Mar. 08, 2016

News

General News Stories · MARCH 2017

Lupus Link E-Newsletter

Calendar  of Upcoming Events

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Voclosporin Achieves High Rate of

Complete Remission in Lupus Nephritis

Find out more

Aurinia Pharmaceuticals has announced top line results from a Phase 2b clinical study

of voclosporin for the treatment of lupus nephritis. In this study, nearly half of lupus

nephritis patients treated with a low dose of voclosporin, along with standard of care,

achieved complete remission after 48 weeks of treatment.

Sandra C. Raymond, president & CEO of the Lupus Foundation of America,

said the results are a welcomed development in lupus research.

“This is exciting news for this very serious form of lupus and these results

are very encouraging. As many as 40 percent of all people with lupus, and as

many as two-thirds of all children with the lupus, will go on to develop

lupus-related kidney disease. Having an effective treatment with fewer side

effects and long-term health risks will greatly improve the quality of life for people with lupus.

We eagerly look forward to implementation of a Phase 3 study,

which is expected to begin during the second quarter of 2017.”

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CALENDAR OF EVENTS

March 14th
Lupus Awareness Night at the NJ Devils
NJ Performance Arts Center (NJPAC),
Newark, NJ

March 19, 2017
Walk To End Lupus Now™
Montclair University

May 13, 2017
Annual Meeting
Springfield Public Library
Springfield, NJ

April 30th, 2017
Walk To End Lupus Now™
Morris County College

June 11, 2017
Walk to End Lupus Now™
Veterans Park, Hamilton Township, NJ

July 8, 2017
Lupus Foundation of America, New Jersey Chapter, Inc.
Fashion Show & Dinner

October  22, 2017
Walk To End Lupus Now™
Nomahegan Park, Cranford, NJ

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November 29, 2016

#Givingtuesday

This is an annual event to help promote the mission and give back

for  the Lupus Foundation of America, New Jersey Chapter, Inc.

The goal of this event is to help raise awareness and funds to

support the foundation to improving the quality of life for

those affected by lupus through programs of education and

support, advocacy and research.

Help the foundation in our mission and support the cause!

Visit #givingtuesday or for more information

or click on the donate now button.

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Lupus Health, and Awareness 2016

The Lupus Foundation of America, New Jersey Chapter, Inc.  is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, support and advocacy.  The foundation supports its mission through attendance at health fairs, speaking engagements, seminars, awareness events, and fundraisers.

A health fair is usually hosted by a local town, city, religious or civic groups,  or public entities  that allow organizations such as the foundation to participate by informing the general public about a particular condition, such as lupus.   This year the LFA, New Jersey Chapter, Inc. has attended approximately 17 health fairs at community colleges in Middlesex and Morris Counties,  and in addition we were in Somerset, Essex, Hudson, Union, and  Mercer Counties.

Speaking engagements are at private events held by a group of people interested in hearing more about lupus and how the Foundation educates, supports, advocates, and helps fund research on lupus.
The foundation has spoken at 6 functions, showing a film, and engaging the audience in awareness of the condition and what the foundation does that benefits people affected by lupus.  We have spoken before the Mason's in Newark, a lupus gala at Kean College, the Beulah Grove Baptist Church and the Center for Hope for Women and Girls in Newark.  We also spoke in West Orange at a private event, and the Morning Star Community Christian Center in Linden.  We spoke to approximately 600 people at these events.  We also, every year, speak at the Somerset Patriots ballpark, and are interviewed on their radio station.  We reach about 4000 people at the ballpark and their listening audience on the radio.

A seminar is an educational event that the Foundation sponsors informing people affected by lupus and the public about a specific topic within lupus, such as nutrition, stress relief, and exercise.  The Foundation has held approximately three educational events about lupus in the past year and scheduled another two or three, with topics ranging from nutrition, to stress relief,  to coping with the condition of lupus, to new therapy modalities.  Drs. Ammit Saxena and Olga Zhdanova spoke on Lupus Nephritis and what are the current treatments and what are the new treatments in clinical trials in Union, NJ.  We also hosted Healthy Eating with Chef Nikko  in Little Falls, NJ.  At our annual meeting Dr. Doruk Erkan spoke on managing lupus and Antiphospholipid Syndrome.   We maintained a lupus booth along with the Philadelphia Tri-State Chapter, at the NJEA Convention in Atlantic City where over 30,000 people attended.  Lupus Foundation was the featured charitable organization at this convention.

An awareness event and fundraiser is generally just that, and event that is sponsored by the Foundation, generally open to the public, and it is meant to be a social event where people affected by lupus and the public at large are made aware of what lupus is, how the Foundation helps, and what they can do to help people affected by the condition of lupus.  It is also how the Lupus Foundation of America, New Jersey Chapter, Inc.  raises the funds which keep the "doors open".    We have held over ten events in the past year to promote lupus awareness and raise money to support the foundation,  such as the two Fashion Shows and Beefsteak , which are very popular, the evening at the Somerset Patriots baseball game and a night with the New Jersey Devils at the Prudential Center.

NIH Releases A Plan to Expedite Lupus Treatments and Cures Action Plan for Lupus Research

Research Findings Provide Evidence of Progress and Hope For Improved Quality of Life

First-ever National Lupus Public Health Agenda Provides Roadmap to Improving Care and Treatment

Key Public Health Strategies for Lupus

Podcast

Ask the Experts - Social Security Disability & SSI Benefits for Those with Lupus

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