Living well with lupus

What are some helpful hints when caring for my child with lupus?

  • Taking medication as prescribed is an important factor for children with lupus. Be vigilant about when and how your child is taking medications.
  • Keep doctor appointments and complete requested laboratory tests in a timely manner.
  • Children with lupus should carry a card with their lupus diagnosis, list of current medications, and emergency contact information for their primary doctor and both parents.
  • Especially when taking corticosteroids, a child with lupus should wear some sort of medical ID. These are available in a variety of styles, and some insurance companies offer discounts on purchases.
  • Encourage the use of sun-protective clothing and hats and correct use of effective sunscreens.
  • Help your child learn to balance activities with rest, keep up with schoolwork, and cope with stress.

The long-term outcome of your child with lupus depends a great deal on which internal organs are affected and the success of treatment in preventing tissue damage. But equally important are a positive attitude and good coping skills. The more children can be helped to develop these skills, the more successful they will be at living well with lupus.

Medically reviewed on August 16, 2013

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