Support and Services

Lone Star Chapter Support & Services

  • Lupus Now Magazine - distributed 3 times a year to donors and members. Become a member today - download form at bottom of page
  • Chapter Newsletter - issued monthly.  To subscribe to the LFA, Lone Star Chapter "Lupus News" Newsletter, please send an email to info@lupuslonestar.org
  • Physician Referral List - download list needed at bottom of this page
  • Support Groups - free to lupus patients, their families and friends download list at bottom of page
  • Community Resources for People with Lupus - List of local resources at bottom of page
  • Lupus Literature - Please send an email to info@lupuslonestar.org to receive further information on specific type of lupus, local programs, on-going clinical trials, and current activities.
  • Teleconference/Webinar Series - Educational teleconference program on a variety of topics designed to link you with current information about living with lupus. Learn from the comfort of your home.

Lupus: Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.

View the list of National Webcasts.

Listen to previously recorded teleconference from Winter/Spring 2014 and 2013


Summer/Fall Teleconferences


Lupus and the Skin
July 9, 2014
6:00 pm – 7:00 pm CST

Speaker: Dr. Frank Santoro, Assistant Professor of Dermatology at the University of Connecticut Health Center

Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.

Register Now


Lupus and Depression
August 7, 2014
6:30 - 7:30 pm CST

Speaker: Beatrice Lazaroff, Ph.D.

Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus.  These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills.  When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.

Register Now


Nutrition and Rheumatic Diseases
September 4, 2014
6:00 - 7:00 pm

Speaker:  Dr. Roxanne Sukol, Cleveland Clinic

Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.

Register Now


Lupus and Disability
October 18, 2014
9:00 - 10:00 am CST

Speaker:  Lisa Gonzales-Goetz

This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.

Register Now


Lupus and Stress
November 13, 2014
6:00 pm – 7:00 pm CST

Speaker:  Cindy Coney

Physical and emotional stresses are among the suspected triggers for a lupus flare.  People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.

Register Now

This Ask The Experts series is offered as a free service of the Lupus Foundation of America, Georgia Chapter. All costs of services for patients and families are underwritten by the fundraising efforts of the Georgia Chapter, including the Walk to End Lupus Now™.


WEBCASTS

Presentations are available online. You may submit a question to the expert through the 15th of each topic month and answers will be posted the following month.

Pregnancy and Lupus
July
Presenter: Dr. Jorge Sanchez Guerrero

Dealing with Holiday Stress
October
Presenter: Cindy Coney

Living Well with Lupus
December
Presenter: TBA

For more information on webcasts, Click Here.

Prior Teleconference Recordings

February 26, 2014 - Lupus and Intimacy

Lupus and Intimacy - 02.26.14
Speaker: Lisa Covington, MSW, LCSW-C

Intimacy is important in any relationship, and is necessary in order to gain trust and understanding among one another. Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.

Download the presentation (PDF)

April 12, 2014 - Lupus and Men

Lupus and Men - 04.12.14
Speaker:  Dr. Joseph Shanahan, Shanahan Rheumatology & Immunotherapy

A lot of misinformation exists about lupus—including the incorrect belief that lupus only occurs in women.  While there are many similarities on how the disease affects men and women, there are some key differences on lupus affects men.   Learn about the unique effects of lupus on males living with the disease.

Download Dr. Shanahan's presentation

April 22, 2014 - Clinical Trial Education

Clinical Trial Education - 04.22.14
Speakers: Karen Obmaces – President of Accurate Clinical Research
               Linda Willies – Clinical Trial Participant for more than 7 years

This teleconference will cover understanding how clinical trials work, frequently asked questions surrounding qualifying to be a participant, and the safety once enrolled.

Download Karen Obmaces presentation

Download Linda Willies presentation

May 1, 2014- Living With Lupus: An Insider's Perspective

Living with Lupus: An Insider's Perspective - 05.01.14
Speaker:  Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus

Because lupus is a mysterious and complex disease, a diagnosis can be quite scary.  However, there may also be a measure of relief in being able to put a name to what may have been years of debilitating symptoms and misdiagnoses.  Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.  As a Board Certified Internist, our speaker brings professional expertise along with her personal perspective as an individual living with lupus herself.

Download Dr. Pamela Turnbo Thorpe's presentation

Download the Support Group Information:

 

May 8, 2014- Vivir con Lupus

Vivir con Lupus - 05.08.14
Speaker:  Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.

Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar.  Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.

Download Dr. Leyka Barbosa's presentation

 

Lupus and the Skin - 7.9.14
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center

Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.

Download Dr. Santoro's Presentation (PDF)

Lupus and Depression - 8.7.14
Speaker: Beatrice Lazaroff, Ph.D.

Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.

Download Beatrice Lazaroff's Presentation (PDF)