Advocacy PNW

Lupus Advocacy and Education

The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases. Lupus strikes without warning and can have effects that last a lifetime. There is no known cause or cure of lupus, but there is hope.

On Saturday, November 1, 2014, from 1-4 pm, LFA, PNW is co-sponsoring an educational symposium about lupus, in partnership with Sisters Against Lupus.  This event will be held at Virginia Mason Medical Center in Seattle.  Please watch for more details.  

Become a Lupus Activist

What does a Lupus Activist do?

A lupus activist engages in educating their federal, state, and locally elected officials about the cruel mystery of lupus.  Whether through a letter, email, phone call, or face-to-face meetings with elected officials, lupus activists are the vital voice on legislation and policies issues impacting people with lupus and their families.  An activist’s voice makes a difference.

Who can be a Lupus Activist?

Anyone who cares about lupus!  You don't have to be an expert in government affairs to share your knowledge and story about lupus.

How can I learn how to advocate?

The Lupus Foundation of America created the Legislative Action Center to help keep you informed. In the Legislative Action Center, you can:

Identify and write Members of Congress who represent you in Washington or Oregon.
• Read legislative alerts about new bills or upcoming votes.
• See how your Representative or Senators voted on critical lupus issues.
• Send emails or letters to your elected officials in Washington.