LFA-REAL System to Improve Health and Quality of Life
Currently, there are no adequate measures or tools designed to quickly and easily help a doctor and patient work together to evaluate lupus disease activity and make informed treatment decisions. This has serious implications for the care of people with lupus; moreover, the changing face of healthcare delivery makes the situation even more complex. The LFA-REAL™ (Rapid Evaluation of Activity in Lupus) system is being developed as a first-of-its-kind set of tools to monitor lupus disease activity, addressing both the needs and concerns of clinicians and people with lupus.
What is LFA-REAL?
For more information, see LFA, Inc.'s information about LFA-REAL.
It's about your health. Presently, there is no cure for lupus, and no single test to diagnose the disease. If you are one of the 1.5 million people in the United States living with lupus today, finding new, safer and more tolerable treatments is important to you.
Advances in medical research may improve your future. Clinical trials evaluate the safety and effectiveness of new drug treatments. Today, more than 20 investigational drugs are in various phases of research to determine their effectiveness in people with lupus.
Through interventional studies, volunteers receive a specific treatment and their outcomes are measured to assess any changes in their health status. All research studies are important to help improve the quality of life for people living with lupus.
Learn about ways you can get involved and help make new treatments for lupus a reality through participation in clinical trials. Choosing whether to participate in a clinical trial is an important decision. In addition to gathering information about the research conducted, talk to your medical team along with a family member or friend before choosing to join a trial. If joining a trial is right for you, the next step is to identify opportunities in your local area.
At the Center for Clinical Trials Education you will find:
-Points to consider before participating in a clinical trial
-A comprehensive search tool for clinical trials
-The Foundation's Lupus Research Registry, a tool designed to notify you about clinical trials in your area
-A guide to clinical research terms
-The latest news on lupus and clinical research terms
How you can get involved:
Consider participating as a volunteer in a clinical research study
Join the Lupus Research Registry by visiting lupus.org/clinical trials/registry
"Lupus Foundation of America Center for Clinical Trials Education" brochure