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• Receive notice of clinical trials in your area.

Lupus Research Registry Factsheet (pdf)

Your Health

Use these resources to learn how clinical trials relate to your health.

Literature: Read about Your Health

Literature: Read about Your Health

•  Lupus Now -- Understanding Clinical Trials, part 1

   Lupus Now -- Understanding Clinical Trials, part 2

   Lupus Now -- Understanding Clinical Trials, part 3

  Read the September 2007 Webchat transcript on Clinical Trials
  
  15 Questions with Ken Getz - Clinical Trials
  
   Dr. Merrill's Presentation on Clinical Trials from the 2011 Learn from the Experts Teleconference
  
  View Article on Drug Development and Approval Process (DOC)
  
  

Other Links on Your Health

Other Links on Your Health

• NIH / NIAMS -- The National Institutes of Health is the primary Federal agency for conducting and supporting medical research. The NIH is composed 27 Institutes and Centers. One of the institutes, The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
  http://www.niams.nih.gov/
  
  WebMD -- Web MD credible information, supportive communities, and in-depth reference material about health subjects such as lupus. Web MD is a source for original and timely health information as well as material from well known content providers
  www.webmd.com
  
  FDA Drug Information -- The Food and Drug Administration lists drugs that have been approved for use for specific diseases. The FDA also has a search feature for drugs.
  www.fda.gov
  
  Patient Advocate Foundation -- The Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases.
  www.patientadvocate.org
  

Your Future

Take what you know about your health and get educated on how clinical trials will affect your future.

Stay up-to-date by signing up

Stay up-to-date by Signing Up

• Sign up to receive the free Lupus Research Report enewsletter
  
  Sign up to receive Lupus Now Magazine

Questions you need to ask about your future in clinical trials (pdf)

Questions you need to ask about your future in clinical trials (pdf)

 Download Frequently Asked Questions

Glossary of common terms related to clinical trials (pdf)

Glossary of common terms related to clinical trials (pdf)

 Download Glossary

Get Involved

Sign up for the Lupus Research Registry

Sign up for the Lupus Research Registry

• The LFA has created a registry to deliver information on specific clinical trials that may be appropriate for you. The LFA will periodically provide you with information regarding opportunities available in your area that may be of interest to you.
  
  Lupus Research Registry Factsheet (PDF)
  
  

  Receive notice of clinical trials in your area.

Search Investigator Initiated Studies

Search Investigator Initiated Studies

• The LFA receive requests from investigators to post information about their current studies in lupus research. They are initiated by the investigator, whereby the investigator has control over the study and its design. Investigator initiated studies must meet the same federal protections for patients as studies posted on clinicaltrials.gov. These studies may or may not be found using CISCRP's clinical trials search engine
  
  View Investigator Initiated Studies
  
  

Submit Investigator Initiated Studies

Find Clinical Trials

Find Clinical Trials

• CISCRP-- the leading non-profit organization focused on educating and informing the public about clinical research participation. The CISCRP website has a large education section on clinical research participation and a comprehensive search engine for clinical trials.
  www.ciscrp.org
  
  NIH Clinical Trials Information -- The National Institutes of Health provides general information on clinical trials, a search engine and printable resources to use when discussing clinical trial participation with your health care provider.
  www.clinicaltrials.gov
  
  Centerwatch -- Centerwatch is a publishing and information services company that provides an extensive list of IRB approved clinical trials being conducted internationally.
  www.centerwatch.com