Get Involved

The Pacific Northwest Regional Office would like to improve and expand programs, services, and events throughout our region.  Many areas of Oregon and Washington are currently underserved in terms of lupus education, support and advocacy.  In the months and  years ahead we will be working hard to correct this situation.

While LFA, PNW has strong support and guidance from our Washington D.C.-based national headquarters, with its cutting-edge educational materials and program designs; we are a grass-roots non-profit with only two full-time employees. To realize our dream of growth, we need more volunteers who can bring diverse talents to our organization.  Here is a list of ways to get involved, and help us realize the vision of a world without lupus.  Please join us.

 

Walk to End Lupus Now™ Event Planning Committee

Join us as we coordinate our largest fundraising and lupus awareness events!

*Most committees meet on a monthly basis.  Specific action steps will be defined for each member to complete with clearly defined deadlines.  Committee service for LFA, PNW will be enjoyable and rewarding.  Geography should not interfere with your participation, as members can be teleconferenced into meetings.

Event Support

Support LFA staff in producing high quality events. You can post event flyers in community spaces or encourage walkers at the Walk to End Lupus Now™ as an event volunteer.

Education Programs

Assist in organizing local community programs that will provide updates on developments in research, treatment, and coping with lupus. 

Lupus Advocacy

Reach out to representatives at the local and state level about issues involving the lupus community.  This includes coordinating letter writing campaigns, petitions, and face-to-face meetings with legislators and other government officials.

Outreach to Underserved Communities

Develop connections with underserved communities regarding the importance of early lupus diagnosis, consistent health care, good communication with health care providers, healthy nutrition, exercise, stress reduction, and other strategies that help people cope with lupus.

Support Group Facilitators

Support group facilitators fulfill a vital component of LFA, PNW’s mission to improve the quality of life for all people affected by lupus.  As a support group facilitator, you would help create a place for people with lupus to be themselves and come to terms with a diagnosis of lupus and the way their disease affects them as individuals.  You would also help disseminate information, including LFA educational materials and community resources. 

We‘d like to expand the number of our support groups offered throughout the Pacific Northwest region.  If you have lupus, or if a family member or friend has lupus, and you’re interested in being trained as a lupus support group facilitator, please contact us as soon as possible.  We are planning new training and refresher training sessions and would cherish the opportunity for you to join us.   

Opportunities for Professionals & People with Specific Skills:

• IT skills: regional website, social media
• Writers: grants, bimonthly newsletters
• Photographer, Graphic Designer
• Healthcare Professionals: speakers, presenters, mobile clinics, educational series 

Next Steps

If you are interested in any of these roles, or if you have a volunteer interest not listed above, please contact us to get started:
Toll Free: 1. 877. 774. 2992
Email: infopnw@lupus.org