Lupus Foundation of America is launching a website, Lupus Voices Across America™, that will allow people with lupus and their supporters to share their stories.
Public Urged To Take Action to Fight ‘Cruel Mystery’ affecting Millions Worldwide
WASHINGTON, DC, MAY 1, 2014 – In recognition of Lupus Awareness Month this May, the Lupus Foundation of America is calling on the public to take action and raise their voice to increase lupus awareness and help solve the cruel mystery that is lupus. Lupus is a mysterious and devastating disease that ravages different parts of the body and has no known cause and no known cure.
Awareness and understanding of lupus is essential to improve the diagnosis and treatment of the disease and find a cure. However, currently, lupus awareness is painstakingly low. Research conducted by the Lupus Foundation of America shows that nearly three-quarters (72%) of Americans between the ages of 18 and 34 - those most at risk for lupus - have either not heard about lupus at all or know little to nothing, about lupus, beyond the name.
“Lupus is one of the most misunderstood diseases there is, and research to better understand lupus and discover effective treatments is greatly underfunded, relative to the disease’s scope and devastation,” explains Sandra C. Raymond, President and CEO of the Lupus Foundation of America. “We need increased awareness, we need more funding – we need a cure. We are calling on all Americans this May to take action and join the Lupus Foundation of America in the fight against this disease that can rob people of the best years of their lives.”
Take Action, Raise Your Voice, Share Your Story
There are many ways the public can take action, learn about lupus and support those who suffer from its brutal impact. This May, the Lupus Foundation of America kicks off a new campaign called Dear Lupus. Whether you are a person living with lupus, a healthcare provider or have a family or friend with the disease, it impacts everyone. The Dear Lupus campaign provides an opportunity for individuals to get creative and produce their own video to tell their story. For more details about the campaign and how to submit a video, visit lupus.org/dearlupus.
Other ways the public can join the fight against lupus during Lupus Awareness Month include:
- Put On Purple Day (Friday, May 16): This is a special day when local communities rally to bring greater attention to lupus by wearing purple, lighting buildings, monuments and fountains purple and telling others why they support people affected by lupus.
- Spread the Word about Lupus to Friends, Family and Colleagues: Post fliers throughout the office and the community; share daily facts about lupus or place a banner or info-graphic in newsletters, on websites and on social media sites.
- Walk to End Lupus NowTM: Visit WalkToEndLupusNow.org to find a Lupus Foundation of America Walk in your community, and put together a team of walkers. Every step raises money for lupus research and education services.
- Fundraise Your Way: Host a fundraiser and awareness event in your community. Visit lupus.org/awareness for ideas to get started.
For more information about Lupus Awareness Month and ways to take action and join the fight, visit the Lupus Foundation of America’s website at lupus.org/awareness.
Lupus is an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. It is difficult to diagnose, hard to live with, and a challenge to treat. Lupus is a cruel mystery because it is hidden from view and undefined, has a range of symptoms, strikes without warning, and has no known cause and no known cure. Its health effects can range from a skin rash to a heart attack. Lupus is debilitating and destructive and can be fatal, yet research on lupus has not kept pace with research for other diseases of similar scope and devastation. For more information, visit lupus.org.
About the Lupus Foundation of America
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus. Learn more about the Foundation at www.lupus.org. For the latest news and updates, follow us on Twitter and Facebook.
Advocates from across the country will band together for lupus and urge Members of Congress to support increased federal funding for lupus research, awareness, and education.