First-ever National Public Health Agenda for Lupus

The U.S. Centers for Disease Control and Prevention (CDC) funded the Lupus Foundation of America and the National Association of Chronic Disease Directors (NACDD) to develop a National Public Health Agenda for Lupus to help fight lupus and improve the quality of life for the people living with the disease.

This Agenda provides a broad public health approach to lupus diagnosis, disease management, treatment and research. The six priorities, and the associated strategies and recommendations, will guide the public health and lupus community to plan effective lupus initiatives, which will complement efforts in lupus biomedical research and clinical care.

Key Strategies for Lupus Recommended in the Agenda

  • Create better case definitions of lupus that are appropriate for clinical diagnosis, surveillance and research.
  • Expand epidemiology, surveillance and public health research for incidence, quality of care, adverse outcomes and mortality, with a high priority for those studying health disparities.
  • Develop, improve and increase the availability of evidence-based disease self-management programs and techniques.
  • Enhance local, regional and national capacity to provide information and resources for people with lupus, their families, friends and caregivers, providers, public health practitioners and researchers.
  • Support the development of robust care coordination models that facilitate collaboration between primary care providers and rheumatologists. This will help ensure people with lupus are diagnosed early and receive appropriate treatments, preventive health screenings and services and a smooth transition from pediatric to adult care.
  • Implement public awareness campaigns clearly illustrating the complexities of lupus and the importance of early identification and diagnosis and effective disease management.

Read the press release about the Capitol Hill briefing to release the Agenda

Download a PDF of the full National Public Health Agenda for Lupus report (8.3 mb)