A Letter from the President
I am pleased that you are visiting our website for information about lupus. Whether you have been diagnosed with lupus, or you are a friend or family member of a person with lupus, you probably have questions that require complex answers. This site provides information about the disease, lists resources available to you through our Chapter, and provides you the opportunity to join our efforts in solving the Cruel Mystery of lupus. Our mission is to provide support, outreach and education to the 80,000 individuals living with lupus in our service area, their friends and families.
The Lupus Foundation of America, DC/MD/VA Chapter (LFA-DMV) was formed in 1974 to improve the quality of life for those affected by lupus. We serve Washington DC, Maryland and Virginia. By becoming a supporter of LFA -DC/MD/VA, you join the thousands of lupus patients, their families and friends, and the medical community across the country working towards the eradication of lupus. It is through the financial help of people like YOU that enables us to provide critically needed services to the lupus community.
Lupus defies stereotyping –every case of lupus is different and requires and individualized treatment plan. Because each person travels a unique journey with lupus, it is important for patients and all affected by the disease to take an active role in their disease management plan and stay current with research that can lead to new treatment options. We want you to feel empowered by the free services provided by our Chapter and take control of this brutal, complex disease.
We offer support groups, individualized patient navigation, teleconferences, and 3 statewide lupus summits that are designed for patients and families to come together, receive support, education, and create a voice for this silent disease that wreaks havoc on so many lives. Our 3 Walks to End Lupus Now! take place in Washington (April), Maryland (September) and Virginia (October). I urge you to mark your calendar today and attend a walk near you. Not only do walks raise critical funds for our patient services programs, but they are inspirational events to everyone in the lupus community. Take advantage of this opportunity to take steps towards a cure!
I hope the information we offer is helpful to you in gaining a better understanding of lupus. If you have questions or need additional information please contact the Chapter office. Our staff is ready to assist you. Our toll-free number, (888) 787-5380, connects you to valuable resources and personalized navigation services.
Jessica B. Gilbart
President and CEO