When I started having problems, my grandma was sick and my great grandma and close friend had both died. I was afraid to tell my mom about my issues, because she was so worried about grandma. My whole body hurt everyday and it was very difficult for me to sit in my chair, which made it hard for me to concentrate at school. I was in gymnastics at the time and thought this was causing my pain, so I quit going. I knew it was bad, when my pain did not go away.
After I finally told my mom about my issues, she took me to my doctor, where I was put through a lot of tests. It is miserable to be in the hospital when your friends are hanging out and having fun, while you are getting needles stuck in you and getting tests done by scary looking machines. At 8 years old, I had two biopsies and fought through when the medicine that put me to sleep made me sicker.
I was finally diagnosed with lupus at 9 years old. In the year before my diagnosis, I had spent more times than I can count in and out of the hospital. However, I am relieved to know what is wrong with me. I started taking plaquinel in January 2011 and I am feeling much better. I know that lupus has changed my life, but my life is my life, I will adjust and deal with it. I am a fighter and a survivor.
Dr. Syed, a board member for the Lupus Foundation of America, Heartland Chapter, is my Rheumatologist and I really like her. She answers the millions of questions my mom has. I have learned so much from her and the Lupus Foundation of America, Heartland Chapter. I am now able to tell others about my illness and what it means to have lupus. I hope I can help others by telling as many people as possible about my disease!