This series – Sharing the Journey – is by you and for you. In your own words, we highlight the perspectives and personal experiences of people who struggle with lupus each day.
Reports that Toni Braxton was hospitalized for complications from lupus are a reminder that people with lupus experience disease flares that can be triggered by environmental factors like stress or exhaustion.
The Foundation’s efforts have stimulated advances in lupus research that have provided insight into the underlying causes of lupus and its progression, and created unprecedented opportunities to expand the future knowledge base for the disease.
It was a few days before Thanksgiving 1997, when I was babysitting and I collapsed in the bathroom, hitting my head on the sink.
I know me, I know my body, I know my limits, and I am my best advocate. I still love to swim and bike, love being out on a boat. However, everything that I do has to be in moderation.
Sitting in the luminous room on the awkward paper covered bed staring at posters that demonstrate the body or a disease while waiting for the doctor to return with results.
I hope that someday, the researchers find a cure and find new drugs not just for me but for everyone in the world.
I was diagnosed with lupus in 5th grade. I was walking home until I couldn’t walk anymore. My parents took me to the hospital that night. I was a healthy kid.