May. 13, 2013

Cincinnati Residents Rally Public Support for the Walk To End Lupus Now

Hundreds of Cincinnati Residents Rally Public Support to Help End One of the World’s Most Mysterious and Devastating Diseases

America’s largest lupus walk program raises funds for lupus research and education programs in the Cincinnati area

CINCINNATI, OH (May, 2013)-- More than 600 Cincinnati residents joined the Lupus Foundation of America, Greater Ohio Chapter’s Walk to End Lupus Now™ event to raise money for lupus research and education programs, increase awareness of the devastating autoimmune disease, and rally public support for those who suffer from its brutal impact.  The Cincinnati event is part of America’s largest lupus walk program, which is conducted each year by the Lupus Foundation of America and its national network of chapters, offices and support groups. 

“I walked because I been living with lupus for more than 3 years.  I fight each day to manage my lupus, while living though the complexities and the unpredictable effects of this misunderstood disease,” explains Sheila Pogue-Krabacher, one of the top fundraisers at the event. “We need more awareness, we need more research and we need a cure.  We need everyone’s help to solve the cruel mystery of lupus in our lifetime and end its devastating impact on millions of lives – we can’t do it alone.” 

Councilmember Yvette Simpson was the guest emcee for the event, which was crowded with people wearing the Lupus Foundation of America’s signature color of purple. She spoke to the passionate crowd with words of hope and support, encouraging them to continue fighting until a cause and a cure are found.

“The Walk To End Lupus Now event in Cincinnati enables the community to join their voices in the fight to end lupus,” adds Suzanne Tierney, President and CEO of the Lupus Foundation of America, Greater Ohio Chapter. “Lupus is debilitating and destructive and can be fatal, yet research on lupus has not kept pace with research for other diseases of similar scope and devastation.  We are so pleased to see so many walkers out this year who have come together to raise money for lupus research and education.  The Walk to End Lupus Now event is truly an inspiring show of strength in the battle against lupus.”

The Lupus Foundation of America is working continuously in Cincinnati and around the world to help solve the cruel mystery of lupus.  The Foundation has many programs that take place throughout the area, and will host its next education program, its New Patient Education class, at Hoxworth Medical Center on May 28 at 10:30am.  This is an opportunity for newly diagnosed lupus patients and their families to learn about lupus and how to live well with the disease.

Lupus ravages different parts of the body.  It is difficult to diagnose, hard to live with and a challenge to treat.  Lupus is a cruel mystery because it is hidden from view and undefined, has a range of symptoms, strikes without warning, and has no known cause and no known cure.  According to a recent independent survey released by the Lupus Foundation of America, 72 percent of  Americans between the ages of 18 and 34 have either not heard about lupus at all or know little or nothing about the disease beyond the name.  The statistic is particularly troubling because this is the age group at greatest risk for the disease, and it emphasizes why Walk to End Lupus Now events are so crucial to raising awareness of lupus.

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