One of the ways that the Lupus Foundation of America, Heartland Chapter accomplishes its mission to aid in the fight against lupus is by providing lupus patients and their families with education and support through a variety of services:
The LFA Heartland chapter provides information and referral on a variety of lupus related topics. We provide new patients with a packet of information about the disease, local resources, and coping strategies. Additionally, we have a large collection of print materials and a lending library at our office in St. Louis.
The Health Insurance Marketplace offers coverage to many Americans who currently do not have health insurance and provides protections for people who have chronic conditions such as lupus. The Health Insurance Marketplace provides a virtual exchange for insurance comparison.
While we are unable to evaluate the professional qualification and competence of any one particular physician or practice, we do have some suggestions and resources available to aid in your search.
The Lupus Foundation of America, Heartland Chapter provides educational programs geared towards people affected by lupus, the newly diagnosed, and medical professionals. Our educational programming includes, but is not limited to, two annual education conferences, monthly teleconferences, and a bi-monthly educational series.
The Heartland Chapter’s support groups in Missouri, eastern Kansas, and southern Illinois are led by trained professionals who understand the issues that challenge a person with lupus. These volunteers offer support to lupus patients, friends, and family members.
Become a Lupus Advocate and inspire others to effect change. Grassroots advocacy is a vital component to helping the LFA achieve its legislative and policy goals for people with lupus. We advocate on the state, national, and global levels through an annual advocacy day in Jefferson City, an advocacy summit in Washington D.C., and a variety of different campaigns throughout the year.
For more information or questions regarding the Heartland Chapter support and services, please contact us at info@LFAheartland.org or call our office at (314) 644-2222 or call us toll free at (800) 958-7876.
As part of the LFA's efforts to Bring Down the Barriers to discovery of more effective and tolerable treatments for lupus, the LFA is working through its Center for Clinical Trials Education and Lupus Research Registry to distribute information about clinical research studies currently seeking volunteers.