Advocacy PNW

Lupus Advocacy and Education

The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases. Lupus strikes without warning and can have effects that last a lifetime. There is no known cause or cure of lupus, but there is hope.

On Saturday, November 1, 2014, from 1-4 pm, LFA, PNW is co-sponsoring an educational symposium about lupus, in partnership with Sisters Against Lupus.  This event will be held at Virginia Mason Medical Center in Seattle.  Please watch for more details.  

Educational Programs on lupus basics and research will be held during 2015 in Kirkland and Everett, WA, and in Portland, OR.

Advances in Lupus Researchtel.

Lupus Educational Symposium Held at Seattle’s Virginia Mason Medical Center

On November 1st, LFA, PNW teamed up with Sisters Against Lupus (SAL) to present “Advances in Lupus Research and Complementary Therapies.”  This program, sponsored by Benaroya Research Institute at Virginia Mason, and made possible through a grant from The Lucky Seven Foundation, drew about 60 attendees to listen to a stellar constellation of presenters:  Grant Hughes, MD, University of Washington, Anne Stevens, MD, PhD, Seattle Children’s Hospital and University of Washington, Karen Cerosaletti, PhD, Benaroya Research Institute, and Sanithia Parker, LMP and Health Coach.

Presenters shared cutting-edge findings from lupus investigations -- some occurring here in the Pacific Northwest -- and explained how people with lupus can help advance research through participation in biorespositories and clinical trials.  Sanithia Parker closed the program with a highly informative session on stress reduction, diet, and exercise, and how changes in behavior can significantly impact disease activity.  We are deeply grateful to our presenters for taking the time to advance lupus education, for volunteer Hannah Curtis’ efforts to help organize this program, to volunteers Ed Baldwin, Arone Budabin, and many others who made it such a great success.  Special kudos to James Kruger and Shelley Dudley for life streaming the symposium. 

If you’d to like to view it, click on this link: Video.

 

Understanding Lupus and New Treatment Frontiers

Highlight from 2013 Lupus Symposium - Jan Hillson, MD

Prescription Medication Discount Program
The Pacific Northwest Chapter of the Lupus Foundation of America is proud to offer you and your family access to the prescription medication discount program. This card will provide you with Rx medication savings of up to 75% at more than 56,000 pharmacies across the country including Safeway, Fred Meyer, Albertsons Sav-on, BI-MART, QFC, Kmart, Shopko, Target, Walgreens, Wal-Mart, and many more. Feel free to create as many cards as you need. We encourage you to give cards to friends and family members. To obtain a card in your respective state, please visit one of the following websites:
Oregon
Washington

Become a Lupus Activist

What does a Lupus Activist do?

A lupus activist engages in educating their federal, state, and locally elected officials about the cruel mystery of lupus.  Whether through a letter, email, phone call, or face-to-face meetings with elected officials, lupus activists are the vital voice on legislation and policies issues impacting people with lupus and their families.  An activist’s voice makes a difference.

Who can be a Lupus Activist?

Anyone who cares about lupus!  You don't have to be an expert in government affairs to share your knowledge and story about lupus.

How can I learn how to advocate?

The Lupus Foundation of America created the Legislative Action Center to help keep you informed. In the Legislative Action Center, you can:

Identify and write Members of Congress who represent you in Washington or Oregon.
• Read legislative alerts about new bills or upcoming votes.
• See how your Representative or Senators voted on critical lupus issues.
• Send emails or letters to your elected officials in Washington.