Apr. 10, 2017

The Walk to End Lupus Now Commemorates 10 Years in New York City

New York City, NY – (April 10, 2017) – Today, the Lupus Foundation of America announces the 10th Annual Walk to End Lupus Now® in New York City, which has grown to become a powerful movement in the fight to end lupus.

“For 10 years, the community has come together to raise awareness for this devastating disease and support the search for treatments and cures.  I am proud of what has been accomplished but am keenly aware of how much work still lies ahead,” Sue Gloor, Regional Director, Lupus Foundation of America, Northeast Region.

Four of the founding members have worked on the New York City Walk Planning Committee every year:  Fran Tsimoyianis from Queens, NY, captain of Team Alex; Lynnore Thames from Brooklyn, NY, captain of Lynnore’s Brooklyn Walkers; Rasheda Thomas from Brewster, NY, captain of Indigo Blu; and Sara Katz from Bedford, NY, captain of Team Michael.

“The event allows me to connect with the larger community of people whose lives are impacted by lupus so that I can improve my overall quality of living, develop connections with others living with lupus, and be of assistance to those who need greater support than me,” said Lynnore Thames, Captain of Lynnore’s Brooklyn Walkers.

Each year, thousands of participants organize teams to walk in the event and raise funds, their reasons for participating vary but they share a common bond in the fight to end lupus.

“I support the Lupus Foundation of America in honor of my brother Michael Barlin who died from this terrible disease in 2006 – he was very sick for ten years, and it affected him terribly,” said Sara Katz, Captain of Team Michael. “Every dollar that Team Michael raises goes toward the Michael Jon Barlin Pediatric Research Fund, which focuses on pediatric research to find a cure.”

Since 2008, participants have raised more than $3.25 million and walked a combined total of nearly 100,000 miles to fund education and support programs, advocacy initiatives, and research to improve the quality of life for those living with lupus. This year, the goal is to top the $4 million mark thru individual donations and corporate sponsorships.

The Walk to End Lupus Now™ New York City takes place on Saturday, May 6th. The festivities begin at 8:30 a.m. with the walk scheduled to start at 10:00 a.m. The walk begins and ends at the historic Seaport District located at 19 Fulton Street. Currently, more than 6,000 participants and spectators are expected to attend.

Lupus has no known cause and no known cure. Despite its widespread prevalence, lupus research funding and awareness of its brutal impact remain low. Together, we can change that.

You can learn more about education events and support groups in New York by visiting lupus.org/northeast. Every dollar raised at the Walk to End Lupus Now brings us one step closer to solving the cruel mystery of this disease. To register for the walk, learn more or to make a donation, visit walktoendlupusnow.org/newyork. Join the Lupus Foundation of America and discover your power at the Walk to End Lupus Now!

We would like to acknowledge our generous sponsors including Saks Fifth Avenue; Aureus, a Meijer Specialty Pharmacy; and the Seaport District.

Want to know what it’s like to attend a Walk event? Watch now: https://youtu.be/epwdMP3aW1o

About Lupus
Lupus is an unpredictable and misunderstood autoimmune disease that ravages different parts of the body.  It is difficult to diagnose, hard to live with and a challenge to treat. Lupus is a cruel mystery because it is hidden from view and undefined, has a range of symptoms, strikes without warning, and has no known cause and no known cure. Its health effects can range from a skin rash to a heart attack. Lupus is debilitating and destructive and can be fatal, yet research on lupus remains underfunded relative to diseases of similar scope and devastation.
           
About the Lupus Foundation of America
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus. Learn more about the Lupus Foundation of America at lupus.org. For the latest news and updates, follow us on Facebook.

Contact:
Sue Gloor
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917-608-5393