Advocacy PNW

Lupus Advocacy and Education

The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases. Lupus strikes without warning and can have effects that last a lifetime. There is no known cause or cure of lupus, but there is hope.

On Saturday, November 1, 2014, from 1-4 pm, LFA, PNW is co-sponsoring an educational symposium about lupus, in partnership with Sisters Against Lupus.  This event will be held at Virginia Mason Medical Center in Seattle.  Please watch for more details.  

 

Advances in Lupus Research
An Educational Symposium
Saturday, November 1, 2014
1 – 4 pm

Location: Virginia Mason’s Volney Richmond Auditorium,
Lindeman Pavilion
1201 Terry Avenue, Level 1
Seattle, WA 98101

FEATURING GUEST SPEAKERS:

Anne Stevens, MD, Seattle Children’s and the University of Washington

Grant Hughes, MD, University of Washington

Karen Cerosaletti, PhD, Benaroya Research Institute

Free and open to the public, but registration is required.

To register:  Call  LFA, PNW at 877-774-2992, or email  name(s) and contact information of attendees to info@lupuspnw.org   with Lupus Symposium in the subject  line.
Registration will be conducted on first come first served basis & space is limited.

Presented by the Lupus Foundation of America, Pacific Northwest Chapter (LFA, PNW) and Sisters Against Lupus (SAL), sponsored by the Benaroya Research Institute (BRI) at Virginia Mason Medical Center, and made possible through a grant from the Lucky Seven Foundation.


The symposium will include time for networking and complimentary refreshments.
Come join us and learn about groundbreaking lupus research being conducted in the Pacific Northwest!

Parking information:
Visa, MasterCard, checks and cash are accepted for payment at all locations.

Ninth Avenue Garage (1100-1123 Ninth Ave):
Enter from Ninth Avenue, across the street from the Buck Pavilion. This garage does not provide elevator access. 6'4" to 6'6" (lower level) clearance.
Days and times this garage is attended (otherwise, prepay at paybox):
Sunday through Saturday: Open 24 hours
Monday through Friday (attended): 6:30 a.m. to 8 p.m.
Saturday: 8 a.m. to 4 p.m.
Sunday: 8 a.m. to 4 p.m.


Lindeman Parking Garage (1201 Terry Ave):
Enter westbound from Seneca Street between Terry and Ninth avenues. This lot is located underneath the Lindeman Pavilion. There is elevator access directly into the Lindeman Pavilion from this garage. 6'2" to 6'8" clearance.
7 a.m - 9 p.m., seven days a week
 
Terry and University Parking Lot (1301 Terry Ave, outside surface lot):
Located northeast of Lindeman Pavilion. From Seneca Street take Terry Avenue (across from Hospital turn around) to the parking lot.
Days and times this lot is attended (otherwise, use electronic pay machine — on evenings and weekends):
Sunday through Saturday: Open 24 hours
 
Terry and Spring Lot:
Enter on Terry Avenue, between Spring Street and Madison Street, and across from Sorrento Hotel.

 

Become a Lupus Activist

What does a Lupus Activist do?

A lupus activist engages in educating their federal, state, and locally elected officials about the cruel mystery of lupus.  Whether through a letter, email, phone call, or face-to-face meetings with elected officials, lupus activists are the vital voice on legislation and policies issues impacting people with lupus and their families.  An activist’s voice makes a difference.

Who can be a Lupus Activist?

Anyone who cares about lupus!  You don't have to be an expert in government affairs to share your knowledge and story about lupus.

How can I learn how to advocate?

The Lupus Foundation of America created the Legislative Action Center to help keep you informed. In the Legislative Action Center, you can:

Identify and write Members of Congress who represent you in Washington or Oregon.
• Read legislative alerts about new bills or upcoming votes.
• See how your Representative or Senators voted on critical lupus issues.
• Send emails or letters to your elected officials in Washington.