Jun. 26, 2017

Lupus Activists Urge Congress to Support Research Funding, Access to Quality & Affordable Care


Today, nearly 200 lupus activists from across the country will visit Capitol Hill and thousands more will join virtually to urge Members of Congress to:

  • help advance the development of new lupus treatments;
  • increase funding for lupus research and education;
  • and ensure people with lupus have access to affordable, quality health coverage and care.


The lupus activist meetings with their legislators are part of the Lupus Foundation of America’s two-day National Policy Summit.
 

“The National Policy Summit is the most impactful advocacy event of the year as it provides lupus activists the opportunity to meet directly with Members of Congress to share their daily struggles with the disease, and demonstrate the urgent need to step up the fight against lupus.”

“At a time when health care is top of mind for Congress, lupus activists from all over the country will meet with our nation’s leaders to urge them not only to increase funding for research, but also to ensure they have access to the quality and affordable care they need.” 

-Sandra C. Raymond, President and CEO of the Lupus Foundation of America


The National Policy Summit also provides activists with empowering programs and activities including three interactive and educational panel discussions on day one of the event. Panelists include leaders from the Food and Drug Administration (FDA), the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC).

Activists will have direct access to the very leaders who are funding and implementing programs to advance lupus research, education and awareness.

Get Involved Virtually Today!


Following the panel sessions, the Foundation will host an evening Advocacy Awards Reception to honor its Congressional champions whose leadership has made a significant difference in the fight against lupus.

Award recipients include:

The Honorable Rodney Frelinghuysen
United States House of Representatives
Chairman, House Appropriations Committee
Congressional Champion Award

The Honorable Eddie Bernice Johnson
United States House of Representatives
Co-chair, Congressional Lupus Caucus
Congressional Champion Award

The Honorable Bill Keating
United States House of Representatives
Co-chair, Congressional Lupus Caucus
Congressional Champion Award

The Honorable Thomas J. Rooney
United States House of Representatives
Co-chair, Congressional Lupus Caucus
Congressional Champion Award

The Honorable Ileana Ros-Lehtinen
United States House of Representatives
Co-chair, Congressional Lupus Caucus
Congressional Champion Award


In addition to the support from our donors and Board members, we greatly appreciate the grant support for the National Policy Summit from the following organizations: 

  • Aurinia Pharmaceuticals
  • Biotechnology Innovation Organization
  • Boeringer Ingelheim Pharmaceuticals
  • Eli Lilly and Company
  • Faegre Baker Daniels
  • Genentech
  • GlaxoSmithKline
  • Mallinckrodt Pharmaceuticals
  • PhRMA
  • UCB, Inc.