
Cindy Coney |
Sandra C. Raymond |

This is an exciting time for people with lupus, their families, and the health professionals who care for them. We have seen historic progress in recent years, and helped lay the foundation for a new paradigm in lupus that includes increased awareness and understanding of lupus, greater investment in lupus research, and the development of new, effective, safer, and more tolerable treatments.
The Lupus Foundation of America (LFA) is leading efforts to create momentum in the field by establishing new research initiatives and implementing creative solutions to address the tough issues related to advancing the science and medicine of lupus. These initiatives include the Lupus Research Registry provided through the LFA Center for Clinical Trials Education (LFA CCTE) web site, for individuals interested in participating in future lupus clinical trials, and a Web-based service (LFA POINT program) through which physicians and clinical investigators receive uniform training on instruments used to assess disease activity in clinical studies and medical practice. The LFA is also partnering with key stakeholders from industry, government, and the scientific community to evaluate data from previous lupus clinical trials to improve the design of future studies. Already the LFA’s review of data from past clinical trials is yielding important information on how best to structure future lupus clinical trials.
Last year, the LFA launched the pilot program Lupus: Learn from the Experts™that enables people with lupus and their families to gain valuable information and insight on managing their disease from leading lupus experts. The LFA is committed to developing new and innovative education programs to ensure that all people touched by lupus have access to the support services and information they need.
Securing greater visibility and public understanding of lupus are among the LFA’s highest priorities. By engaging celebrity support for lupus from individuals, such as musician and philanthropist Julian Lennon and Eduardo Xol from ABC’s Extreme Makeover: Home Edition, we are increasing awareness and elevating this urgent public health issue on the nation’s health care agenda.
Through our advocacy efforts, the LFA has stimulated more than $18.4 million in funding for the first-ever comprehensive national epidemiological study which will clearly determine the number of people in the United States living with lupus. Initial results are expected in late 2011. Confirming how many people have lupus and determining how many new cases occur each year will help researchers and policy makers gain a better understanding of the individual, social, and economic impact of the disease.
We will continue to urge the federal government and industry to increase investment in lupus research, develop a full arsenal of treatments, increase public awareness, and educate our health professionals so lupus may be diagnosed and treated early.
On behalf of everyone at the LFA, we thank our supporters, volunteers, and lupus advocates across the nation who band together to help support our efforts on behalf of all those living with lupus. We recognize and value you as our partners in advancing the LFA’s mission and improving the quality of life for all those affected by lupus, and ultimately finding a cure.
Thank you.
|
LFA National Board of Directors |
We know more about lupus than we did 10 years ago. Advances in lupus research have provided us with a better understanding of the possible underlying causes of the disease, and unprecedented opportunities to greatly expand our knowledge base on lupus. Only through a comprehensive, targeted medical research effort will we be able to find a cure for this complex disease. Accelerating medical research on lupus and engaging all relative public and private sources of support in this effort are among the LFA’s highest priorities.
In 2010, the LFA accomplished goals in these areas:

Public awareness and advocacy go hand in hand. Through increased awareness, we can elevate lupus on the nation’s health care agenda and bring national attention and resources to lupus. The LFA is aggressively conducting outreach efforts to increase public understanding of lupus through national awareness campaigns, media outreach, and online and social marketing. We are the leading voice for people with lupus advocating for expanded investment in research and education on Capitol Hill and in state capitols across the country.
In 2010, the LFA accomplished goals in these areas:
In 2010, the LFA accomplished goals in these areas:
As the authoritative voice for people with lupus, the LFA collaborates with international lupus experts to translate the latest research findings into medically sound and innovative educational materials, programs, and tools for people with lupus and health care providers. Our goal is to ensure that all people affected by lupus have access to the information and services they need.
In 2010, the LFA accomplished goals in these areas:

Program services represent 74% of total expenses.
A complete copy of the audited financial statements is available upon request from the Lupus Foundation of America, Inc. National Office by calling 202-349-1155 or by writing the Lupus Foundation of America , Inc, 2000 L Street NW, Suite 410, Washington, DC 20036. The Lupus Foundation of America, Inc. has received the Better Business Bureau Wise Giving Alliance Seal, and continues to meet all standards of the National Health Council.


Program services represent 74% of total expenses.
A complete copy of the audited financial statements is available upon request from the Lupus Foundation of America, Inc. National Office by calling 202-349-1155 or by writing the Lupus Foundation of America , Inc, 2000 L Street NW, Suite 410, Washington, DC 20036. The Lupus Foundation of America, Inc. has received the Better Business Bureau Wise Giving Alliance Seal, and continues to meet all standards of the National Health Council.