Achievements Highlight the Lupus Foundation of America’s Leadership Role in the Fight to End Lupus.
Lupus Foundation of America Calls on the Public to Take Action to Expand Medical Research on Lupus
May is Lupus Awareness Month; Nationwide Efforts Underway to Solve the ‘Cruel Mystery’
WASHINGTON, DC, MAY 1, 2013 – The Lupus Foundation of America is calling on all Americans to join the fight against lupus this May during Lupus Awareness Month and take action to help expand lupus research efforts. Lupus is a mysterious and devastating disease that ravages different parts of the body and has no known cause and no known cure.
The disease is more pervasive and more severe than people think, and has an impact that the public doesn’t realize. A recent survey revealed nearly three-fourths of Americans ages 18 to 34 – those at the highest risk for lupus – have never heard of lupus or know little or nothing about lupus beyond its name.
Building awareness of lupus is essential to improving the diagnosis and treatment of this cruel disease that disproportionately affects minorities and women in the prime of their lives.
“Lupus is one of the most misunderstood diseases there is, and research to better understand the disease and discover effective treatments is greatly underfunded relative to the disease’s scope and devastation,” explains Sandra C. Raymond, President and CEO of the Lupus Foundation of America. “Without sufficient funding from public and private sources, research efforts to find the causes of lupus and discover new safe, tolerable and effective lupus treatments will be delayed, and the search for a cure will be seriously impaired.”
The Lupus Foundation of America urges the public – and their families, friends and co-workers – to help solve the cruel mystery by signing a petition that asks Congress to fund more lupus research efforts. The petition is available online at lupus.org/petition.
The Foundation also is empowering individuals, organizations, and companies to educate people in their communities about lupus and the need to expand lupus medical research. During May, the Foundation will provide free tools and resources online at lupus.org/awareness. Tools include reproducible fliers, daily facts about lupus, and web banner ads.
One of many activities that will occur during Lupus Awareness Month is Put On Purple Day on Friday, May 17. Purple is the color used by the lupus community. The Foundation asks everyone to wear purple, work with community leaders to illuminate local fountains and buildings in purple that day, and tell others why they support people affected by lupus.
Other ways the public can join the fight to end lupus during Lupus Awareness Month include:
· Share Lupus Information with Friends, Family and Colleagues – Post fliers throughout the office and the community. Share daily facts about lupus or place a banner within newsletters, on websites, and on social media sites.
- Lupus Voices – Post personal stories on lupusvoices.org to explain why lupus is a cruel mystery. The Foundation will share these stories through social media and other channels during May.
- Faith-Based Awareness Weekend (May 18-19) – The Foundation is supporting a faith-based lupus awareness weekend at places of worship around the nation. Help your place of worship get involved.
- Purple Wristbands – Distribute the purple “Help Us Solve the Cruel Mystery™” wristbands to friends and co-workers (available for purchase at shoplupus.org).
- Walk to End Lupus NowTM – Visit WalktoEndLupusNow.org to find a Lupus Foundation of America Walk in your community, and put together a team of walkers. Every step raises money for lupus research and education services.
For more information about Lupus Awareness Month and ways to join the fight, visit the Lupus Foundation of America’s website at lupus.org/awareness.
New Survey Shows Americans Know Little or Nothing About Disease That Affects1.5 Million.