The year-long initiative to make research on lupus treatments more inclusive and effective formally began on July 1.
“Strike While the Iron is Hot” How the Lupus Initiative is Advancing Rheumatology
November 03, 2011
The October issue of The Rhuematologist features "The Lupus Initiative," a national health care provider education initiative to improve lupus diagnosis, treatment, and management among minorities. The Lupus Foundation of America (LFA) is proud to have been a part of the initiative from the beginning, which is guided by a national consortium of experts in lupus and health disparities. LFA Medical-Scientific Advisory Council members and members of LFA senior management sit on the steering committee and various working groups.
More than 90 percent of people with lupus are women, and it is two to three times more common among African Americans, Hispanics, Asian Americans, and Native Americans. Physician and health care provider education is critical to improving the early diagnosis and management of lupus, and ultimately preventing the life-threatening consequences of the disease.
The LFA successfully led national grassroots efforts, on behalf of people with lupus and their health care professionals, to have the U.S. Congress appropriate federal funding for national public and professional education programs. The results of these efforts included the establishment of "The Lupus Initiative" for health professionals and the first-ever Ad Council national public awareness campaign on lupus, which to date has generated more than $66 million in earned and donated media coverage to increase public recognition and understanding of lupus.
The Lupus Initiative just received its third year of funding from the U.S. Department of Health and Human Services Office on Minority Health, and the LFA looks forward to continuing its involvement in this important initiative. Read more.
The New England Journal of Medicine published results from a long-term study for the treatment of lupus nephritis.