Health Related Quality of Life Research
The impact of lupus on quality of life has not received adequate study, with the impact on children receiving even less attention. Throughout the course of their disease, people with lupus experience symptoms that affect every facet of life.
Despite the significant need to find new, safe, and effective ways to manage and treat the many disabling symptoms that affect quality of life for those with lupus, research funding has been extremely scarce. The Lupus Foundation of America is the only lupus advocacy organization in the United States with a robust research effort focused on quality of life specifically, and continues to break new ground by funding research to understand how lupus affects overall health and well-being in both children and adults. Learn more about LFA funded research on quality of life.