Information & Resources
The Lupus Foundation of America, Heartland Chapter provides information and resources on lupus related topics such as:
New Patient Information
For new patients and other interested parties we offer a packet of useful information pertaining to living and coping with the disease. Please contact the LFA Heartland office at (314) 644-2222 and we will happily mail you a copy.
We offer a variety of print materials and brochures, all of which can be attained by contacting the LFA Heartland office:
- Understanding Lupus
- Diagnosing Lupus
- Treating Lupus
- Coping with Lupus
- Living with Lupus
- Lupus and the Musculoskeletal System
- Lupus and the Skin
- Lupus and the Renal System
- Lupus and the Cardiopulmonary System
- Lupus and the Gastrointestinal System
- Additional Topics Available
The Heartland Chapter also has a Lending Library that which allows certain books and other media to be temporarily checked out to individuals. Contact the Heartland Chapter for more information.
Lupus: Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home. Participate in several or just the one that most interests you.
Behind the Mask Conferences
Every year the LFA Heartland Chapter holds two educational conferences. The Behind the Mask Conferences are educational opportunities geared towards those affected by lupus and health care professionals. These conferences revolve around new research, new treatments, coping skills, pain & disease management, and lupus diagnosis. The participants learn from a panel of experts that, although lupus is a life threatening disease, quality of life and longevity can be attainable for a person living with lupus.
Living Well with Lupus Workshop Series
Having lupus can make the demands of everyday life challenging. This free four part educational series is designed to help people living with lupus and their loved ones find the support and information they need to live well with lupus. Our series focuses on coping, care giving, pain management, and a session for the newly diagnosed. Attend the entire series or just the ones that interest you most.
Join the Lupus Research Registry
The LFA has created a registry to deliver information on specific clinical trials that may be appropriate for you. Please click here to join the registry and the LFA will keep your information confidential. The LFA will periodically provide you with information regarding opportunities available in your area that may be of interest to you.
Remember: This is your health, and your future. You can get involved by learning more about participating in clinical trials.
As part of the LFA's efforts to Bring Down the Barriers to discovery of more effective and tolerable treatments for lupus, the LFA is working through its Center for Clinical Trials Education and Lupus Research Registry to distribute information about clinical research studies currently seeking volunteers.
The ADDRESS II Study is evaluating the safety and efficacy of an investigational drug for lupus (systemic lupus erythematosus; SLE). The investigational drug is being given with your other lupus medications and acts on certain cells in your immune system known as B cells, which are believed to play an important role in the cause of lupus. The investigational drug, Atacicept, is given as a weekly injection under the skin, which can be done at home.
The goal is to provide a new option for lupus treatment that reduces lupus symptoms and the need for other lupus medications. Click here for details.