A Message from CEO Celia Y. Weisman:
We’ve made some exciting changes at LFA, PNW in recent months. First, we’ve moved! At the end of December, the chapter left its small downtown headquarters with expensive parking for more spacious, yet affordable offices in Renton, WA. Our new address is 241 South 4th Suite D, Renton, WA 98057. Renton is just south of Seattle with easy access to all the major freeways, and our new place boasts free parking and a comfortable room for volunteers to gather and work. We do need to repaint and decorate, so if you’re interested in helping on those fronts, please let me know. And please take a look below at our “Wish List.”
Do come and visit soon. LFA, PNW is your chapter, and we sincerely hope that in 2014 more of you will become engaged in our chapter’s efforts. There is so much that is crying out to happen: we need more lupus awareness, more lupus education, and of course more research.
Please join me in stepping up our game this year so our chapter rises to help meet these needs.
The time has come for lupus to be a household word. Wouldn’t it be great if people outside the lupus community had a clue as to how difficult it is to live with lupus? Wouldn’t it be great if they understood lupus like folks understand cancer, or MS?
I recently marked my first anniversary as CEO of this chapter, and during the past 12 months I’ve heard countless stories of how people with lupus are consistently misunderstood, losing jobs and relationships, and still -- being told “it is all in your head.” Yes, there has been progress in research as well as promising advances in treatments, but I still heard of flares that pushed some of you to the edge of your tolerance, testing your capacity to endure despite unbearable pain and fatigue. And I have heard of too many young people dying from lupus, especially young women and men of color. That is why we must carry on this fight. And that is why as 2014 unfolds, I ask you to consider ramping up your involvement: we always need more volunteers to help plan and execute events, programs, fundraise, serve as support group facilitators, and help out in the office. Whatever you can give to our efforts will be deeply appreciated. And will make a big difference. The time for lupus activism and the emergence of a strong, united lupus community in the Pacific Northwest is here, now. Let’s make it happen. We can and we will.
WISH LIST FOR NEW OFFICES
- Office chairs
- Filing cabinets
- Desk-top computer(s)
- Small shelf for our cute little bathroom
- Some people who know how to patch and paint and are willing to work for chocolate, hugs and our cause
LFA, PNW seeks to help people who are affected by lupus. We also work hard at raising funds to support research leading to its cure or cause.
Mission: The Lupus Foundation of America, Pacific Northwest Chapter (LFA, PNW) is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, and advocacy.
Vision: LFA, PNW envisions a world without lupus. Our Chapter will advance the science and medicine of lupus to find a cure and improve the quality of life for all people affected by lupus.
LFA, PNW is affiliated with the national offices of the Lupus Foundation of America, based in Washington, D.C. We are a 501(3)c non-profit residing in the state of Washington, and serving Washington and Oregon.
How LFA, PNW Works:
We recognize that lupus is a complex disease that requires a comprehensive strategy. Our programs and services all have a common purpose: To improve the quality of life for all people affected by lupus, and their loved ones. Here are our primary organizational functions:
We raise money to support research through the Lupus Foundation of America’s National Research program, Bringing Down the Barriers™, which seeks answers to advance the science and medicine of lupus. Our national research program leads special initiatives, fund outstanding scientists and researchers at leading universities across the nation, and advocates for expanded investment.
Education & Support Services
We answer questions about lupus, sponsor free support groups, disseminate knowledge about the disease, and provide information about doctors who treat lupus.
We share stories of those who are surviving and thriving with lupus, as well as those who have lost their lives to this disease. By doing so, we broaden lupus awareness, bring greater attention to the disease, and rally public support to join the fight to end lupus.
We advocate on behalf of people with lupus, their families, and the health professionals who care for them. We educate government officials and industry leaders on the urgent need to expand public and private investment in lupus research, education and support.
Celia Y. Weisman, Chief Executive Officer
Board of Directors Officers:
Board of Directors Members:
Nila Tyrell, Administrative and Program Coordinator
Jan Hillson, MD, Medical Liasion
Website Development Group:
Dina Nichols, Webmaster
Celia Y. Weisman
Lupus Foundation of America, Pacific Northwest Chapter, Inc.
241 S. 4th Pl
Renton, WA 98057
Disclaimer: Information provided on this site is for informational purposes only and is not a substitute for professional medical advice. Only your health care provider should diagnose your health problems and prescribe treatment.