Ask the Experts Teleconference Recordings

Lupus: Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

Lupus and Intimacy - 02.26.14

Speaker: Lisa Covington, MSW, LCSW-C

Intimacy is important in any relationship, and is necessary in order to gain trust and understanding among one another. Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.

Download the presentation (PDF)

 

Clinical Trial Education - 04.22.14

Speakers: Karen Obmaces – President of Accurate Clinical Research
               Linda Willies – Clinical Trial Participant for more than 7 years

This teleconference will cover understanding how clinical trials work, frequently asked questions surrounding qualifying to be a participant, and the safety once enrolled.

Download Karen Obmaces presentation

Download Linda Willies presentation

 

Lupus and Men - 04.12.14
Speaker:  Dr. Joseph Shanahan, Shanahan Rheumatology & Immunotherapy

A lot of misinformation exists about lupus—including the incorrect belief that lupus only occurs in women.  While there are many similarities on how the disease affects men and women, there are some key differences on lupus affects men.   Learn about the unique effects of lupus on males living with the disease.

Download Dr. Shanahan's presentation

 

Living with Lupus: An Insider's Perspective - 05.01.14
Speaker:  Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus

 

Because lupus is a mysterious and complex disease, a diagnosis can be quite scary.  However, there may also be a measure of relief in being able to put a name to what may have been years of debilitating symptoms and misdiagnoses.  Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.  As a Board Certified Internist, our speaker brings professional expertise along with her personal perspective as an individual living with lupus herself.

Download Dr. Pamela Turnbo Thorpe's presentation

 

Vivir con Lupus - 05.08.14
Speaker:  Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.

Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar.  Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.

Download Dr. Leyka Barbosa's presentation

Pediatric Lupus - 06.04.14
Speaker:  Dr. Reema Syed
Pediatric Rheumatologist
SSM Cardinal Glennon Children's Medical Center

Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.

Download Dr. Reema Syed's presentation

 

Lupus and the Skin - 7.9.14
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center

Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.

Download Dr. Santoro's Presentation (PDF)

Lupus and Depression - 8.7.14
Speaker: Beatrice Lazaroff, Ph.D.

Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.

Download Beatrice Lazaroff's Presentation (PDF)

Nutrition and Rheumatic Diseases - 9.4.14
Speaker: Dr. Roxanne Sukol, Cleveland Clinic

Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.

Download Dr. Sukol's Presentation (PDF)


Lupus and Disability - 10.18.14
Speaker: Lisa Gonzalez Goetz, PA
Gonzalez & Goetz, LLC

This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.

Download Lisa Gonzalez Goetz's Presentation (PDF)

Lupus and Stress - 11.13.14
Speaker: Cindy Coney
cindyconey.com

Physical and emotional stresses are among the suspected triggers for a lupus flare.  People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.

Download Cindy Coney's Presentation (PDF)

The Lupus-Heart Connection

February 24, 2015
7:00 pm – 8:00 pm EST
Speaker:  Joan M. VonFeldt, M.D., MSEd.

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.

Download the PDF Presentation

Listen to the Recording:

Disability and Returning to the Workplace

March 31, 2015
7:00 pm – 8:00 pm EST
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc. and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.  

Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.

Download the PDF Presentation

Lupus Infographic PDF

Listen to the Recording:

Download mp3