Oct. 25, 2014 9:00 am | Raleigh Marriott Crabtree Valley

14th Annual NC Lupus Summit

Discovering Hope Through Creativity

Saturday, October 25, 2014

Raleigh Marriott Crabtree Valley
4500 Marriott Drive
Raleigh, NC 27612

Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus.  The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to solving the cruel mystery of lupus. This year's event will highlight the talent and creativity of those living beyond their diagnosis.

What's Your Creative Outlet?
We are doing something NEW this year and we hope that you will be a part of it!  In keeping with our theme, Discovering Hope Through Creativity, we are looking to showcase individuals living with lupus in NC who have found a way to live beyond their diagnosis with the help of a specific creative outlet.  Whether your creative outlet is poetry (written or spoken), singing, art, scrap-booking, dance, photography, acting, playing a musical instrument, or some other craft, talent, or passion, we'd love to know about it.  Selected submissions will be shared at this year's summit.  For more information on how to submit your entry, click here.

Event Schedule

9:00am - 9:45am         Check-in and Exhibit Browsing
9:15am - 9:45am         Gentle Morning Yoga with You Call This Yoga
10:00am - 11:00am     Opening Session: Keynote Address
11:15am - 12:15pm     Morning Session Workshops
12:30pm - 1:30pm       Lunch Session
1:45pm - 2:45pm         Afternoon Session Workshops
3:00pm - 3:30pm         Closing Session

Session Topics

Keynote Address: "Will the New Biologic Treatments Make a Difference?"

Presenter: Dr. Joan T. Merrill, Medical Director, Lupus Foundation of America

Joan T. Merrill, MD, is Head of the Clinical Pharmacology Research Program at the Oklahoma Medical Research Foundation (OMRF), OMRF Professor of Medicine and Adjunct Professor of Pharmacy at the University of Oklahoma Health Sciences Center. She is the Medical Director of the Lupus Foundation of America and is an active member of the Systemic Lupus International Collaborating Clinics and the Lupus Clinical Trials Consortium. She is the Principal Investigator of the Oklahoma Lupus Cohort which includes more than 500 patients with lupus who have donated serial blood samples and clinical information over the past decade. She has been the Principal Investigator of a number of clinical trials studying new treatments for lupus, with a research focus on understanding the individual biology of a patient in order to optimize treatment selection and dosing strategies.  She has more than 150 publications.

Pre-Session Yoga

Instructor: Dr. Howie Shareff, You Call This Yoga

Join Howie, a certified Chair Yoga Instructor, in a gentle morning yoga session to kick off the day before the opening session begins.  Participants can expect to experience a gentle, deep, inner exploration into yoga movements and breathing exercises.

Morning Sessions

Session 1A: LUPUS 101

Presenter: Dr. Jennifer Rogers - UNC-Thurston Arthritis Research Center

This session is designed for both the newly diagnosed patient and anyone needing a refresher in the basics.  Learn about current, medically accurate information on lupus, its symptoms, treatments and coping techniques.

Session 1B: LUPUS AND INTIMACY

Presenter: Diane Parks, NP - The Woman's Well

A chronic disease affects both partners in a relationship in many ways, but rarely is intimacy on the list of topics discussed either at the doctor's office or at home.  Having an exhausting and painful chronic illness such as lupus makes it all the more challenging, yet important, to communicate.

Session 1C: LUPUS AND THE GASTROINTESTINAL SYSTEM

Presenter: Dr. Mary Anne Dooley, Professor of Medicine, UNC Kidney Center

This session will be video recorded.

People with lupus may experience problems in any area of the GI system, including the surrounding organs such as the liver, pancreas, bile ducts, and gallbladder.  Not all of these problems will be directly related to lupus disease activity; some may be traced to side effects of medication you take or other diseases that may be present. Learn more during this session.

Session 1D: FINANCIAL EMPOWERMENT - PLANNING FOR YOUR FUTURE

Presenter: Marsha Barnes, Certified Financial Education Instructor

No one living with lupus can absolutely predict what lies ahead but doing your best to plan for the future can empower and protect you and those you love. Learn how to get started on creating your own financial plan and key components of managing expenses with a chronic illness.

Afternoon Sessions

Session 2A: LUPUS AND THE SKIN

Presenter: Dr. Adela Rambi G. Cardones - Duke Dermatology

Two-thirds of individuals with lupus will develop some type of skin disease. This session will focus on the environmental effects, symptoms, prevention methods, and treatment associated with lupus and the skin and other skin-related issues.

Session 2B: PATIENT-CAREGIVER COMMUNICATION

Presenter: Debra Eng, MSW, LCSW, LCAS

We know that effective communication between patients and caregivers leads to better health outcomes. You can significantly improve your relationship with your caregiver if you view the relationship as a partnership in which you and your family members are active participants. Learn about the importance of effective communication and how to value your relationships in this session.

Session 2C: COMPLEMENTARY AND ALTERNATIVE TREATMENTS

Presenter: Dr. Evangeline Lausier - Duke Integrative Medicine Center

This session will be video recorded.

In addition to medications and traditional medical care from doctors, there is an increased interest in other healing practices to try to improve overall health. These diverse therapies -- used either with conventional medicine (complementary) or instead of conventional medicine (alternative) -- include homeopathy, chiropractic, naturopathy, massage therapy, meditation, and supplements. Learn more about scientific research regarding specific types of complementary and alternative medicine in this session.

Session 2D: CREATIVE OUTLETS

Panel Presentation

Many people find that expressing themselves through a creative outlet such as writing, art, or music, helps them feel better, especially if they are living with a chronic illness.  Hear from a panel of thrivers whom have each found their own unique way of coping with lupus.

Overnight Accommodations

Raleigh Marriott Crabtree Valley
4500 Marriott Drive
Raleigh, NC 27612
919-781-7000

Special Room Rate: $99/night (single or double rooms)
Special Room Rate Deadline: Monday, October 13, 2014
Online Reservations: Click Here
Call-in Hotel Reservations: Call 1-888-236-2427 (Ask for the "Lupus Foundation of America" Rate)
NOTE: If you have any difficulty booking your room at the rate above, please contact Kristin Mart at 877-849-8271, ext. 1 or kristin.mart@lupusnc.org.


Disclaimer: The Lupus Foundation of America, North Carolina Chapter is proud to be a source of information about lupus. Our comments are based on professional advice, published experience and expert opinion, but do not represent individual therapeutic recommendation or prescription. For specific information and advice, please consult your physician.


The 14th Annual NC Lupus Summit is proudly sponsored by:

BRONZE SPONSOR

Duke Integrative Medicine

Confirmed Exhibitors:

Registration is required by Oct. 17, 2014.

Address:

4500 Marriott Drive
Raleigh, NC 27612

More information

Phone: 877-849-8271

Cost: $15