Mar. 23, 2014—Jun. 29, 2014 |

2014 Ask the Experts Teleconference

Lupus: Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.

View the list of National Webcasts.

Listen to teleconference recordings from our 2013 Ask the Experts Teleconference Series.

Lupus & Intimacy
February 26, 2014
7:00 pm -8:00 pm EST

Speaker:  Lisa Covington, MSW, LCSW-C

Intimacy is important in any relationship, and is necessary in order to gain trust and understanding among one another.  Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.

Download the presentation and listen to the recording

Clinical Trial Education
March 22, 2014
Time: 11:00 – 12:00 EST

Speakers: Karen Obmaces – President of Accurate Clinical Research
                   Linda Willies – Clinical Trial Participant for more than 7 years

This teleconference will cover understanding how clinical trials work, frequently asked questions surrounding qualifying to be a participant, and the safety once enrolled.

Download the presentations and listen to the recording

Lupus and Men
April 12, 2014
11:00 – 12:00 EST

Speaker:  Dr. Joseph Shanahan, Shanahan Rheumatology & Immunotherapy

A lot of misinformation exists about lupus—including the incorrect belief that lupus only occurs in women.  While there are many similarities on how the disease affects men and women, there are some key differences on lupus affects men.   Learn about the unique effects of lupus on males living with the disease.

Download the presentation and listen to the recording

Living with Lupus: An Insider’s Perspective
May 1, 2014
7:00 pm – 8:00 pm EST

Speaker:  Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus

Because lupus is a mysterious and complex disease, a diagnosis can be quite scary.  However, there may also be a measure of relief in being able to put a name to what may have been years of debilitating symptoms and misdiagnoses.  Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.  As a Board Certified Internist, our speaker brings professional expertise along with her personal perspective as an individual living with lupus herself.

Register by April 24th

Vivir con Lupus
May 8, 2014
7:00 pm – 8:00 pm EST

Speaker:  Leyka Barbosa, M.D., F.A.C.R, North Texas Joint Care, P.A.

Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar.  Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.

Register by May 1st

Pediatric Lupus
June 4, 2014
7:00 pm – 8:00 pm EST

Speaker:  Dr. Reema Syed, Pediatric Rheumatologist, SSM Cardinal Glennon Children's Medical Center

Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.

Register by May 28th

Lupus and the Skin
July 9, 2014
7:00 pm – 8:00 pm EST

Speaker: Dr. Frank Santoro, Assistant Professor of Dermatology at the University of Connecticut Health Center

Approximately two-thirds of people with lupus will develop some type of skin disease or cutaneous lupus. Learn about the forms of skin lupus, treatments for cutaneous lupus and other skin problems that can occur when you have lupus.

Register by July 2nd


Presentations are available online. You may submit a question to the expert through the 15th of each topic month and answers will be posted the following month.

February - Working through the Marketplace: Centers for Medicare and Medicaid Services
Presenter:  Susan Gustafson

March - Cardiac Issues with Lupus
Presenter: Dr. Jim Oats

May - Preventive Cardiac Care with Lupus
Presenter: Monica Richey, NP

Click here for more information.