Publications and Reports
Our annual reports summarize our progress and tell our supporters how their contributions are helping us succeed.
UNVEIL Survey Factsheet (PDF)
This survey, conducted in partnership with Eli Lilly and Company between February and March 2014, sheds new light on the lupus journey and the challenges not only for those living with lupus, but also for lupus caregivers. The study highlights the devastating impact lupus has on all aspects of life including family, work, finances, treatment experiences and overall quality of life.
In 2009, the Foundation commissioned a nine-month study by the nationally recognized health policy research organization, The Lewin Group, to examine barriers to lupus drug development. The report, "Overcoming Barriers to Drug Development in Lupus," is the first to detail obstacles and provide recommendations on how to overcome them.
This 2012 national survey shows 72 percent of Americans between the ages of 18 and 34 have either not heard about lupus at all or know little or nothing about the disease beyond the name.