Living well with lupus

Should I explain my child’s lupus to teachers and extracurricular activities leaders?

Your child’s teachers and leaders of organized activities should be made aware of the effects of lupus. The most common issues that may need to be addressed include:

  • changes in concentration or memory
  • missed assignments due to absences for care or illness
  • reduced ability to take part in physical education classes
  • the need to limit sun exposure
  • extreme fatigue
  • altered appearance from medication side effects and/or disease symptoms
  • infections, particularly if the child does not respond well to vaccinations

Be your child’s advocate at school by helping teachers and staff understand the complications of lupus, and what is needed for your child to keep up with school assignments. An excellent resource to share with your child’s teachers and classmates is Loopy Lupus Helps Tell Scott’s Story About a Disease Called Lupus. This children’s picture book was written by a third-grade class and their teacher, and is available through the LFA’s online lupus shop at shoplupus.org.

Medically reviewed on August 16, 2013