Take Action! Become a Lupus Activist

Lupus is a significant public health ssue that requires national attention and action now. There is no cure for lupus and only one drug has been approved specifically for lupus in the past 50 years! We will continue working with Congress to improve the lives of more than 80,000 DC/Maryland/Virginia residents affected by lupus.

Become a Lupus Activist

What does a Lupus Activist do?

A lupus activist engages in educating their federal, state, and locally elected officials about the cruel mystery of lupus. Whether through a letter, email, phone call, or face-to face meetings with elected officials, lupus activists are the vital voice on legislation and policies issues impacting people with lupus and their families. An activist’s voice makes difference.

Who can be a Lupus Activist?

Anyone who cares about lupus! You don't have to be an expert in government affairs to share your knowledge and story about lupus.

How can I learn how to advocate?

  • Identify Members of Congress who represent you in Washington.
  • Read legislative alerts about new bills or upcoming votes.
  • See how your Representative or Senators voted on critical lupus issues.
  • Send emails or letters to your elected officials in Washington.
  • Contact your Representative or Senators today to schedule an appointment in the district office
  • Check local sources to find out if and when Congressmen may be holding Town Hall meetings.

Related Information

Congressional Lupus Caucus
The first ever Congressional Lupus Caucus will provide a forum in which members of Congress and their staff can actively engage in a dialogue to improve the quality of life for people with lupus and their caregivers through supporting the advancement of lupus research and increasing awareness of lupus among the public and health professionals.

Government Agencies that Affect People with Lupus

Centers for Disease Control and Prevention
Centers for Medicare and Medicaid Services
Food and Drug Administration
National Institues of Health
Social Security Administration