Support and Services

Lone Star Chapter Support & Services

  • Lupus Now Magazine - distributed 3 times a year to donors and members. Become a member today - download form at bottom of page
  • Chapter Newsletter - issued monthly.  To subscribe to the LFA, Lone Star Chapter "Lupus News" Newsletter, please send an email to info@lupuslonestar.org
  • Physician Referral List - download list needed at bottom of this page
  • Support Groups - free to lupus patients, their families and friends download list at bottom of page
  • Community Resources for People with Lupus - List of local resources at bottom of page
  • Lupus Literature - Please send an email to info@lupuslonestar.org to receive further information on specific type of lupus, local programs, on-going clinical trials, and current activities.
  • Teleconference/Webinar Series - Educational teleconference program on a variety of topics designed to link you with current information about living with lupus. Learn from the comfort of your home.

Lupus: Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.

View the list of National Webcasts.

Listen to previously recorded teleconference


Spring/Summer Teleconference


Disability and Returning to the Workplace

Tuesday, March 31, 2015 from 6:00 pm to 7:00 pm

Register Here

Lupus and the Eyes

April 8, 2015
6:00 pm – 7:00 pm CST
Speaker: Ricardo N. Sepulveda, M.D.
Register Here

Living Well with Lupus

May 13, 2015
6:00 pm – 7:00 pm CST
Spaker: Donald Thomas, M.D., FACP, FACR, CCD
Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.
Register Here

Lupus and Hair Loss

June 24, 2015
6:00 pm – 7:00 pm CST
Speaker: Angela Kyei, M.D.
Register Here

Lupus and the Skin

July 14, 2015
6:00 pm – 7:00 pm CST
Speaker: Frank Santoro, M.D.
Register Here

Lupus and Female Issues: From Puberty to Menopause

August 13, 2015
6:00pm – 7:00 pm CST
Speaker: Dr. Amber R. Cooper
Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.
Register Here

Coping with Lupus

September 29, 2015
6:00 pm – 7:00 pm CST
Speaker: Robert H. Phillips, Ph.D.
When you’re first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.
Register Here


WEBCASTS

Presentations are available online. You may submit a question to the expert through the 15th of each topic month and answers will be posted the following month.

Understanding & Managing the Stress of Caregiving
March
Presenter: Sharon Mack

Antiphospholipid Syndrome and Lupus Anticoagulants
May
Presenter: TBA

Lupus Diagnosis (2 Presentations; one in English and one in Spanish)
July
Presenter: TBA

Children and Lupus (2 presentations; one in English and one in Spanish
September
Presenter: TBA

Legal Issues: Social Security and Lupus
November
Presenter: TBA

For more information on webcasts, Click Here.


2015 Prior Teleconferences

The Lupus-Heart Connection

February 24, 2015
6:00 pm – 7:00 pm CST
Speaker:  Joan M. VonFeldt, M.D., MSEd.

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.

Download the PDF Presentation

Listen to the Recording:


Disability and Returning to the Workplace

March 31, 2015
7:00 pm – 8:00 pm EST
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc. and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.  

Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.

Download the PDF Presentation

Lupus Infographic PDF

Listen to the Recording: