UNVEIL Survey for Individuals Living With Lupus

The survey is now closed, we will keep you posted with more news about results soon.

General Survey Information and Eligibility Criteria

This study is in the form of a survey designed to help us better understand your experience with lupus, including your symptoms and current treatment options. It will also help us better understand your experiences in getting, using and paying for healthcare for your lupus and the impact of the disease on your quality of life.

About 800 people with lupus across the United States will take part in this survey. If you are 18 years or older and have been formally diagnosed with systemic lupus erythematosus, you are eligible to participate.

This survey is focusing on adults who have been diagnosed with systemic lupus erythematosus. You are not eligible to participate if you only have lupus that affects your skin (cutaneous lupus/discoid lupus) because skin lupus or cutaneous lupus/discoid lupus impacts people in different (though equally important) ways than systemic lupus erythematosus. The Lupus Foundation of America also has information about lupus and information on opportunities to participate in lupus research.

Survey Details and Compensation

The survey will take approximately 45 minutes to complete. You will have 7 days to complete the survey from the time you select the survey link and agree to participate.

As a thank you for your time, participants will receive a $50 Visa gift card. You will only receive a gift card if you complete the entire survey. You will be asked to enter your mailing address at the end of the survey if you wish to receive this thank you gift. 

Survey Results and Confidentiality

All information you provide, including your name, email address, mailing address and your personal answers to the survey questions will be kept strictly confidential. ICON plc will not contact survey participants for any reason outside of this survey. If you have any questions please contact the study staff at 0219-0690@iconplc.com.

The results of this survey will be used to strengthen public support for the lupus community by giving people a better understanding of the everyday physical, emotional and financial challenges that lupus brings. The data will be shared with the public in different forms, including academic and clinical presentations, manuscripts and through press materials to ensure we bring your voice to a wide audience. Any form of public disclosure about the survey findings will not identify you or any other individuals who took part in this research.

Share your experiences today and help us better understand the challenges of living with lupus. The more we know about lupus, the better we can fight this devastating disease.

Do you know others living with lupus or caring for someone with the disease? We need to hear from them too. Please click on 'Share This Page' at the top right to help spread the word about the UNVEIL survey.

I want to participate. Take me to the survey! 


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