effective therapies, and ultimately, finding a cure for lupus.
The following resources are available to educate patients and health professionals about clinical studies in lupus.
Improving Minority Participation and Awareness of Clinical Trials for Lupus (IMPACT) is a one year grant from the Office of Minority Health to work with community partners to provide education and support about participation in lupus clinical trials to minority and disadvantaged populations.
The LFA has established the Center for Clinical Trials Education (CCTE) to provide information for anyone who may be interested in participating in a clinical trial of a potential new treatment for lupus. The website includes a search function that allows trials to be identified in specific geographic areas.
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research. ClinicalTrials.gov provides information about clinical trials and their purpose, as well as information about who may participate, study locations, and contact information for more details.
PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) is a patient-powered research network funded by PCORI. Read more.
IMPACT for Lupus encourages and supports clinical research participation among minority and/or disadvantaged populations impacted by lupus that are underrepresented in clinical research.