One of the ways that the Lupus Foundation of America, Heartland Chapter accomplishes its mission to aid in the fight against lupus is by providing lupus patients and their families with education and support through a variety of services:
The Heartland Chapter’s Summer Jam Youth Retreat is the only LFA-sponsored camp in the country for young women with lupus. The retreat is free of charge for females 12 to 19 years of age with lupus or other mixed connective tissue diseases. Campers are allowed to bring one friend. There are lots of fun camp activities planned and everything is supervised by professional staff including a Licensed Professional Counselor, Physical Therapist and medical staff. Campers have the opportunity to learn new coping skills and make friends with other youth who share their health challenges.
If you have lupus, one of the best things you can do to manage the disease is to become as physically fit as possible. Studies show that physical exercise can lower the risk of heart disease in lupus patients and is also beneficial in decreasing the risk of osteoporosis. Exercise can also be helpful in managing fatigue and pain and improving overall quality of life for people with lupus. You can join one of our modified exercises classes today.
As part of the LFA's efforts to Bring Down the Barriers to discovery of more effective and tolerable treatments for lupus, the LFA is working through its Center for Clinical Trials Education and Lupus Research Registry to distribute information about clinical research studies currently seeking volunteers.
The Lupus Foundation of America, Heartland Chapter provides educational programs geared towards people affected by lupus, the newly diagnosed, and medical professionals. Our educational programming includes, but is not limited to, two annual education conferences, monthly teleconferences, and a bi-monthly educational series.
The LFA Heartland chapter provides information and referral on a variety of lupus related topics. We provide new patients with a packet of information about the disease, local resources, and coping strategies. Additionally, we have a large collection of print materials and a lending library at our office in St. Louis.
The Health Insurance Marketplace offers coverage to many Americans who currently do not have health insurance and provides protections for people who have chronic conditions such as lupus. The Health Insurance Marketplace provides a virtual exchange for insurance comparison.
Become a Lupus Advocate and inspire others to effect change. Grassroots advocacy is a vital component to helping the LFA achieve its legislative and policy goals for people with lupus. We advocate on the state, national, and global levels through an annual advocacy day in Jefferson City, an advocacy summit in Washington D.C., and a variety of different campaigns throughout the year.
While we are unable to evaluate the professional qualification and competence of any one particular physician or practice, we do have some suggestions and resources available to aid in your search.
The Heartland Chapter’s support groups are led by trained professionals who understand the issues that challenge a person with lupus. These volunteers offer support to lupus patients, friends, and family members.
Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.
For more information or questions regarding the Heartland Chapter support and services, please contact us at info@LFAheartland.org or call our office at (314) 644-2222 or call us toll free at (800) 958-7876.