Learn About and Participate in Research and Clinical Trials

Lupus is a complex disease that affects people differently, which makes it hard for researchers to gather information and develop new research studies. Those living with lupus and their families and caregivers are essential to helping develop research and clinical trials that can advance understanding and treatment of lupus.

The following are some of the ways you can participate in and learn about research that matters to you.

 

Learn About and Search for Clinical Trials

The LFA has established the Center for Clinical Trials Education (CCTE) to provide information on participating in lupus clinical trials. The website allows you to search for trials in specific geographic areas. You can also search for lupus trials on clinicaltrials.gov.

 

The National Institutes of Health

The National Institutes of Health (NIH) is one of the eight health-related agencies of the U.S. Public Health Services (PHS), which is part of the U.S. Department of Health and Human Services (HHS). The NIH mission is to uncover new knowledge that will lead to better health for everyone, as well as to reduce the burdens of illness and disability.

Join a Patient-Powered Research Network

Learn how you can join PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), a patient-powered research network funded by PCORI.

Learn About IMPACT for Lupus

IMPACT for Lupus encourages and supports clinical research participation among minority and/or disadvantaged populations impacted by lupus that are underrepresented in clinical research.