Listen to a Lupus Educational Workshop
The following recordings are from past workshops and teleconferences hosted by the Lupus Foundation of America, DC/MD/VA Chapter. Please click on the provided link to download a PDF of the presentation to follow along while listening to the recording.
You can also subscribe to our podcast and download educational audio to your computer or mp3 player or by searching 'Educational Workshops on Lupus' in the iTunes store.
If you have additional questions, please contact us by calling (888) 787-5380 or emailing firstname.lastname@example.org
General Information on Lupus
Living with Lupus
An introduction to effective management and basics of lupus for the newly diagnosed or anyone who needs it. Current, medically accurate info on lupus, its symptoms, treatments, & coping techniques.
Alternative & Complementary Therapies
Patients will gain a better idea of why rheumatologists make certain recommendations about supplements, herbs, medications, and more.
Lupus and Intimacy
Intimacy is important in any relationship, and is necessary in order to gain trust and understanding among one another. Listen to Lisa Convington, MSW as she explains how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.
Clinical Trial Education
This teleconference will cover understanding how clinical trials work, frequently asked questions surrounding qualifying to be a participant, and the safety once enrolled.
Managing Your Lupus
Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.
Vivir con Lupus
Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar. Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.
Living With Lupus: An Insider's Perspective
Because lupus is a mysterious and complex disease, a diagnosis can be quite scary. However, there may also be a measure of relief in being able to put a name to what may have been years of debilitating symptoms and misdiagnoses. Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus. As a Board Certified Internist, our speaker brings professional expertise along with her personal perspective as an individual living with lupus herself.
Disability Issues and Lupus
Get help navigating the often frustrating issues surrounding disability. Learn what SSDI/SSI is, the qualifications, how to apply, and how to be prepared.
Preventing Infection, a Potential Threat to Lupus Patients
Dr. Thomas will outline the potential threat of infections to lupus patients. This session will focus on ways to prevent and manage infections.
Tired of Lupus: Managing Pain and Fatigue Through Healthy Sleep Habits
Lupus patients are at risk for experiencing sleep difficulties. Poor sleep can be linked to medication side effects, persistent pain, depression, changes in our daily schedules, or even stress. Poor sleep and daytime tiredness can cause discomfort, and can make pain feel worse. People who sleep well feel better and experience less pain. You can improve your sleep! Learn more about sleep and the fascinating relationships between sleep, pain and overall health.
Lupus and Employment
Learn more about how lupus can affect life on the job, your rights in the workplace, how you can maximize security and benefits and manage stress when dealing with lupus and employment.
Managing the Doctor- Patient Relationship
Part of thriving with lupus is effectively communicating with the members of your health care team so that your care is managed better and in the end, you feel better. As Dr.Hughes states,"You are driving the bus!"
Lupus and Women's Issues
More than 90 percent of people with lupus are women between the ages of 15 and 45. Having lupus increases your risk of other health problems that are common in women. Women living with lupus also face a variety of concerns from pregnancy to body image issues. Learn how to live better with lupus and cope with issues many women face after a lupus diagnosis.
Lupus and Men
A lot of misinformation exists about lupus-- including the incorrect belief that lupus only occurs in women. While there are many similarities on how the disease affects men and women, there are some key differences on how lupus affects men. Learn about the unique effects of lupus on males living with the disease.
Lupus and Organ Systems
Lupus & the Skin
Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light
Lupus & Cardiopulmonary Issues
The heart and lungs are frequently affected in people with systemic lupus erythematosus (SLE). Complications in these organs can cause a variety of problems, ranging from mild to serious or even life-threatening. These complications are known as cardiopulmonary (cardio = heart; pulmonary = lung).
Central Nervous System (CNS) and Lupus
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction, although many people call it lupus fog. We will address symptoms and ways to cope with this pervasive problem.
Lupus and Endocrine Issues
Lupus patients visit endocrinologists for a variety of reasons including diabetes, thyroid problems and osteoporosis. Explore the impact of the thyroid on the health of a lupus patient as well as special considerations of management and treatment of diabetes and osteoporosis in lupus patients.
Lupus and the Skin
Approximately two-thirds of people with lupus will develop some type of skin disease or cutaneous lupus. Learn about the forms of skin lupus, treatments for cutaneous lupus and other skin problems that can occur when you have lupus.
Lupus and the Kidneys
An estimated 40% of all people living with lupus will develop kidney complications. Learn about complications, medical evaluation, and treatment as it relates to kidney involvement in lupus.
Lupus and Cognitive Disfunction
Many people with lupus describe confusion, fatigue, forgetfulness, distractibility and difficulty expressing their thoughts- what is referred as cognitive impairment. Learm more about how lupus can impact your brain, or cognitive functioniong, and what treatment options are available.
Lupus and Overlapping Disease
Although lupus most often occurs alone, many people with lupus also have characteristics of one or more of the other connective tissue diseases, such as scleroderma or rheumatoid arthritis. This is called overlap disease. Learn more about common connective tissue diseases that may overlap with a lupus diagnosis and how they are treated and managed.
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The Lupus Foundation of America, DC/MD/VA Chapter is proud to be a source of information on lupus. Our comments are based on professional advice, published experience and expert opinion, but do not represent individual therapeutic recommendation or prescription. For specific information or advice, please consult your physician. If you need help finding a physician, we maintain a list of physicians who treat lupus patients.