Ask the Experts Teleconference Recordings

Lupus: Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

Lupus and Intimacy - 02.26.14

Speaker: Lisa Covington, MSW, LCSW-C

Intimacy is important in any relationship, and is necessary in order to gain trust and understanding among one another. Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.

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Clinical Trial Education - 04.22.14

Speakers: Karen Obmaces – President of Accurate Clinical Research
               Linda Willies – Clinical Trial Participant for more than 7 years

This teleconference will cover understanding how clinical trials work, frequently asked questions surrounding qualifying to be a participant, and the safety once enrolled.

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Lupus and Men - 04.12.14
Speaker:  Dr. Joseph Shanahan, Shanahan Rheumatology & Immunotherapy

A lot of misinformation exists about lupus—including the incorrect belief that lupus only occurs in women.  While there are many similarities on how the disease affects men and women, there are some key differences on lupus affects men.   Learn about the unique effects of lupus on males living with the disease.

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Living with Lupus: An Insider's Perspective - 05.01.14
Speaker:  Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus


Because lupus is a mysterious and complex disease, a diagnosis can be quite scary.  However, there may also be a measure of relief in being able to put a name to what may have been years of debilitating symptoms and misdiagnoses.  Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.  As a Board Certified Internist, our speaker brings professional expertise along with her personal perspective as an individual living with lupus herself.

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Vivir con Lupus - 05.08.14
Speaker:  Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.

Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar.  Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.

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Pediatric Lupus - 06.04.14
Speaker:  Dr. Reema Syed
Pediatric Rheumatologist
SSM Cardinal Glennon Children's Medical Center

Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.

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Lupus and the Skin - 7.9.14
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center

Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.

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Lupus and Depression - 8.7.14
Speaker: Beatrice Lazaroff, Ph.D.

Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.

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Nutrition and Rheumatic Diseases - 9.4.14
Speaker: Dr. Roxanne Sukol, Cleveland Clinic

Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.

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Lupus and Disability - 10.18.14
Speaker: Lisa Gonzalez Goetz, PA
Gonzalez & Goetz, LLC

This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.

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Lupus and Stress - 11.13.14
Speaker: Cindy Coney

Physical and emotional stresses are among the suspected triggers for a lupus flare.  People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.

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The Lupus-Heart Connection

February 24, 2015
7:00 pm – 8:00 pm EST
Speaker:  Joan M. VonFeldt, M.D., MSEd.

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.

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Disability and Returning to the Workplace

March 31, 2015
7:00 pm – 8:00 pm EST
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc. and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.  

Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.

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Lupus Infographic PDF

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Lupus and the Eyes

April 8, 2015
7:00 pm – 8:00 pm EST
Speaker: Ricardo N. Sepulveda, M.D.

Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.

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Living Well with Lupus

May 13, 2015
7:00 pm – 8:00 pm EST
Speaker:Donald Thomas, M.D., FACP, FACR, CCD

Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.

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Lupus and Hair Loss

June 24, 2015
7:00 pm – 8:00 pm EST
Speaker: Angela Kyei, MD

A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.

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Lupus and the Skin

July 14, 2015
7:00 pm – 8:00 pm EST
Speaker: Victoria P. Werth, MD, University of Pennsylvania School of Medicine

Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.

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Lupus and Female Issues: From Puberty to Menopause

August 15, 2015
7:00 pm – 8:00 pm EST
Speaker: Amber R. Cooper, MD, MSCI

Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.

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Coping with Lupus

September 29, 2015
7:00 pm – 8:00 pm EST
Speaker: Robert H. Phillips, Ph. D.

When you are first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.

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Lupus and the Kidneys

Speaker: Arti Gupta, M.D., Dallas Nephrology Associates, Dallas, Texas

Lupus nephritis is the term used when lupus causes inflammation in the kidneys. It is estimated that as many as 40 percent of all people with lupus will develop kidney complications that require medical evaluation and treatment. Dr. Arti Gupta will address diagnosis, monitoring, kidney complications, kidney biopsy, kidney treatment, and kidney prognosis.

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Lupus de los Riñones

Speaker: Carlos Pancorvo, M.D., Dallas Nephrology Associates, Dallas, Texas

Lupus nefritis es el término usado cuando el lupus provoca inflamación en los riñones. Se estima que hasta el 40 por ciento de todas las personas con lupus desarrollarán complicaciones renales que requieren tratamiento y evaluación médica. El Dr. Carlos Pancorvo hablará de el diagnóstico, visitas medicas, complicaciones renales, biopsia renal, tratamiento renal y pronóstico renal.

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Affairs of the Heart: Lupus and Relationships
February 2016
Presenter: Molly Dennis, MSW, Health Partners Plans

February is Heart Month and we know that the heart and cardiovascular system, like other organ systems of the body, can be affected by lupus. Lupus can also affect affairs of the heart and relationships. Is your life filled with satisfying relationships and love?  Do you feel that others understand your lupus and the demands that it places on you?  Join us for this teleconference and explore ways to improve interpersonal relationships and build lasting bonds.

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Lupus and the Kidneys
March 2016
Presenter: Dr. Michael P. Madaio, Sydenstricker Professor and Chairman, Department of Medicine, Medical College of Georgia at Augusta University

Did you know that an estimated 40% of all people living with lupus will develop kidney complications? This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.

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Lupus & Mental Health: How to Know You’re in Trouble
April 2016
Presenter: Stacie Camp Bennett, MA, LPC, LCAS

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn how to determine the difference and recognize and properly treat symptoms.

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Lupus and Primary Care
May 2016
Presenter: Adegbenga A. Bankole MD, FACP, Virginia Tech Carilion School of Medicine

The Primary Care Physician plays an important role in quality care to patients with lupus. This teleconference covers the impact of lupus on diseases that are cared for by PCPs, ranging from hypertension to cancer and teach you preventive measures to take.

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Lupus and the Thyroid
June 2016
Presenter: Maria Antonelli, MD from Metro Health Hospital

Thyroid problems are common in people with lupus. About 6 percent of people with lupus have underactive thyroid, or hypothyroidism, and 2 percent have overactive thyroid, or hyperthyroidism. Join us to learn about the effects of thyroid disorders and function and their relationship to lupus.

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Finances 101: Living with a Chronic Illness
July 2016
Presenters: Shawn Arrington, President and CEO and Shanna Tedder, Financial Services Educator and Advisor, White Rhino Financial

Everyone should have a financial plan to protect themselves and their loved ones.  Living with a chronic illness causes unique day-to-day and long-term financial challenges. The teleconference will empower and educate those living with a chronic illness, their loved ones and caretakers regarding ways to proactively organize their finances and strategically plan for their unpredictable circumstances.

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