Blog

Blog | Jun. 02, 2017

Pennsylvania Woman with Lupus Wins Dress Designed by Project Runway Winner

The story of Heidi Givler who won this once-in-a-lifetime experience through a silent auction at the 2016 National Gala in New York City.

Blog | Jun. 01, 2017

About the National Lupus Advocacy Summit

This event provides an amazing opportunity for lupus activists to join together and urge Congress to put lupus at the front of the national health care agenda.

Blog | May. 16, 2017

Becoming My Own Advocate

When you’re living with lupus you are often your biggest advocate. One advocate shares her experiences from previous National Policy Summits.

Blog | May. 12, 2017

Sharing the Journey: Challenges to Eating Healthy

The Sharing the Journey series is by you and for you. In your own words, we highlight the perspectives and personal experiences of people who struggle with lupus each day.

Blog | May. 11, 2017

Meaningful Messages for Mother’s Day

When you have lupus, it’s all too easy to worry about not being a good parent. Fatigue, pain, brain fog, flares, hospitalizations, medication side effects—living with lupus doesn’t leave much energy for anything else.

Blog | May. 09, 2017

Leaders in Lupus Community Highlight List of Panelists for National Policy Summit

People living with lupus and leaders from FDA, NIH, and industry headline list of panelists participating in June National Policy Summit.

Blog | Apr. 26, 2017

10 Reasons to Attend the National Policy Summit

You don’t want to miss out on the chance to make your voice heard as we put advocacy in action on Capitol Hill.

Blog | Apr. 18, 2017

Putting PJs to Work

I don’t look sick from the outside and since many people know little or nothing about it, they don’t understand the seriousness. That’s one of the challenges with lupus.